Funder DirectorySPASTIC PARAPLEGIA FOUNDATION INC
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Grantmaking public charityEIN 043594491

SPASTIC PARAPLEGIA FOUNDATION INC

O Fallon, MO 63368

Total Assets

$3.1M

FY 2024

Annual Giving

$310K

FY 2024

Grants Made

3

FY 2024

Avg Grant

$103K

FY 2024

Grant Range

Typical

Deadlines

Applications

Programs & Activities

Program 1

$153K

The Foundation holds an annual conference each year for individuals suffering from the disease, their families, and caregivers. Researchers speak about primary lateral sclerosis and hereditary spastic paraplegia, including updates on the current state of their research. Attendees meet others affected by the disorders, typically the first time these individuals have met others with the same condition in person. Attendees pay a registration fee to attend.

Program 2

$13K

The Foundation prints and distributes "Synapse", a periodical about the disorders, activities of the Foundation, and articles about research.

Program 3

$4K

Printing expenses to update annual report recipients of medical research status; software to facilitate advocacy of rare diseases

Focus Areas

Voluntary Health Associations & Medical Disciplines

Financial Snapshot

2024 filing

Total Revenue

$1.7M

Total Expenses

$900K

Giving Over Time

4 years

Giving over time from 2020 to 2024. Peak $1.3M in 2023. Hover bars for details.

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

13 grants

$450K
3 grants
$236K
3 grants
$150K
1 grant
$150K
1 grant
$150K
1 grant

Grant Size Distribution

13 grants

<$10K
1
grants
$10–50K
$50–250K
11
grants
$250K–1M
1
grants
$1–5M
$5M+

Geographic Focus

7 states

Massachusetts
$600K
27% of total
Pennsylvania
$450K
21% of total
Illinois
$449K
21% of total
New York
$236K
11% of total
Georgia
$150K
7% of total
Florida
$150K
7% of total
Connecticut
$150K
7% of total

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SPASTIC PARAPLEGIA FOUNDATION INC — Grants, Financials & Contact | Grantivo