Nonprofits›Beyond Batten Disease Foundation

Education

Beyond Batten Disease Foundation

AUSTIN, TX

WebsiteView as a funder

Total revenue

$538K

Total expenses

$1.1M

Net assets

$2.0M

Grants received

$357K

46 grants

EIN

263223661

Tax year

2023

Mission

To eradicate juvenile batten disease by raising awareness and funds for research to find a treatment or cure.

Financials

FY 2023

Revenue

Contributions & grants$488K
Program service revenue—
Investment income$71K
Other revenue—
Total revenue$538K

Expenses

Grants paid—
Salaries & benefits—
Fundraising$19K
Other expenses$1.1M
Total expenses$1.1M
Total assets$2.1M
Net assets$2.0M

People

8 listed

NameRoleCompensation

T CRAIG BENSON

BOARD CHAIR

Board

—

20 hrs/wk

MARY BETH KISER

PRESIDENT/CEO AND SECRETARY

Board

—

40 hrs/wk

JEFF HUNT

DIRECTOR

Board

—

4 hrs/wk

SABRINA BROWN

DIRECTOR

Board

—

4 hrs/wk

WAYNE HERNDON

DIRECTOR

Board

—

4 hrs/wk

WILL MURPHY

DIRECTOR

Board

—

4 hrs/wk

CAROLINE GOODNER

DIRECTOR

Board

—

4 hrs/wk

STEVEN SILBER MD

DIRECTOR

Board

—

4 hrs/wk

Independent contractors

STRATEGIC ASSOCIATION MANAGEMENT

MANAGEMENT

$230K

Grants received

Showing 46 of 46

FromAmountPurposeYear
PAYPAL CHARITABLE GIVING FUND
$15K
GENERAL SUPPORT
2024
AMERICAN ONLINE GIVING FOUNDATION INC
$11K
GENERAL SUPPORT
2024
THE HILLCREST FOUNDATION
$10K
SUPPORT PROGRAMS
2024
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$29K
For grant recipient's exempt purposes
2023
THE ADMIRALS CLUB OF AUSTIN INC
$12K
GENERAL SUPPORT
2023
NATIONAL PHILANTHROPIC TRUST
$11K
EDUCATION
2023
VANGUARD CHARITABLE ENDOWMENT PROGRAM
$11K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
CHARITIES AID FOUNDATION AMERICA
$6K
CHARITABLE DONATION
2023
THE HILLCREST FOUNDATION
$5K
SUPPORT PROGRAMS
2023
Bierly Boasberg Foundation
$1K
General Support
2023
THE HERNDON FAMILY FOUNDATION
$1K
AN UNRESTRICTED GIFT
2023
THE KP AND PHOEBE TSOLAINOS
$500
GENERAL PURPOSES
2023
DEWINE FAMILY FOUNDATION INC
$250
RESEARCH FUNDING
2023
PAYPAL CHARITABLE GIVING FUND
$10K
GENERAL SUPPORT
2022
THE HILLCREST FOUNDATION
$5K
SUPPORT PROGRAMS
2022
Enterprise Holdings Foundation
$3K
Program Support
2022
WATERPROOF FOUNDATION INC
$3K
MEDICAL RESEARCH
2022
Bierly Boasberg Foundation
$1K
General Support
2022
EDWARD JONES FOUNDATION
$1K
HEALTH/HUMAN SERVICES
2022
THE KP AND PHOEBE TSOLAINOS
$500
GENERAL PURPOSES
2022
NATIONAL PHILANTHROPIC TRUST
$6K
HEALTH
2021
WATERPROOF FOUNDATION INC
$3K
MEDICAL RESEARCH
2021
THE KP AND PHOEBE TSOLAINOS
$500
GENERAL PURPOSES
2021
WATERPROOF FOUNDATION INC
$10K
MEDICAL RESEARCH
2020
WARREN CHARITABLE FOUNDATION
$5K
TO FURTHER CHARITABLE PURPOSE
2020
THE GREATER NEW ORLEANS FOUNDATION
$5K
HEALTH
2020
THE HILLCREST FOUNDATION
$5K
SUPPORT PROGRAMS
2020
Bierly Boasberg Foundation
$2K
General Donation
2020
Flowerree Foundation
$500
GENERAL OPERATING SUPPORT
2020
RAYMOND JAMES CHARITABLE ENDOWMENT FUND
$25K
GENERAL USE AND/OR SPECIAL FUND/PROJECT
2019
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$19K
For grant recipient's exempt purposes
2019
Stanislaus Community Foundation
$10K
—
2019
Texas Children's Hospital
$5K
NON-PROFIT EDUCATIONAL ORG
2019
FRANKLIN I FICKETT CHARITABLE
$2K
BATTEN RESEARCH
2019
HOJEL SCHUMACHER FOUNDATION
$30K
GENERAL DONATION
2018
The Sheth Sangreal Foundation
$25K
GENERAL PURPOSE
2018
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$18K
For grant recipient's exempt purposes
2018
WATERPROOF FOUNDATION INC
$10K
MEDICAL RESEARCH
2018
DONOR ADVISED CHARITABLE GIVING INC
$6K
EDUCATION
2018
The Bank of America Charitable Foundation Inc
$5K
PROGRAM/OPERATING SUPPORT
2018
MICHAEL & MARCIA NEUNDORFER FOUNDATION I
$200
UNRESTRICTED CONTRIBUTION
2018
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$13K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
DONOR ADVISED CHARITABLE GIVING INC
$8K
SOCIAL SERVICES/SOCIAL BENEFITS
2017
Texas Children's Hospital
$7K
SUPPORT NON-PROFIT HEALTHCARE ORG
2017
CHI ST LUKE'S HEALTH BAYLOR COLLEGE OF
$5K
Program Support
2017
WEAVER AND TIDWELL PRIVATE FOUNDATION
$500
PROVIDE FUNDING FOR PROGRAMS THAT WILL ERADICATE JUVENILE BATTEN DISEASE BY RAISING AWARENESS AND FUNDS TO ACCELERATE RESEARCH FOR A TREATMENT OR CURE
2017

Funded by

$357K from 29 funders · 46 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$78K · 4 grants · 2017–2023

Hojel Schumacher Foundation

$30K · 1 grant · 2018

Paypal Charitable Giving Fund

$25K · 2 grants · 2022–2024

The Sheth Sangreal Foundation

$25K · 1 grant · 2018

The Hillcrest Foundation

$25K · 4 grants · 2020–2024

Waterproof Foundation Inc

$25K · 4 grants · 2018–2022

National Philanthropic Trust

$17K · 2 grants · 2021–2023

Details

EIN263223661
NTEE codeB90
Subsection03
Ruling date2009-03
Formed2008
Employees0
Volunteers400
BEYOND BATTEN DISEASE FOUNDATION — Mission, Financials & Grants Received | Grantivo