Nonprofits›Als Therapy Development Foundation Inc

Medical Research

Als Therapy Development Foundation Inc

WATERTOWN, MA

WebsiteView as a funder

Total revenue

$13.4M

Total expenses

$12.9M

Net assets

$18.6M

Grants received

$21.5M

257 grants

EIN

043462719

Tax year

2024

Mission

We are committed to creating and leading a transparent collaborative research process that involves als patients today and honors those whose journey with this disease has ended. We are guided by passion, love and the spirit of entrepreneurship upon which we were founded.

Financials

FY 2024

Revenue

Contributions & grants$11.3M
Program service revenue$1.3M
Investment income$466K
Other revenue$299K
Total revenue$13.4M

Expenses

Grants paid—
Salaries & benefits$5.6M
Fundraising$621K
Other expenses$7.3M
Total expenses$12.9M
Total assets$23.1M
Net assets$18.6M

People

23 listed

NameRoleCompensation

FERNANDO VIEIRA

CEO AND CSO

Board

$387K

40 hrs/wk

DR SPIROS JAMAS SCD

BOARD MEMBER

Board

—

2.5 hrs/wk

JAMES ALLEN HEYWOOD

BOARD MEMBER

Board

—

2.5 hrs/wk

JOHN B HEYWOOD PHD SCD

BOARD MEMBER

Board

—

2.5 hrs/wk

ROB RODIN

BOARD MEMBER

Board

—

2.5 hrs/wk

PAUL SALLABERRY

BOARD MEMBER

Board

—

2.5 hrs/wk

ROBERT SEPUCHA

BOARD MEMBER

Board

—

2.5 hrs/wk

JENNY DWYER

BOARD MEMBER

Board

—

2.5 hrs/wk

MIKE SMITH

BOARD MEMBER

Board

—

2.5 hrs/wk

JULIE SWAN

BOARD MEMBER

Board

—

2.5 hrs/wk

KENT JACKSON BRANSFORD MD

BOARD MEMBER

Board

—

2.5 hrs/wk

ANDREW NIBLOCK

BOARD MEMBER (LEFT IN DEC 2024)

Board

—

2.5 hrs/wk

TOM ENGELLENNER

BOARD MEMBER

Board

—

2.5 hrs/wk

ALEXANDER CAPPELLO

BOARD MEMBER

Board

—

2.5 hrs/wk

DR STANLEY H APPEL MD

BOARD MEMBER

Board

—

2.5 hrs/wk

THEODORE REICH JD CPA

TREASURER AND BOARD MEMBER

Board

—

2.5 hrs/wk

STEVEN PERRIN PHD

VICE CHAIR

Board

—

2.5 hrs/wk

LYNNE NIETO

CHAIRMAN

Board

—

2.5 hrs/wk

ALAN GILL

VP OF RESEARCH

Staff

$189K

40 hrs/wk

CAROL HAMILTON

VP OF DEVELOPMENT

Staff

$173K

40 hrs/wk

KYLE R DENTON

DIRECTOR, CELL BIOLOGY

Staff

$158K

40 hrs/wk

THEO HATZIPETROS

DIRECTOR OF PHARMACOLOGY

Staff

$156K

40 hrs/wk

MEGHAN BUCO

SENIOR DIRECTOR OF MARKETING & COMMUNICATIONS

Staff

$135K

40 hrs/wk

Independent contractors

INSOURCE SERVICES INC

FINANCE, HR & IT

$573K

ALBERT EINSTEIN COLLEGE OF MEDICINE

RESEARCH CONSULTANT

$137K

SOMALOGIC OPERATING CO INC

RESEARCH CONSULTANT

$135K

LATHROP GAGE

LEGAL

$124K

Grants received

Showing 200 of 257

FromAmountPurposeYear
RACING FOR ALS INC
$322K
TO SUPPORT RESEARCH FOR ALS
2024
RACING FOR ALS INC
$322K
TO SUPPORT RESEARCH FOR ALS
2024
HOP ON A CURE FOUNDATION INC
$250K
—
2024
Team Drea Foundation Inc
$151K
Research on therapeutic treatments
2024
AMERICAN ONLINE GIVING FOUNDATION INC
$104K
GENERAL SUPPORT
2024
WILLIAM K BOWES JR FOUNDATION
$100K
TO SUPPORT THE ALS CAPSULE
2024
SAINT PAUL & MINNESOTA FOUNDATION
$93K
MULTIPLE GRANTS FOR MULTIPLE PURPOSES
2024
PAYPAL CHARITABLE GIVING FUND
$76K
GENERAL SUPPORT
2024
NATL CHRISTIAN CHARITABLE FDN INC
$47K
MEDICAL RESEARCH
2024
IMPACTASSETSINC
$20K
GENERAL SUPPORT
2024
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$20K
UNRESTRICTED GENERAL SUPPORT
2024
JEWISH COMMUNITY FOUNDATION OF LOS ANGELES
$16K
general support
2024
THE US CHARITABLE GIFT TRUST
$14K
FOR RECIPIENT'S EXEMPT PURPOSE
2024
GIVE LIVELY FOUNDATION INC
$12K
GENERAL SUPPORT
2024
AMERICAN ENDOWMENT FOUNDATION
$11K
MEDICAL RESEARCH
2024
TOLEDO COMMUNITY FOUNDATION INC
$10K
SUPPORT FOR THE ALES FOR ALS EVENT HELD AT FIFTH THIRD FIELD IN AUGUST OF 2024 - GENERAL SUPPORT
2024
NETWORK FOR GOOD
$6K
UNRESTRICTED
2024
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$5K
UNRESTRICTED GENERAL SUPPORT
2024
Lucky Seven Foundation
$4K
General & Unrestricted
2024
HYLANT FAMILY FOUNDATION INC
$4K
TO INVENT AND DISCOVER DRUGS UNTIL EVERYONE WITH ALS HAS EFFECTIVE TREATMENTS.
2024
Lucky Heart Fund
$3K
General & Unrestricted
2024
GALLOP FAMILY FOUNDATION
$1K
ANNUAL FUND
2024
The Carter Family Charitable Foundation Inc
$1K
General & Unrestricted
2024
SHELL USA COMPANY FOUNDATION
$300
300
2024
First Eagle Investments Foundation
$100
General & Unrestricted
2024
BAXTER INTERNATIONAL FOUNDATION
$50
MATCHING GIFTS
2024
CITIZENS CHARITABLE FOUNDATION
$25
MATCHING GIFTS
2024
AMERICAN EXPRESS FOUNDATION
$24
GENERAL SUPPORT
2024
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$470K
For grant recipient's exempt purposes
2023
SAINT PAUL & MINNESOTA FOUNDATION
$333K
MULTIPLE GRANTS FOR PROGRAMS, OPERATIONS, OR OTHER PURPOSES
2023
RACING FOR ALS INC
$213K
TO SUPPORT RESEARCH FOR ALS
2023
HOP ON A CURE FOUNDATION INC
$160K
—
2023
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$150K
UNRESTRICTED GENERAL SUPPORT
2023
AMERICAN ONLINE GIVING FOUNDATION INC
$133K
GENERAL SUPPORT
2023
DONOR ADVISED CHARITABLE GIVING INC
$124K
HEALTH
2023
VANGUARD CHARITABLE ENDOWMENT PROGRAM
$120K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
Team Drea Foundation Inc
$115K
Research on therapeutic treatments
2023
WILLIAM K BOWES JR FOUNDATION
$100K
TO SUPPORT THE ALS CAPSULE
2023
PAYPAL CHARITABLE GIVING FUND
$94K
—
2023
NATIONAL PHILANTHROPIC TRUST
$37K
HEALTH
2023
NATL CHRISTIAN CHARITABLE FDN INC
$36K
GROWTH
2023
MEDICAL RESEARCH CHARITIES
$31K
TO ASSIST IN THE ORG
2023
IMPACTASSETSINC
$30K
GENERAL SUPPORT
2023
T ROWE PRICE PROGRAM FOR CHARITABLE
$11K
MULTIPLE
2023
AMERICAN ENDOWMENT FOUNDATION
$11K
MEDICAL RESEARCH
2023
GIVE LIVELY FOUNDATION INC
$10K
GENERAL SUPPORT
2023
CHARITIES AID FOUNDATION AMERICA
$10K
CHARITABLE DONATION
2023
ED RACHAL FOUNDATION
$10K
PROGRAM SUPPORT
2023
THE MCJ AMELIOR FOUNDATION
$10K
FOR GENERAL OPERATING SUPPORT
2023
HYLANT FAMILY FOUNDATION INC
$10K
TO INVENT AND DISCOVER DRUGS UNTIL EVERYONE WITH ALS HAS EFFECTIVE TREATMENTS.
2023
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$10K
UNRESTRICTED GENERAL SUPPORT
2023
UNITED WAY OF THE GREATER LEHIGH VALLEY
$9K
DONOR DESIGNATED FOR GENERAL SUPPORT
2023
THE GOLDMAN SACHS CHARITABLE GIFT FUND
$8K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2023
THE US CHARITABLE GIFT TRUST
$8K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
THE MINNEAPOLIS FOUNDATION
$6K
DONOR-ADVISED, HEALTH
2023
EAST BAY COMMUNITY FOUNDATION
$6K
COREY REICH FUND
2023
NETWORK FOR GOOD
$6K
UNRESTRICTED
2023
ORANGE COUNTY COMMUNITY FOUNDATION
$6K
HEALTH AND WELLNESS
2023
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$5K
UNRESTRICTED GENERAL SUPPORT
2023
AMERICAN EXPRESS FOUNDATION
$5K
GENERAL SUPPORT
2023
GALLOP FAMILY FOUNDATION
$3K
ANNUAL FUND
2023
Robert A and Barbara M Patterson
$2K
General Support
2023
Calvin and Kelly Carter Family Foundation
$2K
General & Unrestricted
2023
BARSTOW FOUNDATION
$1K
GENERAL OPERATING
2023
VERIZON FOUNDATION
$750
OTHER CIVIC / COMMUNITY
2023
VERIZON FOUNDATION
$750
OTHER CIVIC / COMMUNITY
2023
BRISTOL-MYERS SQUIBB FOUNDATION INC
$250
EMPLOYEE GIVING PROGRAM
2023
SHELL USA COMPANY FOUNDATION
$200
MEF
2023
EDWARD JONES FOUNDATION
$100
MEDICAL RESEARCH
2023
First Eagle Investments Foundation
$100
General & Unrestricted
2023
AMERICAN EXPRESS FOUNDATION
$72
GENERAL SUPPORT
2023
AMERICAN EXPRESS FOUNDATION
$72
GENERAL SUPPORT
2023
AMERICAN EXPRESS FOUNDATION
$72
GENERAL SUPPORT
2023
VERIZON FOUNDATION
$52
OTHER CIVIC / COMMUNITY
2023
AMERICAN EXPRESS FOUNDATION
$48
GENERAL SUPPORT
2023
AMERICAN EXPRESS FOUNDATION
$24
GENERAL SUPPORT
2023
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$269K
For grant recipient's exempt purposes
2022
NATL CHRISTIAN CHARITABLE FDN INC
$200K
GROWTH
2022
NATL CHRISTIAN CHARITABLE FDN INC
$200K
GROWTH
2022
Team Drea Foundation Inc
$168K
Research on therapeutic treatments
2022
DONOR ADVISED CHARITABLE GIVING INC
$156K
HEALTH
2022
SAINT PAUL & MINNESOTA FOUNDATION
$135K
MULTIPLE GRANTS FOR MULTIPLE PURPOSES
2022
WILLIAM K BOWES JR FOUNDATION
$100K
TO SUPPORT THE ALS CAPSULE
2022
AMERICAN ONLINE GIVING FOUNDATION INC
$90K
GENERAL SUPPORT
2022
VANGUARD CHARITABLE ENDOWMENT PROGRAM
$87K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
NATIONAL PHILANTHROPIC TRUST
$47K
HEALTH
2022
MEDICAL RESEARCH CHARITIES
$36K
TO ASSIST IN THE ORGANIZATION'S EXEMPT PURPOSES.
2022
THE BLACKBAUD GIVING FUND
$34K
GENERAL SUPPORT
2022
UPMC GROUP
$13K
ALS Research
2022
CHARITIES AID FOUNDATION AMERICA
$12K
CHARITABLE DONATION
2022
GIVE LIVELY FOUNDATION INC
$10K
GENERAL SUPPORT
2022
IMPACTASSETSINC
$10K
GENERAL SUPPORT
2022
ORANGE COUNTY COMMUNITY FOUNDATION
$10K
HEALTH AND WELLNESS
2022
ED RACHAL FOUNDATION
$10K
PS
2022
UNITED WAY OF THE GREATER LEHIGH VALLEY
$9K
DONOR DESIGNATED FOR GENERAL SUPPORT
2022
EAST BAY COMMUNITY FOUNDATION
$6K
COREY REICH FUND
2022
Albatross Charitable Foundation
$5K
General & Unrestricted
2022
THE MCJ AMELIOR FOUNDATION
$5K
FOR GENERAL OPERATING SUPPORT
2022
AMERICAN ENDOWMENT FOUNDATION
$5K
MEDICAL RESEARCH
2022
Enterprise Holdings Foundation
$3K
Program Support
2022
Rotary International
$3K
medical research
2022
Robert A and Barbara M Patterson
$2K
General Support
2022
Calvin and Kelly Carter Family Foundation
$2K
General & Unrestricted
2022
SHELL USA COMPANY FOUNDATION
$1K
MEF
2022
SHELL USA COMPANY FOUNDATION
$1K
MEF
2022
BARSTOW FOUNDATION
$1K
GENERAL OPERATING
2022
POHLAD FAMILY FOUNDATION
$941
GENERAL OPERATING
2022
MCKESSON FOUNDATION INC
$840
CHARITABLE
2022
The Bank of America Charitable Foundation Inc
$450
PROGRAM/OPERATING SUPPORT
2022
The Bank of America Charitable Foundation Inc
$250
PROGRAM/OPERATING SUPPORT
2022
VERIZON FOUNDATION
$100
MIP PAYOUT FOR 11/09/22
2022
The Bank of America Charitable Foundation Inc
$100
PROGRAM/OPERATING SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$72
GENERAL SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$72
GENERAL SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$72
GENERAL SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$48
GENERAL SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$24
GENERAL SUPPORT
2022
Augies Quest to Cure ALS Inc
$3.2M
ALS Research
2021
SAINT PAUL & MINNESOTA FOUNDATION
$365K
MULTIPLE GRANTS FOR MULTIPLE PURPOSES
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$244K
For grant recipient's exempt purposes
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$244K
For grant recipient's exempt purposes
2021
Team Drea Foundation Inc
$140K
Research on therapeutic treatments
2021
DONOR ADVISED CHARITABLE GIVING INC
$125K
HEALTH
2021
PAYPAL CHARITABLE GIVING FUND
$106K
General Support
2021
AMERICAN ONLINE GIVING FOUNDATION INC
$103K
GENERAL SUPPORT
2021
RACING FOR ALS INC
$95K
TO SUPPORT RESEARCH FOR ALS
2021
VANGUARD CHARITABLE ENDOWMENT PROGRAM
$92K
For recipient's exempt purpose
2021
MEDICAL RESEARCH CHARITIES
$32K
TO ASSIST IN THE ORGANIZATION'S EXEMPT PURPOSES.
2021
NETWORK FOR GOOD
$13K
UNRESTRICTED
2021
THE GOLDMAN SACHS CHARITABLE GIFT FUND
$11K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2021
UPMC GROUP
$11K
ALS RESEARCH
2021
NATIONAL PHILANTHROPIC TRUST
$10K
HEALTH
2021
Patterson Family Foundation
$10K
General & Unrestricted
2021
UNITED WAY OF THE GREATER LEHIGH VALLEY
$9K
DONOR DESIGNATED FOR GENERAL SUPPORT
2021
GIVE LIVELY FOUNDATION INC
$8K
GENERAL SUPPORT
2021
EAST BAY COMMUNITY FOUNDATION
$6K
GENERAL SUPPORT
2021
RAYMOND JAMES CHARITABLE ENDOWMENT FUND
$5K
GENERAL SUPPORT
2021
Cornelia Cogswell Rossi Foundation Inc
$3K
General & Unrestricted
2021
Calvin and Kelly Carter Family Foundation
$2K
General & Unrestricted
2021
JPMORGAN CHASE FOUNDATION
$1K
GENERAL OPERATING SUPPORT
2021
SHELL USA COMPANY FOUNDATION
$1K
MEF
2021
KENNEDY WILSON CHARITABLE FOUNDATION
$1K
GENERAL SUPPORT
2021
The Bank of America Charitable Foundation Inc
$500
OPERATIONAL SUPPORT
2021
The Bank of America Charitable Foundation Inc
$300
OPERATIONAL SUPPORT
2021
BRISTOL-MYERS SQUIBB FOUNDATION INC
$250
EMPLOYEE GIVING PROGRAM
2021
Terry and Suzan Kramer Family Foundation
$250
General & Unrestricted
2021
SHELL USA COMPANY FOUNDATION
$200
MG
2021
The Bank of America Charitable Foundation Inc
$25
OPERATIONAL SUPPORT
2021
Augies Quest to Cure ALS Inc
$2.7M
ALS Research
2020
DONOR ADVISED CHARITABLE GIVING INC
$376K
HEALTH
2020
WILLIAM K BOWES JR FOUNDATION
$250K
AT-1501 AND PMP STUDIES
2020
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$151K
For grant recipient's exempt purposes
2020
AMERICAN ONLINE GIVING FOUNDATION INC
$87K
GENERAL SUPPORT
2020
SAINT PAUL & MINNESOTA FOUNDATION
$86K
MULTIPLE PURPOSES
2020
VANGUARD CHARITABLE ENDOWMENT PROGRAM
$44K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
MEDICAL RESEARCH CHARITIES
$40K
TO ASSIST IN THE ORGANIZATION'S EXEMPT PURPOSES.
2020
PARKERSBURG AREA COMMUNITY FOUNDATION
$30K
HEALTH AND WELLNESS
2020
THE BESSEMER GIVING FUND
$20K
GENERAL SUPPORT
2020
BNY MELLON CHARITABLE GIFT FUND
$12K
TO FURTHER THE ORGANIZATION'S EXEMPT PURPOSE
2020
FAIRFIELD COUNTY'S COMMUNITY FOUNDATION
$10K
FOR GENERAL SUPPORT.
2020
Cornelia Cogswell Rossi Foundation Inc
$10K
General & Unrestricted
2020
ORANGE COUNTY COMMUNITY FOUNDATION
$10K
HEALTH & WELLNESS
2020
A LIFE STORY FOUNDATION
$9K
ALS RESEARCH TREATMENT
2020
NETWORK FOR GOOD
$9K
Unrestricted
2020
UPMC GROUP
$8K
ALS RESEARCH
2020
NATIONAL PHILANTHROPIC TRUST
$8K
HEALTH
2020
Lincoln Financial Foundation Inc
$7K
Matching Gifts Program
2020
CHARITIES AID FOUNDATION AMERICA
$7K
CHARITABLE DONATION
2020
GS DONOR ADVISED PHILANTHROPY FUND
$6K
MEDICAL / PUBLIC SERVICES
2020
UNITED WAY WORLDWIDE
$6K
GENERAL CHARITABLE OPERATIONS
2020
GREATER HOUSTON COMMUNITY FOUNDATION
$5K
This grant is for the Kevin Kelty ALS Research Fund, in memory of Kevin Kelty.
2020
Calvin and Kelly Carter Family Foundation
$2K
General & Unrestricted
2020
The Bank of America Charitable Foundation Inc
$1K
GENERAL SUPPORT
2020
SHELL USA COMPANY FOUNDATION
$1K
MEF
2020
ONE8 FOUNDATION
$1K
HEALTH & HUMAN SERVICES
2020
ANALOG DEVICES FOUNDATION
$500
GENERAL SUPPORT
2020
AMICA COMPANIES FOUNDATION
$350
GENERAL PURPOSE
2020
AMICA COMPANIES FOUNDATION
$263
GENERAL PURPOSE
2020
The Bank of America Charitable Foundation Inc
$250
GENERAL SUPPORT
2020
Rodan Family Foundation
$250
Charitable Purposes of the Organization
2020
The Bank of America Charitable Foundation Inc
$250
GENERAL SUPPORT
2020
AMICA COMPANIES FOUNDATION
$210
GENERAL PURPOSE
2020
AMERICAN EXPRESS FOUNDATION
$200
GENERAL SUPPORT
2020
AETNA FOUNDATION INC
$182
GENERAL PURPOSE
2020
AMICA COMPANIES FOUNDATION
$175
GENERAL PURPOSE
2020
AMICA COMPANIES FOUNDATION
$175
GENERAL PURPOSE
2020
AMICA COMPANIES FOUNDATION
$175
GENERAL PURPOSE
2020
AETNA FOUNDATION INC
$165
GENERAL PURPOSE
2020
AMICA COMPANIES FOUNDATION
$140
GENERAL PURPOSE
2020
GREATER HOUSTON COMMUNITY FOUNDATION
$100
From Kenneth and Alice Shimek
2020
The Bank of America Charitable Foundation Inc
$100
GENERAL SUPPORT
2020
The Bank of America Charitable Foundation Inc
$100
GENERAL SUPPORT
2020
AMICA COMPANIES FOUNDATION
$88
GENERAL PURPOSE
2020
AMICA COMPANIES FOUNDATION
$88
GENERAL PURPOSE
2020
AMICA COMPANIES FOUNDATION
$88
GENERAL PURPOSE
2020
AMICA COMPANIES FOUNDATION
$88
GENERAL PURPOSE
2020
AMICA COMPANIES FOUNDATION
$88
GENERAL PURPOSE
2020
The Bank of America Charitable Foundation Inc
$75
GENERAL SUPPORT
2020
AMERICAN EXPRESS FOUNDATION
$72
GENERAL SUPPORT
2020
AMERICAN EXPRESS FOUNDATION
$72
GENERAL SUPPORT
2020

Funded by

$21.5M from 90 funders · 257 grants · 2017–2024

Augies Quest to Cure ALS Inc

$10.9M · 3 grants · 2019–2021

Fidelity Investments Charitable Gift Fund

$1.7M · 7 grants · 2018–2023

Donor Advised Charitable Giving Inc

$1.5M · 8 grants · 2017–2023

Saint Paul & Minnesota Foundation

$1.0M · 5 grants · 2020–2024

Racing For Als Inc

$951K · 4 grants · 2021–2024

American Online Giving Foundation Inc

$660K · 6 grants · 2019–2024

Team Drea Foundation Inc

$574K · 4 grants · 2021–2024

William K Bowes Jr Foundation

$550K · 4 grants · 2020–2024

Details

EIN043462719
NTEE codeH80
Subsection03
Ruling date1999-07
Formed1999
Employees59
Volunteers500
ALS THERAPY DEVELOPMENT FOUNDATION INC — Mission, Financials & Grants Received | Grantivo