Grantmaking public charityEIN 844985747
CACNA1A Foundation
Norwalk, CT 06854
Total Assets
$726K
FY 2024
Annual Giving
$72K
FY 2024
Grants Made
3
FY 2024
Avg Grant
$24K
FY 2024
Grant Range
—
Typical
Deadlines
—
Applications
Programs & Activities
Program 1
$160KOn July 18, 2024, the CACNA1A Foundation hosted its third annual Research Roundtable, bringing together 50 researchers, clinicians, industry representatives, and NINDS grant managers to advance clinical trials for CACNA1A-related disorders. We also held our second hybrid Creating Connections Community Conference, uniting over 200 participants, including families and experts, to share research updates and support. This event remains a vital space for connection, education, and empowerment in the rare disease community.
Program 2
$35KThe CACNA1A Foundation raised awareness by participating in national and international events, including Global Genes, the American Epilepsy Society, and Rare Disease Day at the Broad Institute. We hosted 22 virtual meetups for families and launched the Cure Club to boost research participation through personalized outreach. Additionally, we advocated for a unique ICD-10 code for CACNA1A-related neurodevelopmental disorders at the ICD-10 Coordination and Maintenance Committee Meeting.
Focus Areas
Financial Snapshot
2024 filing
Total Revenue
$466K
Total Expenses
$540K
Giving Over Time
4 years
Total dollars recorded per filing year. Scale adjusts to the foundation's range.
Top Recipients
11 grants
Grant Size Distribution
11 grants
Geographic Focus
6 states
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