Medical Research
Alternating Hemiplegia Of Childhood Foundation Inc
SOUTHFIELD, MI
Total revenue
$283K
Total expenses
$201K
Net assets
$1.7M
Grants received
$163K
23 grants
EIN
383225425
Tax year
2024
Mission
Our mission is to find the cause(s) of Alternating AHC), develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals
Programs
3 programs
The AHCF contributed to research at Brown University lead by Ann Hart to finish preliminary characterization C. elegans CRISPR knock-in models and identify robust phenotype-based assays that will facilitate using these C. elegans models to undertake efficient screening for conserved modifier genes and/or compounds that might ameliorate defects and increase our understanding of molecular pathways leading to AHC.
The AHCF contributed to research at iXCells Biotechnologies on Antisense Oligonucleotide Treatments (ASO Therapy). iXcells pilot study Stage 1: including small scale mouse cortical neuron isolation and assay optimization Stage 2 : custom mouse cortical neuron isolation for ASO Screen Stage 2 part 2: ASO screening using mouse cortical neurons
See Schedule O, Statement 1 The AHCF contributed to two other research projects (Jax Labs ASO Proof of Concept and SomaLogic ASO mouse models). We also sponsored the international ATP1A3 Symposium, hosted the Family Meeting, paid for a CNS sponsorship, and sent out family welcome packets.
Financials
FY 2024
Revenue
Expenses
People
10 listed
Lynn Egan
Director
—
1 hrs/wk
Kathy Sharo
Director
—
1 hrs/wk
Mollie Erpenbeck
Director
—
1 hrs/wk
Sharon Ciccodicola
Director
—
1 hrs/wk
Bill Gerber
Director
—
1 hrs/wk
Adalberto Duarte
Director
—
1 hrs/wk
Vicky Platt
President
—
4 hrs/wk
Gene Andrasco
Treasurer
—
4 hrs/wk
Heather Gates
Vice-President of Education & Family Support
—
4 hrs/wk
Cate Cohen
Secretary
—
4 hrs/wk
Grants received
Showing 23 of 23
Funded by
$163K from 18 funders · 23 grants · 2017–2024
$25K · 1 grant · 2017
$22K · 1 grant · 2022
$18K · 1 grant · 2019
$18K · 3 grants · 2020–2024
$18K · 1 grant · 2018
$16K · 2 grants · 2017–2022
$14K · 1 grant · 2021
$11K · 2 grants · 2023–2024