Medical Research
Bladder Cancer Advocacy Network Inc
BETHESDA, MD
Total revenue
$6.4M
Total expenses
$6.1M
Net assets
$14.5M
Grants received
$4.2M
182 grants
EIN
202897110
Tax year
2024
Mission
See part iii, line 1.
Programs
3 programs
Education and information:bcan hosts a variety of educational programs and publishes printed materials to educate those coping with a bladder cancer diagnosis. Bcan's comprehensive patient handbook, "bladder cancer basics for the newly diagnosed," has been provided to thousands of patients, caregivers, urology practices, and cancer centers across the united states. The patient insight webinar series is an interactive program that features top experts in their field who answer questions and address patient concerns in an easy format. The survivor 2 survivor program connects newly diagnosed bladder cancer patients with survivors who have had similar diagnoses.
Think tank:the bladder cancer think tank is the premier scientific medical symposium dedicated solely to bladder cancer. Through collaboration, urologists, oncologists, scientists, and researchers are pioneering new treatment protocols, investigating genetic expressions, and improving access to quality care for those living with the disease.
Walk to end bladder cancerthe walk to end bladder cancer is bcan's signature awareness event and primarily takes place in may. The walks unite bladder cancer survivors, loved ones, and the medical community to promote recognition and understanding of the disease. In 2023, bcan had over 2,500 participants register to walk across the united states excluding the participants bcan hosted virtually.advocacyas the voice for the patient community, bcan participates in coalitions and works with other membership groups to weigh in on policy issues that directly impact those living with bladder cancer. Bcan provides the bladder cancer community with the opportunity to build connections, identify bladder cancer state and national legislative issues of importance, and learn best practices for raising awareness of bladder cancer within communities.patient and volunteer supportbcan is a grassroots organization and volunteers are an important part of patient outreach. Bcan continues to expand its volunteer programs which were formalized in 2014.- survivor 2 survivor matches newly diagnosed patients with other survivors who have had a similar experience. Through these personal connections, newly diagnosed patients learn more about living with bladder cancer and treatment options.
Financials
FY 2024
Revenue
Expenses
People
20 listed
ANDREA MADDOX-SMITH
CEO
$428K
40 hrs/wk
DOUG CAPPIELLO
DIRECTOR
—
1 hrs/wk
STACY FULLER
DIRECTOR
—
1 hrs/wk
JAMIE GILLESPIE
DIRECTOR
—
1 hrs/wk
SETH LERNER
DIRECTOR
—
1 hrs/wk
ROBERT LEVIN
DIRECTOR
—
1 hrs/wk
JARED SHER
CHAIR
—
2 hrs/wk
DAVID PULVER
DIRECTOR
—
1 hrs/wk
NEAL SHORE
DIRECTOR
—
1 hrs/wk
MALCOLM TUESLEY
DIRECTOR
—
1 hrs/wk
KAREN SACHSE
DIRECTOR
—
1 hrs/wk
SIMA PORTEN
DIRECTOR
—
1 hrs/wk
GERALD MCNAMARA
TREASURER
—
2 hrs/wk
BEVERLY JAMES
SECRETARY
—
2 hrs/wk
DIANE ZIPURSKY QUALE
DIRECTOR/CO-FOUNDER
—
2 hrs/wk
DUNCAN ALEXANDER
DIRECTOR
—
1 hrs/wk
REBECCA JOHNSON
VP RES, EDUC & MARKETING
$164K
40 hrs/wk
MARK STORY
DIR OF COMM & MARKETING
$151K
40 hrs/wk
STEPHANIE CHISHOLM
DIR OF EDUCATION & ADVOCACY
$151K
40 hrs/wk
CHRIS MANNINA
DIRECTOR OF FINANCE
$107K
40 hrs/wk
Grants received
Showing 182 of 182
Funded by
$4.2M from 81 funders · 182 grants · 2017–2024
$1M · 4 grants · 2020–2023
$551K · 8 grants · 2017–2023
$545K · 4 grants · 2020–2023
$500K · 1 grant · 2017
$304K · 2 grants · 2019–2023
$200K · 4 grants · 2017–2022
$144K · 7 grants · 2017–2023
$100K · 1 grant · 2023