Funder DirectoryCYSTINOSIS RESEARCH NETWORK INC
Back to directory

Grantmaking public charityEIN 043323789

CYSTINOSIS RESEARCH NETWORK INC

LAKE FOREST, IL 60045

Total Assets

$605K

FY 2024

Annual Giving

$37K

FY 2024

Grants Made

1

FY 2024

Avg Grant

$37K

FY 2024

Grant Range

Typical

Deadlines

Applications

Programs & Activities

Program 1

$188K

The organization raises awareness and reinforces strong relationships through representation at national medical conferences, affiliation with other organizations, publication of periodic newsletters and awards or educational scholarships to individuals with cystinosis and their siblings.

Program 2

$24K

The organization provides information and opportunities to network for individuals with cystinosis and their families through participation in a biennial conference on cystinosis. It also supports newly diagnosed and existing families by providing access to world experts via advisory boards, moderation of an email support group and information packets.

Focus Areas

Education

Financial Snapshot

2024 filing

Total Revenue

$646K

Total Expenses

$357K

Giving Over Time

4 years

Giving over time from 2020 to 2024. Peak $229K in 2022. Hover bars for details.

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

5 grants

ALBERT EINSTEIN COLLEGE OF MEDICINE
$158K
1 grant

Grant Size Distribution

5 grants

<$10K
$10–50K
3
grants
$50–250K
2
grants
$250K–1M
$1–5M
$5M+

Geographic Focus

2 states

New York
$191K
57% of total
California
$144K
43% of total

Ready to work on a proposal for CYSTINOSIS RESEARCH NETWORK INC?

Open a draft with this funder pre-selected. Add guidelines when you have them.

Draft an application for CYSTINOSIS RESEARCH NETWORK INC
Funder alerts

Track CYSTINOSIS RESEARCH NETWORK INC

Get an email when Grantivo has new data for CYSTINOSIS RESEARCH NETWORK INC, such as a fresh IRS filing, updated financials, or newly reported grants. No account needed.

Free. Unsubscribe anytime. Or create an account to draft an application.

CYSTINOSIS RESEARCH NETWORK INC — Grants, Financials & Contact | Grantivo