Nonprofits›Alport Syndrome Foundation Inc

Health Care

Alport Syndrome Foundation Inc

PHOENIX, AZ

WebsiteView as a funder

Total revenue

$1.2M

Total expenses

$1.0M

Net assets

$2.8M

Grants received

$2.3M

56 grants

EIN

208237159

Tax year

2024

Mission

To improve the lives of those affected by alport syndrome through education, empowerment, advocacy, and funding research. The foundations vision is to make alport syndrome a treatable disease and find a cure.

Financials

FY 2024

Revenue

Contributions & grants$1.1M
Program service revenue—
Investment income$131K
Other revenue—
Total revenue$1.2M

Expenses

Grants paid$325K
Salaries & benefits$376K
Fundraising$25K
Other expenses$303K
Total expenses$1.0M
Total assets$2.8M
Net assets$2.8M

People

10 listed

NameRoleCompensation

LISA BONEBRAKE

EXECUTIVE DIRECTOR

Board

$105K

65 hrs/wk

ANDREW KRONENBERG

BOARD CHAIR

Board

—

10 hrs/wk

RYAN LINDER

SECRETARY

Board

—

2.5 hrs/wk

DANIEL KILPATRICK

TREASURER

Board

—

5 hrs/wk

SHARON LAGAS

CO-FOUNDER, DIRECTOR PAST CHAIR

Board

—

5 hrs/wk

AMY RHODES

DIRECTOR

Board

—

5 hrs/wk

DECEMBER WEST

DIRECTOR

Board

—

1 hrs/wk

MARTY DUNLEAVY

DIRECTOR

Board

—

1 hrs/wk

PHILLIP KUMNICK

DIRECTOR

Board

—

1 hrs/wk

STEPHEN MALACH

DIRECTOR

Board

—

1 hrs/wk

Grants received

Showing 56 of 56

FromAmountPurposeYear
AMERICAN ONLINE GIVING FOUNDATION INC
$18K
GENERAL SUPPORT
2024
PAYPAL CHARITABLE GIVING FUND
$12K
GENERAL SUPPORT
2024
THE PFIZER FOUNDATION INC
$6K
MATCHING GIFTS
2024
THE PFIZER FOUNDATION INC
$168
VOLUNTEER PROGRAM
2024
KENNETH WHALEN FAMILY FOUNDATION
$400K
GENERAL
2023
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$35K
For grant recipient's exempt purposes
2023
AMERICAN ONLINE GIVING FOUNDATION INC
$17K
GENERAL SUPPORT
2023
THE DECK FOUNDATION
$10K
Charitable
2023
DONOR ADVISED CHARITABLE GIVING INC
$7K
HEALTH
2023
NETWORK FOR GOOD
$6K
UNRESTRICTED
2023
MARCIA AND NED KAPLIN FOUNDATION
$2K
FOR GENERAL SUPPORT OF CHARITABLE ACTIVITIES
2023
THE WINDHAM FOUNDATION INC
$650
SUPPORT FOR RESEARCH
2023
THE CALIFORNIA WELLNESS FOUNDATION
$300
2023 MATCHING GIFT.
2023
KAHN FOUNDATION CO KAHN LUCAS LANCASTER
$250
FOR GENERAL SUPPORT OF CHARITABLE ACTIVITIES
2023
MEHTA FOUNDATION 12272010
$250
Contribution
2023
EDWARD JONES FOUNDATION
$207
HEALTH - GENERAL AND REHABILITATIVE
2023
THE PFIZER FOUNDATION INC
$200
MATCHING GIFTS
2023
AMERICAN EXPRESS FOUNDATION
$60
GENERAL SUPPORT
2023
THE PFIZER FOUNDATION INC
$50
VOLUNTEER PROGRAM
2023
AMERICAN EXPRESS FOUNDATION
$40
GENERAL SUPPORT
2023
AMERICAN EXPRESS FOUNDATION
$30
GENERAL SUPPORT
2023
AMERICAN EXPRESS FOUNDATION
$20
GENERAL SUPPORT
2023
KENNETH WHALEN FAMILY FOUNDATION
$400K
GENERAL
2022
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$13K
For grant recipient's exempt purposes
2022
AMERICAN ONLINE GIVING FOUNDATION INC
$12K
GENERAL SUPPORT
2022
NETWORK FOR GOOD
$12K
UNRESTRICTED
2022
THE DECK FOUNDATION
$10K
Charitable
2022
ERNST & YOUNG FOUNDATION
$6K
DONOR ADVISED FUND
2022
THE BLACKBAUD GIVING FUND
$6K
GENERAL SUPPORT
2022
DONOR ADVISED CHARITABLE GIVING INC
$6K
HEALTH
2022
US VENTURESCHMIDT FAMILY FOUNDATION
$5K
GENERAL SUPPORT FOR PROGRAMS
2022
MARCIA AND NED KAPLIN FOUNDATION
$2K
FOR GENERAL SUPPORT OF CHARITABLE ACTIVITIES
2022
MARCIA AND NED KAPLIN FOUNDATION
$2K
FOR GENERAL SUPPORT OF CHARITABLE ACTIVITIES
2022
THE WINDHAM FOUNDATION INC
$300
SUPPORT FOR RESEARCH
2022
THE PFIZER FOUNDATION INC
$200
MATCHING GIFTS
2022
AMERICAN EXPRESS FOUNDATION
$160
GENERAL SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$60
GENERAL SUPPORT
2022
KENNETH WHALEN FAMILY FOUNDATION
$500K
GENERAL
2021
NETWORK FOR GOOD
$22K
UNRESTRICTED
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$11K
For grant recipient's exempt purposes
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$11K
For grant recipient's exempt purposes
2021
ERNST & YOUNG FOUNDATION
$10K
DONOR ADVISED FUND
2021
THE DECK FOUNDATION
$10K
Charitable
2021
AMERICAN ONLINE GIVING FOUNDATION INC
$7K
GENERAL SUPPORT
2021
MARCIA AND NED KAPLIN FOUNDATION
$2K
FOR GENERAL SUPPORT OF CHARITABLE ACTIVITIES
2021
THE WINDHAM FOUNDATION INC
$300
SUPPORT FOR RESEARCH
2021
KENNETH WHALEN FAMILY FOUNDATION
$400K
GENERAL
2020
NETWORK FOR GOOD
$22K
Unrestricted
2020
THE DECK FOUNDATION
$10K
Charitable
2020
MARCIA AND NED KAPLIN FOUNDATION
$2K
FOR GENERAL SUPPORT OF CHARITABLE ACTIVITIES
2020
THE WINDHAM FOUNDATION INC
$300
SUPPORT FOR RESEARCH
2020
THE WINDHAM FOUNDATION INC
$300
SUPPORT FOR RESEARCH
2020
KENNETH WHALEN FAMILY FOUNDATION
$275K
GENERAL
2019
NETWORK FOR GOOD
$32K
Unrestricted
2018
NOT IN GOOD TASTE INC
$13K
TO PROVIDE RESEARCH AND SUPPORT FOR THOSE AFFLICTED WITH ALPORT SYNDROME
2018
LINCH FAMILY FOUNDATION
$250
TO PROMOTE THE WELFARE OF THE CHARITABLE ORG.
2017

Funded by

$2.3M from 20 funders · 56 grants · 2017–2024

Kenneth Whalen Family Foundation

$2.0M · 5 grants · 2019–2023

Network For Good

$95K · 5 grants · 2018–2023

Fidelity Investments Charitable Gift Fund

$68K · 4 grants · 2021–2023

American Online Giving Foundation Inc

$54K · 4 grants · 2021–2024

The Deck Foundation

$40K · 4 grants · 2020–2023

Ernst & Young Foundation

$16K · 2 grants · 2021–2022

Donor Advised Charitable Giving Inc

$13K · 2 grants · 2022–2023

Not In Good Taste Inc

$13K · 1 grant · 2018

Details

EIN208237159
NTEE codeE86
Subsection03
Ruling date2007-04
Formed2007
Employees5
Volunteers95
ALPORT SYNDROME FOUNDATION INC — Mission, Financials & Grants Received | Grantivo