Grantmaking public charityEIN 521762747

FSHD SOCIETY

RANDOLPH, MA 02368

Total Assets

$5.6M

FY 2024

Annual Giving

FY 2024

Grants Made

0

FY 2024

Avg Grant

FY 2024

Grant Range

Typical

Deadlines

Applications

Programs & Activities

Program 1

$2.3M

Patient advocacy and educationthe society seeks to enlarge, engage, & empower an active global community. The fshd society's patient advocacy and education programs directly benefit patients and their families by connecting fshd muscular dystrophy patients and families to healthcare providers, research institutions, and support groups, providing high-quality educational materials, organizing educational meetings and conferences, and creating opportunities and support for advocacy and raising public awareness.

Focus Areas

Medical Research

Financial Snapshot

2024 filing

Total Revenue

$4.9M

Total Expenses

$5.5M

Giving Over Time

5 years

Giving over time from 2018 to 2022. Peak $1.4M in 2021. Hover bars for details.

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

35 grants

Recipient names are missing from the available filing data for some grants.

Grant Size Distribution

34 grants

<$10K
6
grants
$10–50K
3
grants
$50–250K
22
grants
$250K–1M
3
grants
$1–5M
$5M+

Geographic Focus

11 states

Kansas
$1.1M
29% of total
Maryland
$580K
16% of total
Connecticut
$470K
13% of total
Ohio
$466K
12% of total
Massachusetts
$283K
8% of total
Colorado
$269K
7% of total
Missouri
$189K
5% of total
Minnesota
$183K
5% of total
Nevada
$120K
3% of total
Utah
$50K
1% of total

+1 more states

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FSHD SOCIETY — Grants, Financials & Contact | Grantivo