Private foundation (trust)EIN 842291780Est. 2019-11
The Stiff Person Syndrome Research
Bethesda, MD 20817
Total Assets
$1.3M
FY 2024
Annual Giving
—
FY 2024
Grants Made
0
FY 2024
Avg Grant
—
FY 2024
Grant Range
—
Typical
Deadlines
—
Applications
Programs & Activities
Program 1
$82KRegistry Development SPSRF advanced its patient registry with NORD leading to a July 2025 launch for global SPS data collection and research
Program 2
$52KAwareness & Connection Expanded awareness with new website SPS neurologist directory & a symposium of 350 people from 17 countries
Program 3
$33KClinician Education Enhanced clinician education and worked with experts to reduce diagnostic delays & improve care
Focus Areas
Financial Snapshot
2024 filing
Total Revenue
$622K
Total Expenses
$364K
Distributable Amount
$33K
Min. Investment Return
$33K
Giving Over Time
2 years
Total dollars recorded per filing year. Scale adjusts to the foundation's range.
Top Recipients
2 grants
Grant Size Distribution
2 grants
Geographic Focus
1 states
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