Grantmaking public charityEIN 471094057
THE RYR-1 FOUNDATION
PITTSBURGH, PA 15243
Total Assets
$2.7M
FY 2024
Annual Giving
$32K
FY 2024
Grants Made
2
FY 2024
Avg Grant
$16K
FY 2024
Grant Range
—
Typical
Deadlines
—
Applications
Programs & Activities
Program 1
$3KResearch workshop - the patient-led international research workshop is devoted exclusively to ryr-1-related diseases. This workshop provide a much-needed forum for the leading international ryr-1-rd experts and a group of affected individuals to share knowledge, exchange ideas, form collaborations, and develop new strategies for finding therapies. The workshop organizing committee includes a diverse group of researchers/clinicians in ryr-1-rd, members of the ryr-1 foundation's sab, and ryr-1-rd community representatives.
Program 2
$11KFamily conference - the organization periodically hosts family conferences. These conferences are unique opportunities for affected individuals and families to meet physicians and scientists who specialize in ryr-1-rd, learn about ryr-1-rd, form friendships and develop a true ryr-1-rd community.
Focus Areas
Financial Snapshot
2024 filing
Total Revenue
$682K
Total Expenses
$384K
Giving Over Time
5 years
Total dollars recorded per filing year. Scale adjusts to the foundation's range.
Top Recipients
16 grants
Grant Size Distribution
16 grants
Geographic Focus
8 states
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