Grantmaking public charityEIN 812216511
Tatton Brown Rahman Syndrome Community Inc
Stanfordville, NY 12581
Total Assets
$692K
FY 2024
Annual Giving
$10K
FY 2024
Grants Made
1
FY 2024
Avg Grant
$10K
FY 2024
Grant Range
—
Typical
Deadlines
—
Applications
Programs & Activities
Program 1
$117KCollaborative Research Network: Over the past year, the TBRS Community expanded its Collaborative Research Network (CRN) by fostering cross-disciplinary partnerships, centralizing data, and prioritizing patient-driven research goals. We increased the TBRS Patient Registry to over 200 participants, making it a vital resource for scientific discovery. Additionally, we developed a strategic research roadmap to guide efforts toward clinical outcomes and ensure open access to data, accelerating the path toward effective treatments.
Program 2
$46KEducation: In the past year, the TBRS Community delivered critical education and advocacy programs, including:Raising awareness of seizures, cardiac concerns, and cancer risks through scientific publications and advocacy efforts.Launching a Future Planning Series with expert-led sessions on long-term care, financial planning, and adult services, supporting families in making informed decisions.Hosting family education webinars, social groups, and parent support networks, strengthening community connections and equipping families with research and clinical insights.
Focus Areas
Financial Snapshot
2024 filing
Total Revenue
$271K
Total Expenses
$400K
Giving Over Time
3 years
Total dollars recorded per filing year. Scale adjusts to the foundation's range.
Top Recipients
3 grants
Grant Size Distribution
3 grants
Geographic Focus
1 states
Ready to work on a proposal for Tatton Brown Rahman Syndrome Community…?
Open a draft with this funder pre-selected. Add guidelines when you have them.
Related funders in New York
THE PINDAROS FOUNDATION INC
NEW YORK, NY · $70.1M in grants
GOLDSTEIN FAMILY FOUNDATION
SPRING VALLEY, NY · $13.3M in grants
JOHN & AMY GRIFFIN FOUNDATION
PEARL RIVER, NY · $8.2M in grants
DANCING TIDES FOUNDATION INC
GARDEN CITY, NY · $4.5M in grants
GOULDER FAMILY FOUNDATION
NEW YORK, NY · $2.1M in grants
GOULD FAMILY FOUNDATION
NEW ROCHELLE, NY · $1.4M in grants
CHERYL C & BLAIR EFFRON FAMILY
GARDEN CITY, NY · $890K in grants
ASHNER EVERGREEN FOUNDATION
JERICHO, NY · $879K in grants
Track Tatton Brown Rahman Syndrome Community Inc
Get an email when Grantivo has new data for Tatton Brown Rahman Syndrome Community Inc, such as a fresh IRS filing, updated financials, or newly reported grants. No account needed.
Free. Unsubscribe anytime. Or create an account to draft an application.