Medical Research
Adnp Kids Research Foundation
BRUSH PRAIRIE, WA
Total revenue
$1.1M
Total expenses
$1.1M
Net assets
$428K
Grants received
$33K
18 grants
EIN
300964243
Tax year
2023
Mission
ADNP Syndrome rare disease patient support advocacy education drug development and scientific research and funder of treatment studies and drug trials for ADNP syndrome. We are a 100% volunteer org working on research for drug development and a cure for ADNP syndrome.
Programs
3 programs
RareBase research funding repurposed drug identification. Phase 3 research and development investigating repurposed drug treatments that increase ADNP expression on human neurons. Final selection of top 10 candidates additional screening including lab work on top single candidate. *FINAL PAYMENT FOR PROJECT
Seaver Autism Center at Mount Sinai research funding for continued ADNP treatment investigations. Continuation of supporting grant applications for low dose KET. investigating low throughput screening animal model characterization biomarker identification in neurons for efficacy in future treatment studies.
Program Services Related Other including contact registry patient registry office expenses business expenses information technology website expenses online security expenses and expenses for research and program related conferences and research meetings all program related.
Financials
FY 2023
Revenue
Expenses
People
4 listed
Sandra Sermone
President
—
30 hrs/wk
Genie Egerton-Warburton
Vice President
—
0.5 hrs/wk
Tim Mosier
Treasurer
—
0.25 hrs/wk
Debbie Abraham
Secretary
—
0.25 hrs/wk
Grants received
Showing 18 of 18
Funded by
$33K from 8 funders · 18 grants · 2018–2024
$13K · 2 grants · 2022–2024
$6K · 3 grants · 2020–2022
$6K · 1 grant · 2018
$4K · 4 grants · 2020–2024
$3K · 2 grants · 2023–2024
$1K · 1 grant · 2020
$900 · 4 grants · 2021–2024
$438 · 1 grant · 2022