Funder DirectoryRETT SYNDROME RESEARCH TRUST INC
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Grantmaking public charityEIN 260687439

RETT SYNDROME RESEARCH TRUST INC

TRUMBULL, CT 06611

Total Assets

$20.4M

FY 2024

Annual Giving

$3.9M

FY 2024

Grants Made

16

FY 2024

Avg Grant

$243K

FY 2024

Grant Range

Typical

Deadlines

Applications

Programs & Activities

Program 1

$37K

The organization sponsors scientific workshops that bring the leading rett researchers together with elite scientists in synergistic fields to exchange data and set research direction.

Program 2

The organization provides funding to leading research institutions working on rett syndrome and related mecp2 disorders. Research is aimed at 1) restoring levels of mecp2 protein, 2) identifying objective tools to measure rett symptoms 3) establish a clinical trial network 4) identify function of mecp2 protein.

Program 3

The organization sponsors scientific workshops that bring the leading rett researchers together with elite scientists in synergistic fields to exchange data and set research direction.

Focus Areas

Health Care

Financial Snapshot

2024 filing

Total Revenue

$9.3M

Total Expenses

$11.7M

Giving Over Time

7 years

Giving over time from 2018 to 2024. Peak $9.9M in 2023. Hover bars for details.

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

138 grants

GENE THERAPY CONSORTIUM
$4.0M
3 grants
OMBD CONSORTIUM
$2.2M
3 grants
EMORY UNIVERSITY
$2.0M
4 grants
CLINICAL TRIAL CONSORTIUM
$1.6M
4 grants
MECP2 CONSORTIUM
$1.4M
3 grants

Grant Size Distribution

138 grants

<$10K
4
grants
$10–50K
26
grants
$50–250K
66
grants
$250K–1M
34
grants
$1–5M
8
grants
$5M+

Geographic Focus

13 states

Massachusetts
$14.5M
44% of total
Connecticut
$9.8M
30% of total
California
$2.6M
8% of total
Georgia
$1.5M
5% of total
Texas
$877K
3% of total
Oregon
$725K
2% of total
New York
$679K
2% of total
Washington
$536K
2% of total
Ohio
$517K
2% of total
New Jersey
$414K
1% of total

+3 more states

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RETT SYNDROME RESEARCH TRUST INC — Grants, Financials & Contact | Grantivo