Voluntary Health Associations & Medical Disciplines
3Q29 Foundation
WOODCLIFF LK, NJ
Total revenue
$148K
Total expenses
$43K
Net assets
$115K
Grants received
—
EIN
932052188
Tax year
2024
Mission
The goals of the organization's research are to identify which genes cause dysfunction, understand the cause of chromosome 3q29 disorders, and discover treatment, prevention, and ways to improve the functionality of these genes. In addition to supporting specific research projects, the organization will work to develop a network of leading scientists and industry partners to increase transparency and facilitate shared resources creating economies of scale on all conditions of chromosome 3q29 disorders. In addition to supporting research activities, the organization also seeks to create a community among chromosome 3q29 disorder patient families. The organization believes that each is a resource for the others and only by sharing information can the greater goal of treatment be achieved. Increasing the number of participants and details on medical history should greatly increase the likelihood of treatment for all those with a chromosome 3q29 disorder. Finally, the organization is commi
Programs
2 programs
3q29 family connection series - provides direct support and education to families affected by 3q29 deletion and duplication syndromes through structured virtual meetings. In 2024, we hosted an expert-led session featuring a prominent researcher, with 55 registered participants and 26 active attendees. The recorded presentation was made available to our network of approximately 800 families, ensuring all community members could access this specialized educational content regardless of their ability to attend live. This program creates a safe space for families to receive the latest research updates, ask questions directly to experts, and connect with others sharing similar experiences.
3q29 research impact video initiative - the 3q29 research impact video initiative centers on creating professionally produced educational videos that highlight critical research on 3q29 deletion and duplication syndromes. This compelling visual resource explains the most significant allenges faced by affected individuals and families while showcasing promising research directions in an accessible,hopeful format. The video serves as a powerful outreach tool at public events, educating new audiences about these rare genetic conditions and inspiring engagement through volunteering, donations, and advocacy. This program extends our educational reach beyond affected families to build broader community awareness and support for 3q29 research.
Financials
FY 2024
Revenue
Expenses
People
7 listed
ADELA BALDUCCI
DIRECTOR
—
1 hrs/wk
LINDSEY BORDONE
DIRECTOR
—
0.5 hrs/wk
SANDRA FORMAN
PRESIDENT
—
3 hrs/wk
MICHAEL MERLEY
DIRECTOR
—
0.5 hrs/wk
JESSICA MOON
TREASURER, S
—
7 hrs/wk
JOSE ROMAN
DIRECTOR
—
2 hrs/wk
MARGOT STURZ
DIRECTOR
—
2 hrs/wk