CURE CMD

Outreach & Education - While we work with the research community to identify a pipeline of future treatments for the congenital muscular dystrophies Cure CMD supports the affected community where they are today through a variety of supportive content and connections that are responsive to the their needs and giving them a prominent voice in determining Cure CMDs priorities and future programming. We host the CMD Scientific and Family Conference SciFam: scifam.info bringing together stakeholders from around the world to learn share and interrogate research progress. We host an ongoing webinar series that explores topics relevant to those living with or caring for someone with CMD. We host online support groups and other opportunities for community members to connect and share their experiences. Our Legislative Advocacy Team forges a path for community members to share their story and their needs with local state and federal policy makers. And our Executive and Scientific Directors provide 1:1 support for those newly diagnosed and struggling to understand where they should begin to ensure their affected loved one has the best possible quality of life. These are just some of the opportunities we offer to support those living with CMD and will continue to evolve our programming to best serve the communitys ever-changing needs.