NonprofitsAndrews Firefly Fund

Voluntary Health Associations & Medical Disciplines

Andrews Firefly Fund

AUSTIN, TX

Total revenue

$649K

Total expenses

$737K

Net assets

$12K

Grants received

$298K

5 grants

EIN

813737330

Tax year

2024

Mission

Newborn screening preparedness and advocacy; medical research; patients access/impact

Programs

2 programs

Firefly fund supports medical research that could provide therapeutics for the treatment of niemann pick type c disease.

Expenses: $59K

Work with academic centers of excellence and patient advocacy organizations to remove barriers to care and access to therapies necessary for their loved ones with an npc diagnosis.

Expenses: $59K

Financials

FY 2024

Revenue

Contributions & grants$649K
Program service revenue
Investment income
Other revenue
Total revenue$649K

Expenses

Grants paid$18K
Salaries & benefits$103K
Fundraising$78K
Other expenses$579K
Total expenses$737K
Total assets$13K
Net assets$12K

People

8 listed

NameRoleCompensation

BERYL PAM ANDREWS

EXECUTIVE DIRECTOR

Board

$95K

40 hrs/wk

CHRIS ANDREWS

DIRECTOR

Board

5 hrs/wk

LARA LANERI KEEL

DIRECTOR

Board

5 hrs/wk

COLLIN HOVINGA

DIRECTOR

Board

5 hrs/wk

SARAH REILLY

DIRECTOR

Board

5 hrs/wk

JENNY COOK

DIRECTOR

Board

5 hrs/wk

BERYL CROWLEY

DIRECTOR

Board

5 hrs/wk

HALLIE IMROTH

DIRECTOR

Board

5 hrs/wk

Grants received

Showing 5 of 5

FromAmountPurposeYear
$5K
GENERAL SUPPORT
2024
$8K
UNRESTRICTED
2021
$267K
Firefly's NPC Newborn Screening Initiative FUND
2020
$13K
Unrestricted
2018

Funded by

$298K from 4 funders · 5 grants · 2018–2024

Together Strong NPC Foundation

$267K · 1 grant · 2020

Network For Good

$21K · 2 grants · 2018–2021

Paypal Charitable Giving Fund

$5K · 1 grant · 2024

Details

EIN813737330
NTEE codeG80
Subsection03
Ruling date2017-03
Formed2015
Employees2
Volunteers7
ANDREWS FIREFLY FUND — Mission, Financials & Grants Received | Grantivo