Funder DirectoryPACHYONYCHIA CONGENITA FUND
Back to directory

Grantmaking public charityEIN 680567493

PACHYONYCHIA CONGENITA FUND

HOLLADAY, UT 84117

Total Assets

$3.0M

FY 2024

Annual Giving

$247K

FY 2024

Grants Made

3

FY 2024

Avg Grant

$82K

FY 2024

Grant Range

Typical

Deadlines

Applications

Programs & Activities

Program 1

$100K

Ipcrr maintained the international pachyonychia congenita research registry (ipcrr). Since 2004, and with irb approval, the ipcrr has provided over 3000 patients with free genetic testing, physician consultations, patient meetings, chat groups, special web meetings, and bi-monthly patient newsletters. Through the ipcrr, patients also have opportunities to participate in clinical trials and studies.

Program 2

$506K

Ipcc since 2004, the ipcc has held annual scientific meetings, awarded research grants, coordinated research with both academic and private institutions, conducted monthly web meetings with the ipcc genetics team, established and met annual research goals, and distributed quarterly newsletters to over 400 physicians and scientists. Working with leaders in the ipcc, clinical trials have been completed and numerous clinical and research studies have been conducted. It is estimated that nearly 200 articles have been published in leading scientific journals by the organization or its ipcc members, a number of which cited ipcrr data and research and clinical studies done through ipcc.

Focus Areas

Medical Research

Financial Snapshot

2024 filing

Total Revenue

$817K

Total Expenses

$743K

Giving Over Time

2 years

Giving over time from 2022 to 2024. Peak $247K in 2024. Hover bars for details.

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

4 grants

UT SOUTHWESTERN MEDICAL CENTER
$50K
1 grant
ANYI THERAPEUTICS INC
$25K
1 grant

Grant Size Distribution

4 grants

<$10K
$10–50K
2
grants
$50–250K
2
grants
$250K–1M
$1–5M
$5M+

Geographic Focus

4 states

Massachusetts
$99K
37% of total
Maryland
$98K
36% of total
Texas
$50K
18% of total
California
$25K
9% of total

Ready to work on a proposal for PACHYONYCHIA CONGENITA FUND?

Open a draft with this funder pre-selected. Add guidelines when you have them.

Draft an application for PACHYONYCHIA CONGENITA FUND
Funder alerts

Track PACHYONYCHIA CONGENITA FUND

Get an email when Grantivo has new data for PACHYONYCHIA CONGENITA FUND, such as a fresh IRS filing, updated financials, or newly reported grants. No account needed.

Free. Unsubscribe anytime. Or create an account to draft an application.

PACHYONYCHIA CONGENITA FUND — Grants, Financials & Contact | Grantivo