NonprofitsBleeding Disorders Council Of California

Disease & Medical Research

Bleeding Disorders Council Of California

SACRAMENTO, CA

Total revenue

$367K

Total expenses

$364K

Net assets

$273K

Grants received

$175K

14 grants

EIN

680182998

Tax year

2024

Mission

The mission of hcc is to improve access to care and treatment options in order to advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in the collaboration with its founding member organizations.

Programs

4 programs

Advocacy & policy - the hcc actively seeks the support of the california legislature for measures that will improve the quality of life of members in our community. Our efforts focus on supporting the current programs that exist, as well as evaluating changes to the current health system that may affect access and quality of treatment.in addition to serving the hcc board, the volunteer board of directors also serve the hemophilia community in various capacities. Some of these include education, advocacy, pharmaceutical insight, relational development, and future building.

Expenses: $92K

Healthcare access forum - this is a quarterly bleeding disorders industry forum thatpromotes communication among consumers, industry, healthcare providers, specialtypharmacies and the state.

Expenses: $30K

Hcc policy summit program - hcc hosts an annual health summit on healthcare policy and consumer healthcare access barriers. The attendees include some of the top ten pharmaceutical companies, pharmaceutical manufacturers, health care providers, patient advocates, regional/national patient organizations, and health-related state government agencies.

Expenses: $22K

Diversity & inclusion program - the hcc focuses on increasing access to health care for underserved communities as well as providing increased education and health literacy for underserved communities.

Expenses: $13K

Financials

FY 2024

Revenue

Contributions & grants$349K
Program service revenue
Investment income$17K
Other revenue
Total revenue$367K

Expenses

Grants paid
Salaries & benefits$172K
Fundraising$7K
Other expenses$192K
Total expenses$364K
Total assets$351K
Net assets$273K

People

14 listed

NameRoleCompensation

LYNNE KINST

Executive Dir.

Board

$93K

40 hrs/wk

STEPHANIE DANSKER

BOARD MEMBER

Board

5 hrs/wk

CINDY GUZMAN

BOARD MEMBER

Board

2 hrs/wk

RYAN FADEN

BOARD MEMBER

Board

5 hrs/wk

AMAL ESTRADA

BOARD MEMBER

Board

2 hrs/wk

MIA CASTANEDA-LAYMAN

BOARD MEMBER

Board

2 hrs/wk

MOSI WILLIAMS

BOARD MEMBER

Board

2 hrs/wk

ELAINE MACASIRAY

BOARD MEMBER

Board

2 hrs/wk

GREG HUNT

BOARD MEMBER

Board

2 hrs/wk

BRENT MASCORRO

BOARD MEMBER

Board

2 hrs/wk

SHELLYE HOROWITZ

BOARD MEMBER

Board

2 hrs/wk

LAUREN HAY

President

Board

5 hrs/wk

RIGO MANZO

Vice President

Board

2 hrs/wk

CARSON KNIGHT

BOARD MEMBER

Board

2 hrs/wk

Grants received

Showing 14 of 14

FromAmountPurposeYear
$12K
STATE BASED ADVOCACY COALITION GRANT
2024
$8K
PROMOTE HEMOPHILIA
2024
$15K
PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
2023
$10K
STATE BASED ADVOCACY COALITION GRANT
2023
$8K
PROMOTE HEMOPHILIA
2023
$12K
STATE BASED ADVOCACY COALITION GRANT
2022
$10K
PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
2022
$16K
PROMOTE HEMOPHILIA
2021
$10K
STATE BASED ADVOCACY COALITION GRANT
2021
$12K
STATE BASED ADVOCACY COALITION GRANT
2020
$10K
STATE BASED ADVOCACY COALITION GRANT & COVID-19 RELIEF GRANT
2020
$16K
CHAPTER CAPACITY BUILDING GRANT AND STATE BASED ADVOCACY COALITION GRANT.
2018

Funded by

$175K from 4 funders · 14 grants · 2018–2024

National Bleeding Disorders Foundation

$81K · 7 grants · 2018–2024

The Hemophilia Alliance Foundation

$31K · 3 grants · 2021–2024

The Hemophilia Alliance Group Purchasing

$25K · 2 grants · 2022–2023

Details

EIN680182998
NTEE codeG21Z
Subsection03
Ruling date1994-11
Formed1989
Employees2
Volunteers30
BLEEDING DISORDERS COUNCIL OF CALIFORNIA — Mission, Financials & Grants Received | Grantivo