Funder DirectoryTHE RARE DISEASE CHARITABLE FOUNDATION
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EIN 453132103

THE RARE DISEASE CHARITABLE FOUNDATION

Lexington, MA 02421

Total Assets

FY 2022

Annual Giving

$171.3M

FY 2022

Grants Made

1

FY 2022

Avg Grant

$171.3M

FY 2022

Grant Range

$171.3M–$171.3M

Typical

Deadlines

Applications

Programs & Activities

Program 1

$162.8M

Firazyr, elaprase, vpriv, cinryze, gattex, kalbitor, takhzyro, cuvitru, gammagard, glassia, hyqvia.

Financial Snapshot

2022 filing

Total Revenue

$162.8M

Total Expenses

$171.3M

Qualifying Distributions

$171.3M

Giving Over Time

2 years

Giving over time from 2021 to 2022. Peak $171.3M in 2022. Hover bars for details.

Total dollars recorded per filing year. Scale adjusts to the foundation's range.

Top Recipients

2 grants

Approximately 449 Patients
$171.3M
1 grant
Approximately 389 Patients
$157.2M
1 grant

Grant Size Distribution

2 grants

<$10K
$10–50K
$50–250K
$250K–1M
$1–5M
$5M+
2
grants

Geographic Focus

1 states

Massachusetts
$328.5M
100% of total

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THE RARE DISEASE CHARITABLE FOUNDATION — Grants, Financials & Contact | Grantivo