NonprofitsAdnp Kids Research Foundation

Medical Research

Adnp Kids Research Foundation

BRUSH PRAIRIE, WA

Total revenue

$1.1M

Total expenses

$1.1M

Net assets

$428K

Grants received

$33K

18 grants

EIN

300964243

Tax year

2023

Mission

ADNP Syndrome rare disease patient support advocacy education drug development and scientific research and funder of treatment studies and drug trials for ADNP syndrome. We are a 100% volunteer org working on research for drug development and a cure for ADNP syndrome.

Programs

3 programs

RareBase research funding repurposed drug identification. Phase 3 research and development investigating repurposed drug treatments that increase ADNP expression on human neurons. Final selection of top 10 candidates additional screening including lab work on top single candidate. *FINAL PAYMENT FOR PROJECT

Expenses: $38K

Seaver Autism Center at Mount Sinai research funding for continued ADNP treatment investigations. Continuation of supporting grant applications for low dose KET. investigating low throughput screening animal model characterization biomarker identification in neurons for efficacy in future treatment studies.

Expenses: $26K

Program Services Related Other including contact registry patient registry office expenses business expenses information technology website expenses online security expenses and expenses for research and program related conferences and research meetings all program related.

Expenses: $21K

Financials

FY 2023

Revenue

Contributions & grants$1.1M
Program service revenue
Investment income
Other revenue
Total revenue$1.1M

Expenses

Grants paid$1.1M
Salaries & benefits
Fundraising
Other expenses$25K
Total expenses$1.1M
Total assets$428K
Net assets$428K

People

4 listed

NameRoleCompensation

Sandra Sermone

President

Board

30 hrs/wk

Genie Egerton-Warburton

Vice President

Board

0.5 hrs/wk

Tim Mosier

Treasurer

Board

0.25 hrs/wk

Debbie Abraham

Secretary

Board

0.25 hrs/wk

Grants received

Showing 18 of 18

FromAmountPurposeYear
$5K
GENERAL SUPPORT
2024
$200
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
$200
GENERAL OPERATING SUPPORT
2023
$8K
GENERAL SUPPORT
2022
$2K
General & Unrestricted
2022
$438
GENERAL PURPOSE
2022
$400
GENERAL OPERATING SUPPORT
2022
$2K
General & Unrestricted
2021
$100
GENERAL OPERATING SUPPORT
2021
$2K
to find a cure for ADNP
2020
$1K
MATCHING GIFTS
2020
$6K
Unrestricted
2018

Funded by

$33K from 8 funders · 18 grants · 2018–2024

Paypal Charitable Giving Fund

$13K · 2 grants · 2022–2024

The Rice Family Charitable Foundation

$6K · 3 grants · 2020–2022

Network For Good

$6K · 1 grant · 2018

The Geaton And Joann Decesaris

$4K · 4 grants · 2020–2024

American Tower Corporation Foundation

$3K · 2 grants · 2023–2024

Ge Foundation

$1K · 1 grant · 2020

Jpmorgan Chase Foundation

$900 · 4 grants · 2021–2024

Amica Companies Foundation

$438 · 1 grant · 2022

Details

EIN300964243
NTEE codeH11
Subsection03
Ruling date2017-03
Formed2016
Employees0
Volunteers5
ADNP KIDS RESEARCH FOUNDATION — Mission, Financials & Grants Received | Grantivo