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Funder Directory›THE BARTH SYNDROME FOUNDATION

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Grantmaking public charityEIN 223755704

THE BARTH SYNDROME FOUNDATION

LARCHMONT, NY 10538

Website Draft an application for THE BARTH SYNDROME FOUNDATION

Total Assets

$5.6M

FY 2024

Annual Giving

$236K

FY 2024

Grants Made

FY 2024

Avg Grant

$59K

FY 2024

Grant Range

—

Typical

Deadlines

—

Applications

Programs & Activities

Program 1

$332K

This conference which is held every two years, brings affected families, research scientists and clinicians together in one place at a time, so that they may collaborate and share their knowledge to gain a greater understanding of barth syndrome and learn about the latest discoveries and scientific research available. Families have a unique opportunity to be seen by the world's greatest experts, thereby, contributing directly to the search for a cure by prodiving information and tissue samples.

Program 2

$274K

Bsf builds awareness of barth syndrome to improve diagnosis and care, while advancing advocacy efforts that amplify patient voices, mobilize our patient community, and support progress in research and treatment access and drug development policy

Program 3

$306K

Represents awareness programs designed to ensure families, physicians, and researchers are aware of barth syndrome. These programs are comprised of services related to advocacy and awareness, communication and awareness, and family services.

Focus Areas

Public Foundations

Financial Snapshot

2024 filing

Total Revenue

$1.9M

Total Expenses

$2.1M

Giving Over Time

7 years

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

28 grants

Recipient names are missing from the available filing data for some grants.

BOSTON CHILDREN'S HOSPITAL

$300K

4 grants

TEXAS HEALTH CENTER

$100K

1 grant

WAKE FOREST UNIVERSITY HEALTH SCIENCES

$100K

1 grant

UNIVERSITY OF CALIFORNIA REGENTS

$100K

1 grant

WAYNE STATE UNIVERSITY

$100K

2 grants

NEW YORK UNIVERSITY SCHOOL OF MEDICINE

$100K

2 grants

NEW YORK UNIVERSITY

$96K

2 grants

DUKE UNIVERSITY

$96K

2 grants

Grant Size Distribution

26 grants

<$10K—

$10–50K

grants

$50–250K

grants

$250K–1M—

$1–5M—

$5M+—

Geographic Focus

9 states

Massachusetts

$384K

25% of total

New York

$357K

23% of total

North Carolina

$196K

13% of total

Texas

$184K

12% of total

Colorado

$122K

8% of total

California

$100K

6% of total

Michigan

$100K

6% of total

Virginia

$50K

3% of total

Connecticut

$50K

3% of total

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