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Nonprofits›Asxl Rare Research Endowment Foundation

Medical Research

Asxl Rare Research Endowment Foundation

GORHAM, ME

Website View as a funder

Total revenue

$888K

Total expenses

$475K

Net assets

$1.1M

Grants received

$326K

37 grants

EIN

823890665

Tax year

2024

Mission

A family-led organization that supports research to increase the understanding of the ASXL gene family and improve care for those living with ASXL Syndromes

Programs

3 programs

Research grants. Effective research will bring an understanding of the underlying mechanisms and potential treatments for ASXL syndromes

Expenses: $169KGrants: $130K

Conferences. Meetings to bring together professionals and families to share information and exchange ideas to further our mission.

Expenses: $131KGrants: $58K

Create and provide patient and family educational resources

Expenses: $25K

Financials

FY 2024

Revenue

Contributions & grants$854K

Program service revenue$9K

Investment income$24K

Other revenue—

Total revenue$888K

Expenses

Grants paid$235K

Salaries & benefits$122K

Fundraising$26K

Other expenses$118K

Total expenses$475K

Total assets$1.1M

Net assets$1.1M

People

8 listed

NameRoleCompensation

Laura Badmaev

President

Board

—

5 hrs/wk

Daniel Ordower

Treasurer

Board

—

5 hrs/wk

Michael Salad

Director

Board

—

5 hrs/wk

Julie Lopez

Director

Board

—

5 hrs/wk

Lauren Adams

Director

Board

—

5 hrs/wk

Sankar Madhavan

Director

Board

—

5 hrs/wk

Amanda Scheirer

Director

Board

—

5 hrs/wk

Amanda Johnson

Executive Director

Staff

$106K

40 hrs/wk

Grants received

Showing 37 of 37

FromAmountPurposeYear

PAYPAL CHARITABLE GIVING FUND

$26K

GENERAL SUPPORT

2024

AMERICAN ONLINE GIVING FOUNDATION INC

$10K

GENERAL SUPPORT

2024

American Legion Child Welfare Foundation

$9K

Develop family-friendly materials about ASXL-related disorders that newly diagnosed families can understand from published research.

2024

Asxl Rare Research Endowment Foundation

Mission

Programs

Financials

People

Grants received

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