Necrotizing Enterocolitis NEC Society

In 2024, the NEC Society held meetings with more than 30 elected officials across the US to help them understand the devastation of necrotizing enterocolitis and the urgent need to improve outcomes for NICU families and babies. The power of our patient-families personal stories motivated state legislators to pass NEC Awareness Day Resolutions declaring May 17th NEC Awareness Day to increase awareness about NEC outside of the neonatal intensive care unit. Given the power of our patient-family stories, to date, California, Pennsylvania, New York, Louisiana, Colorado, New Jersey, Georgia, and Utah have declared May 17th NEC Awareness Day. The NEC Society also helped to organize 40 community-based events across the US to raise awareness about the disease and provide evidence-based information to patient-families, clinicians, and community members.