NonprofitsCharcot-Marie-Tooth Association

Disease & Medical Research

Charcot-Marie-Tooth Association

GLENOLDEN, PA

Total revenue

$5.8M

Total expenses

$5.8M

Net assets

$9.5M

Grants received

$6.7M

220 grants

EIN

222480896

Tax year

2024

Mission

To support the development of new drugs to treat charcot-marie-tooth disease (cmt), to improve the quality of life for people with cmt and untimately, to fund a cure.

Programs

1 program

Cmta organizes and conducts support groups, conferences, a camp for children ages 10-18 with cmt at 2 u.s. Locations, and educational webinars for patients, their families and medical practitioners to share knowledge and promote awareness of charcot-marie-tooth disease.cmta also publishes a bi-monthly newsletter and other educational publications which are available to the public.cmta also maintains a website for patients, their families and medical practitioners to assist in understanding and treating charcot-marie-tooth disease.

Expenses: $1.3M

Financials

FY 2024

Revenue

Contributions & grants$4.1M
Program service revenue$1.3M
Investment income$422K
Other revenue
Total revenue$5.8M

Expenses

Grants paid$2.3M
Salaries & benefits$1.4M
Fundraising$326K
Other expenses$2.1M
Total expenses$5.8M
Total assets$9.5M
Net assets$9.5M

People

26 listed

NameRoleCompensation

SUZANNE BRUHN

CHIEF EXECUTIVE OFFICER

Board

$300K

40 hrs/wk

KIMBERLY MAGEE

DIRECOT OF FINANCE AND ADMIN

Board

$98K

40 hrs/wk

DAVID COLDIRON

BOARD MEMBER

Board

1 hrs/wk

DR MICHAEL SHY

BOARD MEMBER

Board

1 hrs/wk

DR STEVEN SCHERER

BOARD MEMBER

Board

1 hrs/wk

DR THOMAS DUBENSKY

BOARD MEMBER

Board

1 hrs/wk

GARY J GASPER

BOARD MEMBER

Board

1 hrs/wk

GILLES BOUCHARD

CHAIRMAN

Board

1 hrs/wk

HERBERT BERON

SECRETARY

Board

1 hrs/wk

JOHN SVAREN

BOARD MEMBER

Board

1 hrs/wk

ALAN KOROWITZ

BOARD MEMBER (THRU 2/24)

Board

0

KEVIN MARKS

BOARD MEMBER (EFF 2/24)

Board

1 hrs/wk

KEVIN SAMI

TREASURER

Board

1 hrs/wk

PARTRICIA VERDUIN OHD

BOARD MEMBER (EFF 4/24)

Board

1 hrs/wk

PHYLLIS SANDERS

BOARD MEMBER (THRU 2/24)

Board

1 hrs/wk

WENDY ARNONE

BOARD MEMBER (EFF 3/24)

Board

1 hrs/wk

STEVEN O'DONNELL

BOARD MEMBER (THRU 12/24)

Board

1 hrs/wk

DAVID NORCOM

BOARD MEMBER (THRU 9/24)

Board

1 hrs/wk

JON PASTOR

BOARD MEMBER

Board

1 hrs/wk

BERNARD COULIE

BOARD MEMBER (EFF 2/24)

Board

0

CRAIG ZELTSAR

BOARD MEMBER

Board

1 hrs/wk

DAN CHAMBY

BOARD MEMBER

Board

1 hrs/wk

DAVID APPLE

BOARD MEMBER

Board

1 hrs/wk

JEANA SWEENEY

CHIEF ENGAGEMENT AND GIFT OFFICER

Staff

$140K

40 hrs/wk

KATHERINE FORSEY

CHIEF RESEARCH OFFICER

Staff

$125K

40 hrs/wk

LAUREL RICHARDSON

DIRECTOR OF COMMUNITY OUTREACH

Staff

$102K

40 hrs/wk

Grants received

Showing 200 of 220

FromAmountPurposeYear
$185K
UNRESTRICTED GENERAL SUPPORT
2024
$45K
FELLOWSHIP
2024
$32K
PROGRAMATIC SUPPORT
2024
$32K
PROGRAMATIC SUPPORT
2024
$25K
GENERAL SUPPORT
2024
$12K
FOR RECIPIENT'S EXEMPT PURPOSE
2024
$11K
DISEASE/DISORDER
2024
$10K
FUNDING SUPPORTS GENERAL OPERATIONS AND PROGRAMMING.
2024
$10K
TO SUPPORT CMTA'S REASERCH FOR A CURE, AND PROVIDE RESOURCES FOR THOSE LIVING WITH CMT.
2024
$5K
GENERAL OPERATING EXPENSES
2024
$4K
General & Unrestricted
2024
$2K
CURRENT USE FOR GENERAL CHARITABLE PURPOSES
2024
$2K
VOLUNTEER INCENTIVE PROGRAM
2024
$1K
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2024
$1K
CHARITABLE PURPOSE
2024
$1K
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
$1K
General & Unrestricted
2024
$515
CHARITABLE ACTIVTITIES
2024
$350
GENERAL OPERATING PURPOSE
2024
$20
GENERAL SUPPORT
2024
CHARITABLE - HEALTH SERVICES
2024
$534K
For grant recipient's exempt purposes
2023
$50K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2023
$35K
UNRESTRICTED GENERAL SUPPORT
2023
$32K
PROGRAMATIC SUPPORT
2023
$30K
FELLOWSHIP
2023
$25K
GENE THERAPY FOR CMT
2023
$20K
Camp Footprint West
2023
$10K
TO SUPPORT PATIENTS AND FAMILIES AND ACCELERATE RESEARCH FOR TREATMENTS AND A CURE
2023
$10K
CMTA Funathon - match laps/miles for swim - general use
2023
$10K
CHARITABLE - HEALTH SERVICES
2023
$10K
PUBLIC, SOCIETAL BENEFIT
2023
$10K
CMTA Funathon - match laps/miles for swim - general use
2023
$10K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
$5K
MEET-UPS GRANT
2023
$5K
RESEARCH
2023
$4K
General & Unrestricted
2023
$2K
CURRENT USE FOR GENERAL CHARITABLE PURPOSES
2023
$2K
VOLUNTEER INCENTIVE PROGRAM
2023
$1K
GENERAL SUPPORT
2023
$1K
TO SUPPORT CMTA'S REASERCH FOR A CURE, AND PROVIDE RESOURCES FOR THOSE LIVING WITH CMT.
2023
$1K
General & Unrestricted
2023
$750
CHARITABLE PURPOSE
2023
$600
COMMUNITY IMPROVEMENT, CAPACITY BUILDING
2023
$300
GENERAL OPERATING SUPPORT
2023
$250
OTHER CIVIC / COMMUNITY
2023
$200
GENERAL OPERATING PURPOSE
2023
$200
DISEASE
2023
$115
GENERAL SUPPORT
2023
$108
MATCH A PREVIOUS DONATION (501(C)3)
2023
$100
PROGRAM/OPERATING SUPPORT
2023
$85
GENERAL SUPPORT
2023
$60
GENERAL SUPPORT
2023
$60
GENERAL SUPPORT
2023
$50
PROGRAM/OPERATING SUPPORT
2023
$20
GENERAL SUPPORT
2023
$500K
GENERAL SUPPORT
2022
$151K
For grant recipient's exempt purposes
2022
$40K
Camp Footprint West
2022
$35K
UNRESTRICTED GENERAL SUPPORT
2022
$25K
GENE THERAPY FOR CMT
2022
$25K
CMTA Funathon - match laps/miles for swim - general use
2022
$23K
GENERAL PURPOSE
2022
$12K
DISEASE/DISORDER
2022
$12K
TO SUPPORT CAMP FOOT
2022
$11K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
$10K
TO SUPPORT PATIENTS AND FAMILIES AND ACCELERATE RESEARCH FOR TREATMENTS AND A CURE
2022
$9K
GENERAL SUPPORT
2022
$5K
CHARITABLE - HEALTH SERVICES
2022
$5K
RESEARCH
2022
$4K
General & Unrestricted
2022
$2K
VOLUNTEER INCENTIVE PROGRAM
2022
$2K
GENERAL PURPOSES
2022
$1K
CHARITABLE GIVING
2022
$1K
General & Unrestricted
2022
$750
CHARITABLE PURPOSE
2022
$350
PROGRAM/OPERATING SUPPORT
2022
$250
MIP PAYOUT FOR 10/03/22
2022
$250
GENERAL OPERATING GRANT
2022
$200
CHARITABLE ACTIVITIES
2022
$175
GENERAL SUPPORT
2022
$150
MATCHING GIFTS
2022
$104
ECONOMIC POLICY
2022
$104
GENERAL OPERATING PURPOSES
2022
$100
OPERATING SUPPORT
2022
$100
PROGRAM/OPERATING SUPPORT
2022
$60
GENERAL SUPPORT
2022
$60
GENERAL SUPPORT
2022
$50
EMPLOYEE GIVING PROGRAM
2022
$50
PROGRAM/OPERATING SUPPORT
2022
$26
GENERAL SUPPORT
2022
$20
GENERAL SUPPORT
2022
$540K
For grant recipient's exempt purposes
2021
$540K
For grant recipient's exempt purposes
2021
$114K
For recipient's exempt purpose
2021
$69K
UNRESTRICTED
2021
$43K
CMTA Funathon - match laps/miles for swim - general use
2021
$25K
GENERAL SUPPORT
2021
$25K
GENERAL SUPPORT-MATCHING GIFT-ON BEHALF OF SETH AND MISSY WARFIELD
2021
$25K
GENE THERAPY FOR CMT
2021
$7K
RESEARCH
2021
$5K
CHARITABLE - HEALTH SERVICES
2021
$4K
General & Unrestricted
2021
$2K
GENERAL OPERATING SUPPORT
2021
$825
SUPPORT CAMP FOOTPRINT
2021
$500
CHARITABLE PURPOSE
2021
$500
General & Unrestricted
2021
$490K
For grant recipient's exempt purposes
2020
$300K
SUPPORT, UNSPECIFIED
2020
$200K
UNRESTRICTED GENERAL SUPPORT
2020
$77K
Unrestricted
2020
$75K
GENE THERAPY FOR CMT
2020
$50K
To support the development of new drugs to treat CMT, to improve the quality of life for people with CMT, and, ultimately, to find a cure.
2020
$25K
GENERAL PURPOSE
2020
$18K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
$10K
STAR RESEARCH
2020
$10K
UNRESTRICTED DONATION
2020
$7K
GENERAL OPERATING EXPENSES
2020
$7K
2021 CAMP FOOTPRINT
2020
$6K
GENERAL SUPPORT
2020
$5K
GENERAL USE
2020
$5K
CHARITABLE - HEALTH SERVICES
2020
$4K
General & Unrestricted
2020
$2K
GENERAL OPERATING SUPPORT
2020
$2K
VOLUNTEER INCENTIVE PROGRAM
2020
$2K
CONTRIB. TO OTHER ORG. FOR THEIR ESTAB. PURPOSE
2020
$1K
GENERAL OPERATING SUPPORT
2020
$500
GENERAL SUPPORT
2020
$500
The National Foundation for Peroneal Muscular Atrophy (NFPMA) was incorporated in 1983 in Pennsylvania as a 501(c)(3) federally recognized charity. The original founder, Dr. Howard Shapiro, was, himself, a patient with CMT and when he began the organization. He hoped to create interest in the disorder within the medical community while also providing support to patients and families dealing with the little-known problem. From its inception, the NFPMA, now the CMTA, has continued that twofold concern by supporting research on the causes and possible cures for CMT and by focusing on patient education and support.
2020
$200
MIP PAYOUT FOR 10/06/20
2020
$150
MATCHING GRANTS
2020
$103
GENERAL SUPPORT
2020
$100
ECONOMIC POLICY
2020
$100
GENERAL SUPPORT
2020
$100
EMPLOYEE GIVING PROGRAM
2020
$98
GENERAL SUPPORT
2020
$97
GENERAL SUPPORT
2020
$82
GENERAL SUPPORT
2020
$50
MATCHING GIFTS
2020
$50
COMMUNITY SUPPORT
2020
$50
MATCHING CONTRIBUTION MADE BY EMPLOYEE OF YELP, INC.
2020
$40
GENERAL SUPPORT
2020
$40
GENERAL SUPPORT
2020
$130K
For grant recipient's exempt purposes
2019
$20K
GENERAL SUPPORT
2019
$15K
ANNUAL CAMPAIGN
2019
$250
FURTHERANCE OF THE CHARITY'S PURPOSE
2019
$235
GENERAL OPERATING SUPPORT
2019
$168K
For grant recipient's exempt purposes
2018
$76K
Unrestricted
2018

Funded by

$6.7M from 79 funders · 220 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$2.6M · 8 grants · 2017–2023

Donor Advised Charitable Giving Inc

$567K · 7 grants · 2017–2023

Skylight Charitable Trust

$500K · 1 grant · 2022

Morgan Stanley Global Impact Funding Trust Inc

$455K · 4 grants · 2020–2024

Hampton Roads Community Foundation

$370K · 6 grants · 2018–2024

American Online Giving Foundation Inc

$268K · 6 grants · 2019–2024

Network For Good

$222K · 3 grants · 2018–2021

Greater Washington Community Foundation

$178K · 6 grants · 2017–2023

Details

EIN222480896
NTEE codeG8XZ
Subsection03
Ruling date1986-06
Formed1983
Employees13
Volunteers125
CHARCOT-MARIE-TOOTH ASSOCIATION — Mission, Financials & Grants Received | Grantivo