Funder DirectoryTHE MARFAN FOUNDATION INC
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Grantmaking public charityEIN 521265361

THE MARFAN FOUNDATION INC

PORT WASHINGTON, NY 110502023

Total Assets

$19.5M

FY 2024

Annual Giving

$1.0M

FY 2024

Grants Made

6

FY 2024

Avg Grant

$174K

FY 2024

Grant Range

Typical

Deadlines

Applications

Programs & Activities

Program 1

$2.1M

See schedule o.support -expenses $2,092,564, grants $12,297, revenue $32,885the marfan foundation offers cutting-edge fact-based information about marfan, loeys-dietz, vascular ehlers-danlos (veds), and other genetic aortic and vascular conditions. We reach a worldwide audience digitally and through in-person programming. Through our institutional directory, the marfan foundation connects thousands of individuals and families to more than 70 u.s. - and a growing number of global - institutions offering expertise in marfan, lds, veds, and related genetic aortic and vascular conditions. We provide expansive information for patients, family members, and healthcare providers through our website and helpline, accessible via phone and email, as well as webinars on medical topics, mental health issues, support groups, and quality of life. Programs are scheduled at various times to increase access across time zones (us and abroad). An increasing number of resources and educational opportunities are offered in spanish language and other languages to better serve people living with genetic aortic conditions and their support networks. The foundation is focused on ensuring everyone has access to quality care and fostering belonging for all.

Program 2

$1.4M

See schedule o.education - expenses $1,380,263, grants $4,647, revenue $1,505the marfan foundation and its divisions (the loeys-dietz syndrome foundation, the veds movement, and the genetic aortic network) are the preeminent providers of information and programs for people living with genetic aortic and vascular conditions, their loved ones, medical professionals, researchers, and the general public. We reach one million people annually with our educational resources, and more than 7 million in the social media space alone. The marfan foundation offers a wealth of medical and quality-of-life information in many languages through its help & resource center, which reaches 5,000 people every year -- directed by in-house nurses and a bilingual manager who answer questions by phone and email, and through its comprehensive website, which is available in more than 25 languages. The foundation offers specialized resources for children, teens, parents, teachers, and school nurses. In addition, the foundation is focused on mental health, offering a range of opportunities, including virtual support groups, videos, webinars, and other content. The marfan foundation focuses on expanding health equity and access to care for the constituents we serve globally.

Financial Snapshot

2024 filing

Total Revenue

$7.8M

Total Expenses

$7.6M

Giving Over Time

4 years

Giving over time from 2020 to 2024. Peak $1.0M in 2024. Hover bars for details.

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

29 grants

Grant Size Distribution

29 grants

<$10K
5
grants
$10–50K
4
grants
$50–250K
16
grants
$250K–1M
4
grants
$1–5M
$5M+

Geographic Focus

13 states

Maryland
$1.2M
36% of total
California
$470K
14% of total
New York
$399K
12% of total
Texas
$396K
12% of total
North Carolina
$220K
7% of total
New Jersey
$216K
6% of total
Connecticut
$100K
3% of total
Ohio
$100K
3% of total
Kentucky
$100K
3% of total
Missouri
$100K
3% of total

+3 more states

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THE MARFAN FOUNDATION INC — Grants, Financials & Contact | Grantivo