NonprofitsAlagille Syndrome Alliance

Medical Research

Alagille Syndrome Alliance

COLLIERVILLE, TN

Total revenue

$648K

Total expenses

$513K

Net assets

$634K

Grants received

$355K

25 grants

EIN

931243619

Tax year

2024

Mission

Mobilize resources, facilitate connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people living with alagille syndrome.

Programs

3 programs

Algsa assistance

Expenses: $53K

Algsa assurance

Expenses: $30K

Various other programs

Expenses: $188K

Financials

FY 2024

Revenue

Contributions & grants$605K
Program service revenue
Investment income$43K
Other revenue
Total revenue$648K

Expenses

Grants paid$52K
Salaries & benefits$303K
Fundraising$57K
Other expenses$157K
Total expenses$513K
Total assets$640K
Net assets$634K

People

6 listed

NameRoleCompensation

ROBERTA SMITH

PRESIDENT

Board

$131K

40 hrs/wk

SEAN KELLY

DIRECTOR

Board

2 hrs/wk

MIKE LAROSA

DIRECTOR

Board

2 hrs/wk

SHAMY RAVISHANKAR

DIRECTOR

Board

2 hrs/wk

TODD ALLEN

TREASURER

Board

10 hrs/wk

JULIA BIRD

CHAIRMAN

Board

2 hrs/wk

Grants received

Showing 25 of 25

FromAmountPurposeYear
$10K
GENERAL SUPPORT
2024
$41K
For grant recipient's exempt purposes
2023
$50K
For grant recipient's exempt purposes
2022
$25K
Medical Research
2022
$100
MATCHING GIFTS
2022
$80
PROGRAM/OPERATING SUPPORT
2022
$40
PROGRAM/OPERATING SUPPORT
2022
$37K
For grant recipient's exempt purposes
2021
$37K
For grant recipient's exempt purposes
2021
$25K
Medical Research
2021
$250
TO SUPPORT ALAGILLE SYNDROME
2021
$31K
For grant recipient's exempt purposes
2020
$5K
General Operating Support
2020
$31K
For grant recipient's exempt purposes
2019
$15K
TO FURTHER EXEMPT PURPOSE
2019
$16K
TO FURTHER EXEMPT PURPOSE
2017

Funded by

$355K from 11 funders · 25 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$226K · 6 grants · 2019–2023

Boston Foundation Inc

$50K · 2 grants · 2021–2022

The Shea Foundation

$31K · 2 grants · 2017–2019

Lawrence And Rebecca Stern Family

$15K · 1 grant · 2018

American Online Giving Foundation Inc

$12K · 2 grants · 2022–2024

Paypal Charitable Giving Fund

$10K · 1 grant · 2024

Motorola Solutions Foundation

$5K · 1 grant · 2020

Details

EIN931243619
NTEE codeH41
Subsection03
Ruling date1998-10
Formed1997
Employees3
Volunteers15
ALAGILLE SYNDROME ALLIANCE — Mission, Financials & Grants Received | Grantivo