Grantmaking public charityEIN 820714729
KIF1AORG INC
NEW YORK, NY 10001
Total Assets
$218K
FY 2024
Annual Giving
—
FY 2024
Grants Made
0
FY 2024
Avg Grant
—
FY 2024
Grant Range
—
Typical
Deadlines
—
Applications
Programs & Activities
Program 1
$27KCommunity & family support - kif1a.org's community and family support program empowers individuals affected by kif1a associated neurological disorder (kand) through direct support, resource development, and family-centered initiatives. This program provides a vital support network for patients, caregivers, and advocates navigating the challenges of a rare neurodegenerative disease. Through virtual meetups, educational webinars, personalized family outreach, and an online community platform, kif1a.org fosters meaningful connections among families around the world. The program also provides guidance on clinical care, access to research opportunities, and emotional support resources. By amplifying the voices of patients and caregivers, the community and family support program helps build resilience, reduce isolation, and ensure that every kand family is equipped with the tools and information needed to face the complex realities of this ultra-rare disorder.
Program 2
$19KMedical research and development - kif1a.org's medical research and development program accelerates discovery and therapeutic development for kif1a associated neurological disorder (kand) by driving scientific collaboration and patient-centered research. Led by our chief science officer, this program facilitates coordination among researchers, clinicians, and institutions around the world to align efforts, share data and resources, and advance understanding of kif1a-related symptoms. Through strategic partnerships, research grants, and convening global experts, the program helps identify and prioritize high-impact research projects. Importantly, kif1a.org ensures that the patient and caregiver perspective remains central in all scientific discussions, from basic research to clinical trial design. By bridging the gap between families and the scientific community, the medical research and development program fosters a collaborative ecosystem dedicated to delivering meaningful outcomes for those affected by kand.
Program 3
$28KReimbursement other programs - general and conference attendance.
Focus Areas
Financial Snapshot
2024 filing
Total Revenue
$295K
Total Expenses
$149K
Giving Over Time
3 years
Total dollars recorded per filing year. Scale adjusts to the foundation's range.
Top Recipients
4 grants
Grant Size Distribution
4 grants
Geographic Focus
2 states
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