Grantmaking public charityEIN 411306908
PRADER-WIllI SYNDROME ASSOCIATION (USA)
BRANDON, FL 33511
Total Assets
$3.7M
FY 2024
Annual Giving
—
FY 2024
Grants Made
0
FY 2024
Avg Grant
—
FY 2024
Grant Range
—
Typical
Deadlines
—
Applications
Programs & Activities
Program 1
$438KAdvocacy and awareness: increasing awareness and effectively advocating for prader-willi syndrome at the state and federal level is a critical component of our mission. We seek to involve all members of our community and work to keep you informed on the best ways to affect change for our loved ones. In 2024, pwsa conducted a dc fly-in drawing 147 advocates representing 31 states. Advocates attended a remarkable 131 congressional meetings to engage in discussion and be a voice for those affected by prader-willi syndrome.
Program 2
$51KResearch: pwsa/usa seeks to support research projects with the potential for immediate and high impact for the pws community. The goal is to fast-track better treatment for the syndrome, and we proudly collaborate with partners representing pharmaceutical companies, research universities, and more to achieve that goal. Pwsa usas clinical and scientific advisory board (csab) dedicate thousands of hours to enhance research, write educational materials and provide consultation to understanding and treating pws. In 2024, multiple phase 3 trials began to bring new hope to the community. Several years of advocacy and research efforts helped pave way to the first fda approved treatment for hyperphagia.
Financial Snapshot
2024 filing
Total Revenue
$1.6M
Total Expenses
$1.6M
Giving Over Time
5 years
Total dollars recorded per filing year. Scale adjusts to the foundation's range.
Top Recipients
18 grants
Grant Size Distribution
18 grants
Geographic Focus
5 states
Ready to work on a proposal for PRADER-WIllI SYNDROME ASSOCIATION (USA)?
Open a draft with this funder pre-selected. Add guidelines when you have them.
Related funders in Florida
THE FAIRHOLME FOUNDATION
CORAL GABLES, FL · $11.7M in grants
THE MILL PARK FOUNDATION INC
NAPLES, FL · $11.5M in grants
Hoehl Family Foundation
Clearwater, FL · $3.4M in grants
HANLEY FOUNDATION
MIAMI BEACH, FL · $2.2M in grants
THE CSH ADMINISTRATIVE CHARITABLE TRUST
NICEVILLE, FL · $2.1M in grants
THE SCHROTH FAMILY FOUNDATION INC
TEQUESTA, FL · $1.3M in grants
HARPER FAMILY CHARITABLE FOUNDATION INC
MOUNT DORA, FL · $1.2M in grants
Ner Tzion Foundation
Miami Beach, FL · $1.2M in grants
Track PRADER-WIllI SYNDROME ASSOCIATION (USA)
Get an email when Grantivo has new data for PRADER-WIllI SYNDROME ASSOCIATION (USA), such as a fresh IRS filing, updated financials, or newly reported grants. No account needed.
Free. Unsubscribe anytime. Or create an account to draft an application.