NonprofitsAmyotrophic Lateral Sclerosis Association

Disease & Medical Research

Amyotrophic Lateral Sclerosis Association

WAUWATOSA, WI

Total revenue

$1.4M

Total expenses

$1.3M

Net assets

$1.1M

Grants received

$470K

43 grants

EIN

391600965

Tax year

2020

Mission

To discover treatments and a cure for als, and to serve, advocate for, and empower people affected by als to live their lives to the fullest

Programs

2 programs

Our chapter works with 39 other chapter's across the country to support global research and our efforts are focused towards a single vision of a world without als. Our chapter directs funds each year towards some of the most promising als research projects. These projects are all related to finding the cause, a treatment and a cure for als. The als association is the only organization dedicated solely to the fight against als. The organization as a whole funds aggressive, cutting-edge research using the newest techniques while fostering collaborative initiatives among government agencies, the private sector and scientists who are invested in translational research.

Expenses: $250KGrants: $250K

Our chapter works to promote public awareness and education through advocacy activities at a state and national level. We provide the following resources to patients and families throughout wisconsin: bi-monthly patient information and updates; a lending library of various resources; books and educational activities for children and young caregivers; information for newly diagnosed patients; information on va benefits. Our chapter conducts events to generate general public awareness and uses tools to expand the awareness through social media and the internet. The chapter participates in annual conferences in washington d.c. To advance public policies that will benefit people living with als and their families.

Expenses: $28K

Financials

FY 2020

Revenue

Contributions & grants$1.5M
Program service revenue$71K
Investment income
Other revenue
Total revenue$1.4M

Expenses

Grants paid$294K
Salaries & benefits$704K
Fundraising$100K
Other expenses$340K
Total expenses$1.3M
Total assets$1.4M
Net assets$1.1M

People

14 listed

NameRoleCompensation

MELANIE ROACH-BEKOS

EXECUTIVE DIRECTOR

Board

$109K

40 hrs/wk

KATHRYN KEPPEL

PRESIDENT (THRU JANUARY)

Board

6 hrs/wk

MARY BRENNAN-DRUML

PRESIDENT

Board

6 hrs/wk

MEG POSORSKE

VICE PRESIDENT

Board

12.5 hrs/wk

MATTHEW O'NEILL

SECRETARY

Board

2 hrs/wk

LAUREN DOMNICK

TREASURER

Board

6 hrs/wk

CARL BAHNEMAN

DIRECTOR

Board

2 hrs/wk

HOLLY BLAKE

DIRECTOR (THRU NOVEMBER)

Board

2 hrs/wk

JESSICA GERES

DIRECTOR

Board

2 hrs/wk

JOEL HESS

DIRECTOR (THRU SEPTEMBER)

Board

1 hrs/wk

THOMAS KETTLER

DIRECTOR

Board

2 hrs/wk

MANIS MULLARKEY

DIRECTOR

Board

2 hrs/wk

MARY BETH SCHLECHT

DIRECTOR

Board

2 hrs/wk

CHRISTOPHER SIMMS

DIRECTOR

Board

2 hrs/wk

Grants received

Showing 43 of 43

FromAmountPurposeYear
$10K
DISEASE/DISORDER
2024
$8K
QUALITY OF LIFE GRANTS AND EQUIPMENT DELIVERY FOR MARATHON COUNTY RESIDENTS LIVING WITH ALS
2023
$7K
RESEARCH/PUBLICEDUCATION
2023
$7K
G: DISEASES, DISORDERS & MEDICAL DISCIPLINES
2023
$6K
For grant recipient's exempt purposes
2023
$300
DISEASES, DISORDERS, MEDICAL DISCIPLINES
2023
$210
Matching Gifts
2023
$23K
For grant recipient's exempt purposes
2022
$10K
GENERAL SUPPORT
2022
$9K
RESEARCH/PUBLICEDUCATION
2022
$50
CHARITABLE PURPOSE
2022
$50
CHARITABLE PURPOSE
2022
$50
CHARITABLE PURPOSE
2022
$39K
For grant recipient's exempt purposes
2021
$39K
For grant recipient's exempt purposes
2021
$10K
HEALTH & WELLNESS
2021
$1K
CHARITABLE PURPOSE
2021
$19K
RESEARCH/PUBLIC EDUCATION
2020
$15K
Care Services Programs and Services
2020
$9K
GENERAL SUPPORT AND EVENT SPONSORSHIP
2020
$8K
For grant recipient's exempt purposes
2020
$1K
TO FUND APPROVED PUBLIC CHARITIES
2020
$283
CHARITABLE PURPOSE
2020
$38K
For grant recipient's exempt purposes
2019
$19K
Charitable Donation
2019
$13K
DISEASES, DISORDERS & MEDICAL DISCIPLINES
2019
$10K
GENERAL SUPPORT AND EVENT SPONSORSHIP
2019
$7K
MT PHARMA STIPEND
2019
$206
GENERAL OPERATING SUPPORT
2019
$21K
RESEARCH/PUBLIC EDUCATION
2018
$8K
GENERAL SUPPORT AND EVENT SPONSORSHIP
2018
$7K
MTPA CARE GRANT AWARD
2018
$6K
For grant recipient's exempt purposes
2018
$100
GENERAL OPERATING SUPPORT
2018
$18K
RESEARCH/PUBLIC EDUCATION
2017
$18K
RESEARCH/PUBLIC EDUCATION
2017

Funded by

$470K from 19 funders · 43 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$158K · 7 grants · 2018–2023

Chc Creating Healthier Communities

$93K · 6 grants · 2017–2023

American Online Giving Foundation Inc

$59K · 4 grants · 2019–2022

First Weber Foundation Inc

$27K · 3 grants · 2018–2020

Community Foundation For The Fox Valley

$20K · 2 grants · 2019–2023

Charities Aid Foundation America

$19K · 1 grant · 2019

Centene Foundation

$15K · 1 grant · 2020

Amyotrophic Lateral Sclerosis Assn

$14K · 2 grants · 2018–2019

Details

EIN391600965
NTEE codeG53Z
Subsection03
Ruling date1990-07
Formed1987
Employees17
Volunteers25
AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION — Mission, Financials & Grants Received | Grantivo