Disease & Medical Research
Bleeding Disorders Council Of California
SACRAMENTO, CA
Total revenue
$367K
Total expenses
$364K
Net assets
$273K
Grants received
$175K
14 grants
EIN
680182998
Tax year
2024
Mission
The mission of hcc is to improve access to care and treatment options in order to advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in the collaboration with its founding member organizations.
Programs
4 programs
Advocacy & policy - the hcc actively seeks the support of the california legislature for measures that will improve the quality of life of members in our community. Our efforts focus on supporting the current programs that exist, as well as evaluating changes to the current health system that may affect access and quality of treatment.in addition to serving the hcc board, the volunteer board of directors also serve the hemophilia community in various capacities. Some of these include education, advocacy, pharmaceutical insight, relational development, and future building.
Healthcare access forum - this is a quarterly bleeding disorders industry forum thatpromotes communication among consumers, industry, healthcare providers, specialtypharmacies and the state.
Hcc policy summit program - hcc hosts an annual health summit on healthcare policy and consumer healthcare access barriers. The attendees include some of the top ten pharmaceutical companies, pharmaceutical manufacturers, health care providers, patient advocates, regional/national patient organizations, and health-related state government agencies.
Diversity & inclusion program - the hcc focuses on increasing access to health care for underserved communities as well as providing increased education and health literacy for underserved communities.
Financials
FY 2024
Revenue
Expenses
People
14 listed
LYNNE KINST
Executive Dir.
$93K
40 hrs/wk
STEPHANIE DANSKER
BOARD MEMBER
—
5 hrs/wk
CINDY GUZMAN
BOARD MEMBER
—
2 hrs/wk
RYAN FADEN
BOARD MEMBER
—
5 hrs/wk
AMAL ESTRADA
BOARD MEMBER
—
2 hrs/wk
MIA CASTANEDA-LAYMAN
BOARD MEMBER
—
2 hrs/wk
MOSI WILLIAMS
BOARD MEMBER
—
2 hrs/wk
ELAINE MACASIRAY
BOARD MEMBER
—
2 hrs/wk
GREG HUNT
BOARD MEMBER
—
2 hrs/wk
BRENT MASCORRO
BOARD MEMBER
—
2 hrs/wk
SHELLYE HOROWITZ
BOARD MEMBER
—
2 hrs/wk
LAUREN HAY
President
—
5 hrs/wk
RIGO MANZO
Vice President
—
2 hrs/wk
CARSON KNIGHT
BOARD MEMBER
—
2 hrs/wk
Grants received
Showing 14 of 14
Funded by
$175K from 4 funders · 14 grants · 2018–2024
$81K · 7 grants · 2018–2024
$38K · 2 grants · 2023–2024
$31K · 3 grants · 2021–2024
$25K · 2 grants · 2022–2023