Funder DirectoryMYOTONIC DYSTROPHY FOUNDATION INC
Back to directory

Grantmaking public charityEIN 205014628

MYOTONIC DYSTROPHY FOUNDATION INC

OAKLAND, CA 94612

Total Assets

$5.8M

FY 2024

Annual Giving

$848K

FY 2024

Grants Made

9

FY 2024

Avg Grant

$94K

FY 2024

Grant Range

Typical

Deadlines

Applications

Programs & Activities

Program 1

$1.3M

Education - We strive not only to help affected individuals, their families and medical professionals understand this disorder, but also to raise awareness about the disease in the general population. MDF supports and helps organize conferences for affected families and medical professionals.

Program 2

$339K

Advocacy - In collaboration with other organizations, we are establishing and perpetuating local and regional support groups to offer emotional support and help to educate families about this disease. In addition to providing information about available services, we advocate for increased funding for myotonic dystrophy research and patient support.

Focus Areas

Voluntary Health Associations & Medical Disciplines

Financial Snapshot

2024 filing

Total Revenue

$3.7M

Total Expenses

$3.8M

Giving Over Time

7 years

Giving over time from 2018 to 2024. Peak $1.0M in 2022. Hover bars for details.

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

37 grants

UNVERSITY AT ALBANY
$350K
2 grants
VIRGINIA COMMONWEALTH UNIVERS
$295K
4 grants
$190K
1 grant

Grant Size Distribution

37 grants

<$10K
1
grants
$10–50K
5
grants
$50–250K
30
grants
$250K–1M
1
grants
$1–5M
$5M+

Geographic Focus

15 states

New York
$923K
27% of total
Florida
$573K
17% of total
California
$350K
10% of total
Virginia
$295K
9% of total
Maine
$199K
6% of total
Nevada
$195K
6% of total
Utah
$190K
5% of total
Texas
$160K
5% of total
Massachusetts
$155K
4% of total
Illinois
$105K
3% of total

+5 more states

Ready to work on a proposal for MYOTONIC DYSTROPHY FOUNDATION INC?

Open a draft with this funder pre-selected. Add guidelines when you have them.

Draft an application for MYOTONIC DYSTROPHY FOUNDATION INC
Funder alerts

Track MYOTONIC DYSTROPHY FOUNDATION INC

Get an email when Grantivo has new data for MYOTONIC DYSTROPHY FOUNDATION INC, such as a fresh IRS filing, updated financials, or newly reported grants. No account needed.

Free. Unsubscribe anytime. Or create an account to draft an application.

MYOTONIC DYSTROPHY FOUNDATION INC — Grants, Financials & Contact | Grantivo