Disease & Medical Research
Charcot-Marie-Tooth Association
GLENOLDEN, PA
Total revenue
$5.8M
Total expenses
$5.8M
Net assets
$9.5M
Grants received
$6.7M
220 grants
EIN
222480896
Tax year
2024
Mission
To support the development of new drugs to treat charcot-marie-tooth disease (cmt), to improve the quality of life for people with cmt and untimately, to fund a cure.
Programs
1 program
Cmta organizes and conducts support groups, conferences, a camp for children ages 10-18 with cmt at 2 u.s. Locations, and educational webinars for patients, their families and medical practitioners to share knowledge and promote awareness of charcot-marie-tooth disease.cmta also publishes a bi-monthly newsletter and other educational publications which are available to the public.cmta also maintains a website for patients, their families and medical practitioners to assist in understanding and treating charcot-marie-tooth disease.
Financials
FY 2024
Revenue
Expenses
People
26 listed
SUZANNE BRUHN
CHIEF EXECUTIVE OFFICER
$300K
40 hrs/wk
KIMBERLY MAGEE
DIRECOT OF FINANCE AND ADMIN
$98K
40 hrs/wk
DAVID COLDIRON
BOARD MEMBER
—
1 hrs/wk
DR MICHAEL SHY
BOARD MEMBER
—
1 hrs/wk
DR STEVEN SCHERER
BOARD MEMBER
—
1 hrs/wk
DR THOMAS DUBENSKY
BOARD MEMBER
—
1 hrs/wk
GARY J GASPER
BOARD MEMBER
—
1 hrs/wk
GILLES BOUCHARD
CHAIRMAN
—
1 hrs/wk
HERBERT BERON
SECRETARY
—
1 hrs/wk
JOHN SVAREN
BOARD MEMBER
—
1 hrs/wk
ALAN KOROWITZ
BOARD MEMBER (THRU 2/24)
—
0KEVIN MARKS
BOARD MEMBER (EFF 2/24)
—
1 hrs/wk
KEVIN SAMI
TREASURER
—
1 hrs/wk
PARTRICIA VERDUIN OHD
BOARD MEMBER (EFF 4/24)
—
1 hrs/wk
PHYLLIS SANDERS
BOARD MEMBER (THRU 2/24)
—
1 hrs/wk
WENDY ARNONE
BOARD MEMBER (EFF 3/24)
—
1 hrs/wk
STEVEN O'DONNELL
BOARD MEMBER (THRU 12/24)
—
1 hrs/wk
DAVID NORCOM
BOARD MEMBER (THRU 9/24)
—
1 hrs/wk
JON PASTOR
BOARD MEMBER
—
1 hrs/wk
BERNARD COULIE
BOARD MEMBER (EFF 2/24)
—
0CRAIG ZELTSAR
BOARD MEMBER
—
1 hrs/wk
DAN CHAMBY
BOARD MEMBER
—
1 hrs/wk
DAVID APPLE
BOARD MEMBER
—
1 hrs/wk
JEANA SWEENEY
CHIEF ENGAGEMENT AND GIFT OFFICER
$140K
40 hrs/wk
KATHERINE FORSEY
CHIEF RESEARCH OFFICER
$125K
40 hrs/wk
LAUREL RICHARDSON
DIRECTOR OF COMMUNITY OUTREACH
$102K
40 hrs/wk
Grants received
Showing 200 of 220
Funded by
$6.7M from 79 funders · 220 grants · 2017–2024
$2.6M · 8 grants · 2017–2023
$567K · 7 grants · 2017–2023
$500K · 1 grant · 2022
$455K · 4 grants · 2020–2024
$370K · 6 grants · 2018–2024
$268K · 6 grants · 2019–2024
$222K · 3 grants · 2018–2021
$178K · 6 grants · 2017–2023