Als United Greater New York Inc

Research: als united greater new york has funded close to $17 million in als-specific research efforts to support innovative and diverse scientific research studies and clinical trials worldwide. The organization is particularly proud to support the milton safenowitz post-doctoral fellowship program, which encourages and facilitates promising young scientists to focus their future work in the field of als research.

Public awareness and education: als united greater new york works to promote awareness to affected families to help them understand all facets of the complex and devastating disease that is als, as well as the work of the organization among the general public, healthcare professionals, and the scientific community. Through external relations, our website and social media channels, the organization continually raises awareness about als and the search for a cure. On average, 63,000 viewers visit our website annually to access this vital source of information for those battling the disease and looking for information about services and the latest news about the disease. Our social media platforms, including facebook, instagram, youtube, x and linkedin reach 18,500 followers.

Advocacy: als united greater new york works to educate the public as well as policy makers at the federal and state levels in order to drive them toward smart decisions about als related to research, treatment and access to care. At the federal level, the organization has been instrumental in securing annual funding for the department of defense's als research program, the national als registry at the centers for disease control, and the national institutes of health als research program. At the state level, the organization continues to build relationships with the new york and new jersey state legislatures to secure government funding for local care services that directly benefit people with als and their families.