NonprofitsAlzheimers Disease Data Initiative Inc

Voluntary Health Associations & Medical Disciplines

Alzheimers Disease Data Initiative Inc

KIRKLAND, WA

Total revenue

$12.5M

Total expenses

$17.0M

Net assets

$322K

Grants received

$1.6M

5 grants

EIN

853776266

Tax year

2024

Mission

The organization is dedicated to advancing scientific breakthroughs in the diagnosis, prevention & treatment of alzheimers disease and related dementias

Programs

4 programs

Global Research Platforms - GRIP is a secure, cloud-based, and open-access platform designed to help researchers integrate, analyze, and share complex biomedical data with ease. It is a multi-site, multi-modal collaboration platform with co-developed, modular tools, workflows, and workspaces that enable secure data sharing, analysis, and collaboration.

Expenses: $5.1MGrants: $50K

The AD Data Initiative product suite consists of data sharing and analytic products along with enabling technical resources to empower researchers around the world to share, access and analyze data across multiple platforms. AD Workbench is the interoperability layer of the AD Data Initiative technical suite and its flagship product offering. There are currently more than 120 datasets accessible via AD Workbench - including clinical tabular data, imaging, omics and biosamples. The AD Data Initiative works closely with data contributors and data platform partners to ensure interoperability with AD data-sharing platforms and data accessibility across the global Alzheimer's data ecosystem.

Expenses: $2.9MGrants: $2.4M

Core to the AD Data Initiative's mission is the belief that data sharing and global collaboration will accelerate progress, seed innovation and lead to breakthroughs faster. AD Data Initiative is advancing a scientific strategy and investing in strategic initiatives to foster global collaboration, empower researchers and advance scientific discovery. These initiatives include: the William H. Gates Sr. Fellowship Program, Global Data Challenges, Scientific Driver Projects and Global Research Collaborations and Consortia. This scientific strategy and the AD Data Initiative's programmatic efforts are guided by an evolving list of priority research questions that have been shaped by insights from Advisory Board members, input from the AD research community and engagement with thought leaders in Alzheimer's and related dementias research.

Expenses: $2.3MGrants: $550K

The AD Data Initiative amplifies its mission through communications and engagement: website, social media, conferences and events, partnership campaigns/communications and special projects. These efforts expand access to important datasets, broaden the use of data platforms and tools, and foster global collaboration to accelerate discovery.

Expenses: $662K

Financials

FY 2024

Revenue

Contributions & grants$12.3M
Program service revenue
Investment income$137K
Other revenue
Total revenue$12.5M

Expenses

Grants paid$3.0M
Salaries & benefits
Fundraising
Other expenses$14.0M
Total expenses$17.0M
Total assets$2.0M
Net assets$322K

People

4 listed

NameRoleCompensation

Niranjan Bose

DIRECTOR

Board

5 hrs/wk

PAUL RAMSEY

DIRECTOR

Board

1 hrs/wk

HILLARY BOUNDS

SECRETARY

Board

10 hrs/wk

TONY POUND

TREASURER

Board

1 hrs/wk

Independent contractors

Zhlke Engineering GmbH

Product Management and Maintenance

$4.5M

Aridhia Informatics Limited

Product Management and Maintenance

$3.1M

IHME

Data collection, analysis, and reporting of results

$1.4M

Evalueserve Inc

Product Management and Maintenance

$1.3M

Hansell Tierney Inc (HT Talent)

Staffing services

$1.0M

Grants received

Showing 5 of 5

FromAmountPurposeYear
$750K
R&D/INNOVATION/PILOTS
2024
$500K
Global Research and Imaging Platform (GRIP) fund
2024
$100K
UNRESTRICTED GENERAL SUPPORT
2024
$100K
UNRESTRICTED GENERAL SUPPORT
2023
$100K
UNRESTRICTED GENERAL SUPPORT
2022

Funded by

$1.6M from 3 funders · 5 grants · 2022–2024

Fidelity Non-Profit Management

$750K · 1 grant · 2024

JTMF Foundation

$500K · 1 grant · 2024

Morgan Stanley Global Impact Funding Trust Inc

$300K · 3 grants · 2022–2024

Details

EIN853776266
NTEE codeG83
Subsection03
Ruling date2021-06
Formed2020
Employees0
Volunteers0
ALZHEIMERS DISEASE DATA INITIATIVE INC — Mission, Financials & Grants Received | Grantivo