NonprofitsCdg Care

Medical Research

Cdg Care

COLORADO SPGS, CO

Total revenue

$531K

Total expenses

$344K

Net assets

$709K

Grants received

$1.2M

30 grants

EIN

810769799

Tax year

2024

Mission

To promote greater awareness and understanding of CDG, to provide information and support to families affected by CDG, and to advocate for and fund scientific research to advance treatments for all CDGs.

Programs

2 programs

CDG Biennial Conference: In 2024, CDG CARE hosted the 5th biennial professional and educational conference on CDG. While many preliminary expenses were incurred in 2023, the majority of expenses are paid out during the event, which was in March 2024. The conference hosted 330 professionals and family members who participated in a 3-day educational conference to advance CDG education, information and opportunities to develop treatments in the future.

Expenses: $99K

Patient/Family Travel & Equipment Grant Program: In 2024, CDG CARE continued to support a program that provides financial support to patients and families to obtain much needed therapeutic/medical equipmen4 and provide funding support for families to travel to specialty medical centers to receive consultation and medical guidance from experts in CDG. Through the therapeutic/medical equipment grant program, 14 patients received equipment grants and 16 families received travel support through the family grant program.

Expenses: $38KGrants: $37K

Financials

FY 2024

Revenue

Contributions & grants$502K
Program service revenue$12K
Investment income$17K
Other revenue
Total revenue$531K

Expenses

Grants paid$189K
Salaries & benefits$17K
Fundraising$14K
Other expenses$138K
Total expenses$344K
Total assets$717K
Net assets$709K

People

10 listed

NameRoleCompensation

Andrea Miller

Executive Director

Board

$13K

40 hrs/wk

Meral Omurtag

Director

Board

2 hrs/wk

Heather Conneran

Director

Board

2 hrs/wk

Lewis Franklin

Director

Board

2 hrs/wk

Karen Oosterhous

Director

Board

2 hrs/wk

Ashleigh Linthicum

Director

Board

2 hrs/wk

Amy Dann

Director

Board

2 hrs/wk

Christa Thoma

Treasurer

Board

8 hrs/wk

Karen Morici

Chair

Board

8 hrs/wk

Kara Berasi

Vice Chair

Board

4 hrs/wk

Grants received

Showing 30 of 30

FromAmountPurposeYear
$7K
GENERAL SUPPORT
2024
$13K
For grant recipient's exempt purposes
2023
$10K
GENERAL SUPPORT
2023
$5K
PROGRAM/OPERATING SUPPORT
2023
$3K
Program Support
2023
$500
PROGRAM/OPERATING SUPPORT
2023
$205
GENERAL SUPPORT
2023
$100
PROGRAM/OPERATING SUPPORT
2023
$10K
For grant recipient's exempt purposes
2022
$7K
CHARITABLE DONATION
2022
$5K
UNRESTRICTED
2022
$5K
PROGRAM/OPERATING SUPPORT
2022
$500
EMPLOYEE MATCHING
2022
$100
IN MEMORY OF CHLOE SCACE
2022
$100
IN MEMORY OF CHLOE SCACE
2022
$14K
General Support
2020
$9K
Unrestricted
2020
$1K
CREATE AWARENESS OF CDG
2020
$29K
Unrestricted
2018
$20K
TO SUPPORT PEOPLE SUFFERING FROM CONGENITAL DISORDERS OF GLYCOSYLATION
2017

Funded by

$1.2M from 17 funders · 30 grants · 2017–2024

Silicon Valley Community Foundation

$800K · 1 grant · 2024

American Online Giving Foundation Inc

$112K · 4 grants · 2020–2024

Donor Advised Charitable Giving Inc

$106K · 3 grants · 2020–2023

Network For Good

$43K · 3 grants · 2018–2022

Fidelity Investments Charitable Gift Fund

$23K · 2 grants · 2022–2023

Paypal Charitable Giving Fund

$14K · 1 grant · 2020

Details

EIN810769799
NTEE codeH80
Subsection03
Ruling date2016-07
Formed2014
Employees1
Volunteers10
CDG CARE — Mission, Financials & Grants Received | Grantivo