NonprofitsAmerican Neuromuscular Foundation

Medical Research

American Neuromuscular Foundation

ROCHESTER, MN

Total revenue

$2.8M

Total expenses

$821K

Net assets

$9.4M

Grants received

$2.1M

3 grants

EIN

411826063

Tax year

2024

Mission

The american neuromuscular foundation was established to improve the quality of care for people with disorders of skeletal muscle, neuromuscular function, and central and peripheral nervous systems through the promotion of research and education and advancing public understanding of the disorders. It was organized to carry out the charitable, educational, and scientific activities of the american association of neuromuscular & electrodiagnostic medicine (aanem).

Programs

2 programs

The anf created the late onset neuromuscular disease consortium in 2022. The anf convened nearly 25 stakeholders including patient advocacy organizations, industry, and clinicians to begin to identify common challenges and potential workstreams for future cross-stakeholder collaboration. The londc is focused on projects to drive awareness, improve education, and address gaps in care. The stakeholders and key opinion leaders met in 2024 to continue the work of the londc.

Expenses: $502K

Awards: the american neuromuscular foundation supports its education and research goals by funding several awards each year. Each award gives physicians/investigators the opportunity to be recognized among their peers for their work in research. The awards given include the golseth young investigator award which is presented to encourage young physicians to conduct research in edx medicine; the best abstract award is presented to the writer and runner-up of the abstract judged by the aanem abstract review committee as the best based on scientific merit, well written, excellent discussion, importance to the field,and/or fascinating case; the president's research initiative award is based on abstracts pertaining to an area of interest of the president; the resident/fellow member recognition award is given to aanem physician-in-training members who are the first and presenting author on an approved abstract to encourage young physicians to conduct research in the fields of neuromuscular and electrodiagnostic medicine; the olney lectureship award is given to the person chosen to present the titled plenary session at the aanem annual meeting; the technologist recognition award is given to aanem technologist members to encourage them to take a leading role in conducting research in neuromuscular and edx medicine. The lambert award for presentation was also given. The medical student award is also given.

Expenses: $51KGrants: $51K

Financials

FY 2024

Revenue

Contributions & grants$2.4M
Program service revenue
Investment income$461K
Other revenue
Total revenue$2.8M

Expenses

Grants paid$290K
Salaries & benefits
Fundraising$3K
Other expenses$531K
Total expenses$821K
Total assets$9.6M
Net assets$9.4M

People

17 listed

NameRoleCompensation

SHIRLYN ADKINS

EXECUTIVE DI

Board

5 hrs/wk

FAYE CHIOU TAN

PRESIDENT

Board

0.1 hrs/wk

LISA D HOBSON-WEBB

PRESIDENT EL

Board

0.1 hrs/wk

DEVON RUBIN

SECRETARY/TR

Board

0.1 hrs/wk

SAMUEL BIERNER

DIRECTOR

Board

0.1 hrs/wk

LAURA CORRIGAN

DIRECTOR

Board

0.1 hrs/wk

EARL J CRAIG

DIRECTOR

Board

0.1 hrs/wk

MONIKA KRZESNIAK-SWINARSKA

DIRECTOR

Board

0.1 hrs/wk

RUPLE S LAUGHLIN

DIRECTOR

Board

0.1 hrs/wk

JOHN MORREN

DIRECTOR

Board

0.1 hrs/wk

MICHAEL CARTWRIGHT-TERM END 102024

DIRECTOR

Board

0.1 hrs/wk

ROBERT IRWIN-TERM END 102024

DIRECTOR

Board

0.1 hrs/wk

BENJAMIN WARFEL-TERM END 102024

DIRECTOR

Board

0.1 hrs/wk

JACOB SOKOL

IT DIRECTOR

Staff

1 hrs/wk

JAY SCHWINEFUS

MEMBERSHIP &

Staff

1 hrs/wk

MILLIE SUK

HLTH, POL &

Staff

1 hrs/wk

MICHELLE JONES

MTG, CORP,&

Staff

1 hrs/wk

Independent contractors

SMITHSOLVE

LONDC SERVICES

$502K

Grants received

Showing 3 of 3

FromAmountPurposeYear
$1.9M
GENERAL SUPPORT
2024
$150K
GENERAL SUPPORT
2023
$25K
GENERAL SUPPORT
2020

Funded by

$2.1M from 1 funder · 3 grants · 2020–2024

American Assoc Of Neuromuscular &

$2.1M · 3 grants · 2020–2024

Details

EIN411826063
NTEE codeH90
Subsection03
Ruling date1995-12
Formed1995
Employees0
Volunteers29
AMERICAN NEUROMUSCULAR FOUNDATION — Mission, Financials & Grants Received | Grantivo