Funder DirectoryDIAMOND BLACKFAN ANEMIA FOUNDATION
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Grantmaking public charityEIN 161459422

DIAMOND BLACKFAN ANEMIA FOUNDATION

WEST SENECA, NY 14224

Total Assets

$1.8M

FY 2024

Annual Giving

$120K

FY 2024

Grants Made

2

FY 2024

Avg Grant

$60K

FY 2024

Grant Range

Typical

Deadlines

Applications

Programs & Activities

Program 1

$11K

(ash) exhibition at the american society of hematology annual meeting (ash) attended by approximately 20,000 worldwide hematologists to provide the latest clinical and research information pertaining to diamond blackfan anemia.

Program 2

$84K

(adults with dba) a meeting organized to address the unique physical and psychosocial challenges confronted by adult patients living with the rare disorder. The meeting was open to patients 18 years old and older and a support person. In addition to several presentations by experts in various pertinent fields, the weekend long meeting also provided an opportunity for adult patients to meet each other and come together as a community. Patients and their support person were also afforded time to discuss their individual concerns with several world-renowned clinicians and dba researchers.

Focus Areas

Voluntary Health Associations & Medical Disciplines

Financial Snapshot

2024 filing

Total Revenue

$499K

Total Expenses

$397K

Giving Over Time

3 years

Giving over time from 2020 to 2024. Peak $346K in 2023. Hover bars for details.

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

8 grants

Grant Size Distribution

8 grants

<$10K
$10–50K
2
grants
$50–250K
6
grants
$250K–1M
$1–5M
$5M+

Geographic Focus

5 states

Massachusetts
$276K
46% of total
California
$120K
20% of total
New York
$113K
19% of total
Tennessee
$70K
12% of total
Kentucky
$15K
3% of total

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DIAMOND BLACKFAN ANEMIA FOUNDATION — Grants, Financials & Contact | Grantivo