Disease & Medical Research
Batten Disease Support And Research Association
GAHANNA, OH
Total revenue
$602K
Total expenses
$967K
Net assets
$768K
Grants received
$721K
26 grants
EIN
911397792
Tax year
2024
Mission
Our long-term vision is a world without batten disease. Our mission is to support batten families, fund and facilitate research and advocate for treatments and a cure.
Programs
2 programs
Grants were given for research for a cure for batten disease.
Conferences and conventions held for research, discussions and support for a cure for batten disease.
Financials
FY 2024
Revenue
Expenses
People
14 listed
AMY FENTON PARKER
PRESIDENT &
$100K
40 hrs/wk
DARLENE ROYALTY
BOARD CHAIR
—
1 hrs/wk
BARBARA WUEBBELS
BOARD VICE C
—
1 hrs/wk
BARBARA MCDONOUGH
SECRETARY
—
1 hrs/wk
FRED SURREY
TREASURER
—
1 hrs/wk
JOHN IRELAND
DIRECTOR
—
1 hrs/wk
WAYNE KIEFER
DIRECTOR
—
1 hrs/wk
KATE HALLER
DIRECTOR
—
1 hrs/wk
DAVE PEARCE
DIRECTOR
—
1 hrs/wk
SUZETTE JAMES
DIRECTOR
—
1 hrs/wk
FERNANDA LEAL-PARDINAS
DIRECTOR
—
1 hrs/wk
ANTHONY FERRANDINO
DIRECTOR
—
1 hrs/wk
DONNA FOGEL
DIRECTOR
—
1 hrs/wk
JOHN PATTERSON
DIRECTOR
—
1 hrs/wk
Grants received
Showing 26 of 26
Funded by
$721K from 10 funders · 26 grants · 2018–2024
$412K · 7 grants · 2018–2024
$215K · 5 grants · 2020–2024
$37K · 5 grants · 2020–2024
$20K · 2 grants · 2023–2024
$10K · 1 grant · 2023
$9K · 1 grant · 2023
$6K · 1 grant · 2023
$5K · 1 grant · 2018