Funder DirectoryCREUTZFELDT-JAKOB DISEASE FOUNDATION INC
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Grantmaking public charityEIN 650404623

CREUTZFELDT-JAKOB DISEASE FOUNDATION INC

AKRON, OH 44333

Total Assets

$9.2M

FY 2024

Annual Giving

$200K

FY 2024

Grants Made

2

FY 2024

Avg Grant

$100K

FY 2024

Grant Range

Typical

Deadlines

Applications

Programs & Activities

Program 1

$1.0M

In 2024, the cjd foundation awarded $702,920 in grants to 8 researchers selected by our scientific advisory committee, which comprises international prion disease experts. 50 researchers worldwide applied. Grant recipients present their research at the cjd foundation's annual family conference. The cjd foundation has awarded more than 94 research grants since 2006, funding a number of groundbreaking projects that have led to important new discoveries. Funding comes from family memorial research grants and from the fundraising activities of the cjd foundation.

Program 2

$42K

The cjd foundation hosts grand round presentations, infection control seminars, and funeral education around the country, at no charge. Our medical education programs are instructed by prion disease experts. In 2024, we provided medical education:medical education neurology grand rounds were held in: - texas at dshs, which includes staff from dshs, health and human services commission, local health departments, local mental health centers, hospitals, institutions of higher education, and others throughout texas. - imed/salt lake valley neurology department (continued on schedule o)- baystate university of massachusetts medical school- cape cod falmouth hospital in falmouth, ma.funeral education presenations were held in:- indianapolis, indianawe also responded to requests for information from 70 medical professionals via our helpline, and made information available to medical, infectious disease, hospice and genetic counseling professionals through our website, educational binders, and annual conference which is recorded and posted on our website.

Program 3

$47K

Advocacy with political representatives and public policy makers

Financial Snapshot

2024 filing

Total Revenue

$2.9M

Total Expenses

$1.9M

Giving Over Time

5 years

Giving over time from 2018 to 2024. Peak $430K in 2020. Hover bars for details.

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

17 grants

CASE WESTERN RESERVE
$350K
3 grants
NATIONAL INSTITUTE OF ALLERGY AND INFECTIOUS DISEASES
$100K
1 grant
$100K
1 grant
UNIVERSITY OF TEXAS
$100K
1 grant
CASE WESTERN RESERVE UNIVERSITY
$100K
1 grant
UNIVERSITY OF TEXAS HEALTH SCIENCES
$100K
1 grant

Grant Size Distribution

17 grants

<$10K
$10–50K
7
grants
$50–250K
10
grants
$250K–1M
$1–5M
$5M+

Geographic Focus

9 states

Ohio
$450K
33% of total
Texas
$250K
18% of total
Massachusetts
$200K
15% of total
Maryland
$180K
13% of total
Nebraska
$100K
7% of total
Colorado
$50K
4% of total
Missouri
$50K
4% of total
New York
$50K
4% of total
Montana
$47K
3% of total

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CREUTZFELDT-JAKOB DISEASE FOUNDATION INC — Grants, Financials & Contact | Grantivo