Funder DirectoryNATIONAL TAY-SACHS & ALLIED DISEASES ASS
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Grantmaking public charityEIN 131912877

NATIONAL TAY-SACHS & ALLIED DISEASES ASS

BRIGHTON, MA 02135

Total Assets

$2.8M

FY 2024

Annual Giving

FY 2024

Grants Made

0

FY 2024

Avg Grant

FY 2024

Grant Range

Typical

Deadlines

Applications

Programs & Activities

Program 1

$435K

Family services: provides support to, and advocate for, newly diagnosed families and individuals, families and caregivers actively caring for an affected loved one with tay-sachs, canavan, gm1, or sandhoff disease, and bereaved families and individuals. Connect patient community with researchers and industry partners. Facilitate priviate social media group for affected individuals, families and caregivers.

Program 2

$84K

Education: develop and disseminate resources on tay-sachs, canavan, gm1, and sandhoff diseases to affected individuals, families, and caregivers. Respond to inquiries. Host an annual family conference that includes family interaction, support sessions, and research updates by clinicians, researchers, and industry leaders, consult with members of the scientific community.

Focus Areas

Disease & Medical Research

Financial Snapshot

2024 filing

Total Revenue

$1.4M

Total Expenses

$1.4M

Giving Over Time

5 years

Giving over time from 2017 to 2022. Peak $311K in 2022. Hover bars for details.

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

55 grants

UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
$176K
4 grants
UMASS CHAN MEDICAL CENTER
$143K
1 grant
AUBURN UNIVERSITY AL
$112K
1 grant
WEIZMANN INSTITUTE OF SCIENCE
$48K
1 grant

Grant Size Distribution

30 grants

<$10K
3
grants
$10–50K
23
grants
$50–250K
4
grants
$250K–1M
$1–5M
$5M+

Geographic Focus

9 states

Massachusetts
$491K
52% of total
Alabama
$146K
15% of total
Missouri
$80K
8% of total
Tennessee
$80K
8% of total
Maryland
$56K
6% of total
Pennsylvania
$35K
4% of total
South Carolina
$30K
3% of total
Arkansas
$14K
2% of total
Georgia
$13K
1% of total

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