BEYOND CELIAC

Research summit: in october 2024, beyond celiac co-hosted the 2024 beyond celiac research summit with the children's hospital of philadelphia... Read more on schedule o.the summit brought together researchers, clinicians, academics, and patient advocates to explore the latest scientific developments.featured presentations included:1. Dr. Sonia gonalves pereira on microbiome mechanisms in disease progression.2. Dr. Michael fitzpatrick on novel monitoring methods beyond blood tests.3. Dr. Arnold han on the role of cd8 t cells in celiac disease. The summit also spotlighted beyond celiac-funded research and included discussions on clinical trial acceleration, patient registries, and equity-focused research. These summits serve as a hub for collaboration and progress in the field of celiac disease science.

Additional program activities including patient, ambassador and other programs:reach beyond celiac programsthrough our reach beyond celiac initiative, we empower community leaders through the ambassador program, intern program, and other volunteer-driven engagement. Ambassadors tailor their efforts to their communities hosting events, fostering peer-to-peer support, and raising awareness nationwide. Our interns and ambassadors collaborate with staff on local outreach, content development, and advocacy initiatives, strengthening our national presence and expanding the organization's reach and impact. Patient education & support programsbeyond celiac provides essential educational resources to patients at all stages of their celiac journey. Our "newly diagnosed guide" offers comprehensive tools for understanding celiac disease and initiating a gluten-free diet. We also publish downloadable toolkits and host webinars for specific populations, students, parents, and adults covering topics like reading food labels, managing cross-contamination, and navigating social settings. Through town halls, virtual q&a sessions, and accessible online materials, our patient programs promote self-advocacy, informed decision-making, and ongoing community connection.