Nonprofits›Chordoma Foundation

Medical Research

Chordoma Foundation

DURHAM, NC

WebsiteView as a funder

Total revenue

$5.4M

Total expenses

$6.8M

Net assets

$7.7M

Grants received

$10.3M

200 grants

EIN

208423943

Tax year

2024

Mission

The mission of the chordoma foundation is to improve the lives of those affected by chordoma and lead the search for a cure.

Programs

1 program

(patient services) to improve the lives of individuals affected by chordoma, we helped patients and their families find accurate information about chordoma and treatment options, overcome barriers to care, and get emotional support from peers. This included developing and distributing educational content, providing patient navigation services, hosting educational conferences, operating an online community forum for patients and families and providing financial assistance to individuals traveling to participate in clinical trials.

Expenses: $739KGrants: $76K

Financials

FY 2024

Revenue

Contributions & grants$4.9M
Program service revenue—
Investment income$446K
Other revenue$58K
Total revenue$5.4M

Expenses

Grants paid$3.7M
Salaries & benefits$2.1M
Fundraising$610K
Other expenses$972K
Total expenses$6.8M
Total assets$11.4M
Net assets$7.7M

People

20 listed

NameRoleCompensation

JOSH SOMMER

EXEC. DIR. &

Board

$174K

50 hrs/wk

LESLIE ADLER

DIRECTOR

Board

—

2 hrs/wk

PAUL FELDMAN

DIRECTOR

Board

—

2 hrs/wk

STEVEN GOLICK

DIRECTOR

Board

—

2 hrs/wk

CHRISTOPHER HEERY

DIRECTOR

Board

—

2 hrs/wk

ALICIA JEFFREYS

DIRECTOR

Board

—

2 hrs/wk

SUSAN MAHONY

DIRECTOR

Board

—

2 hrs/wk

STEVEN MANDEL

DIRECTOR

Board

—

2 hrs/wk

LAUREN MULHOLLAND

DIRECTOR

Board

—

2 hrs/wk

SHREYASKUMAR PATEL

DIRECTOR

Board

—

2 hrs/wk

DAVID SANDAK

CHAIR

Board

—

2 hrs/wk

MEGAN STEWART

DIRECTOR

Board

—

2 hrs/wk

JOHN THERIEN

DIRECTOR

Board

—

2 hrs/wk

KENNY BRIGHTON

HEAD OF PHIL

Staff

$216K

40 hrs/wk

DANIEL FREED

CHIEF SCIENT

Staff

$204K

40 hrs/wk

SARA NICK

HEAD OF ENGA

Staff

$143K

40 hrs/wk

SHANNON LOZINSKY

DIRECTOR OF

Staff

$122K

40 hrs/wk

LEE DOLAT

SCIENTIST

Staff

$112K

40 hrs/wk

SAI PERVEEN CHEMUDUPATI

DIRECTOR OF

Staff

$105K

40 hrs/wk

JESSE BONGARTZ

HEAD OF FINA

Staff

$101K

40 hrs/wk

Independent contractors

S TEXAS ACCELERATED RESEARCH THERAPE

RESEARCH

$156K

Grants received

Showing 200 of 200

FromAmountPurposeYear
YONTZ VALOR FOUNDATION
$750K
USED TOWARDS SEARCHING FOR A CURE FOR THOSE AFFECTED BY CHORDOMA
2024
Silicon Valley Community Foundation
$500K
Health
2024
Bob & Dolores Hope Foundation
$150K
Team Mac Project
2024
FLEISHER FAMILY FOUNDATION
$75K
UNRESTRICTED SUPPORT FOR CHARITABLE ACTIVITIES
2024
Ciara Arts & Science Foundation Inc
$50K
General
2024
COMMUNITY FOUNDATION OF GREATER
$50K
GENERAL SUPPORT
2024
PAYPAL CHARITABLE GIVING FUND
$47K
GENERAL SUPPORT
2024
ELI LILLY AND COMPANY FOUNDATION
$40K
ADVANCING CARE OF CHORDOMA (RARE CANCER) IN RESOURCE-LIMITED SETTINGS IN LMICS
2024
WCN CARES
$30K
TO HELP FUND RESEARCH INTO NEW TREATMENTS AND PROVIDE FINANCIAL AID FOR PATIENTS IN CLINICAL TRIALS
2024
COMMUNITY FDN OF GREATER DES MOINES
$20K
GRANT DISTRIBUTION
2024
THE TRES CHICAS FOUNDATION
$20K
GENERAL CHARITABLE
2024
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$15K
UNRESTRICTED GENERAL SUPPORT
2024
THE WOLSTENCROFT FAMILY FOUNDATION
$10K
FOR GENERAL CHARITABLE PURPOSES
2024
COMMUNITY FDN OF GREATER DES MOINES
$10K
GRANT DISTRIBUTION
2024
AMERICAN ONLINE GIVING FOUNDATION INC
$9K
GENERAL SUPPORT
2024
AMERICAN ENDOWMENT FOUNDATION
$6K
MEDICAL RESEARCH
2024
COMMUNITY FDN OF GREATER DES MOINES
$6K
GRANT DISTRIBUTION IN SUPPORT OF TEAM CHORDOMA 2024
2024
CONSTANCE M COOPER CHARITABLE
$3K
FINCL SUPPORT OF CHARITABLE ORG.
2024
CALCAP CARES
$3K
CANCER SUPPORT GROUP
2024
TOWERBROOK FOUNDATION
$2K
FOR GENERAL OPERATING SUPPORT
2024
THE MCAFEE FAMILY FOUNDATION
$1K
GENERAL FUND
2024
AMICA COMPANIES FOUNDATION
$200
GENERAL PURPOSE
2024
SHELL USA COMPANY FOUNDATION
$100
100
2024
Arthur J Gallagher Foundation
$50
GENERAL EXEMPT PURPOSE
2024
BECKMAN FAMILY FOUNDATION
$500K
GENERAL OPERATING PURPOSES
2023
FLEISHER FAMILY FOUNDATION
$210K
GENERAL OPERATIONS
2023
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$52K
For grant recipient's exempt purposes
2023
Ciara Arts & Science Foundation Inc
$50K
General
2023
RDM POSITIVE IMPACT FOUNDATION
$50K
MEDICAL RESEARCH
2023
SBE&S Clients' Consolidated Charitable Foundation
$30K
Unlimited
2023
Bob & Dolores Hope Foundation
$25K
Support of Team Mac and thier fight against chordoma
2023
THE TRES CHICAS FOUNDATION
$20K
GENERAL CHARITABLE
2023
THE CEDAR STREET FOUNDATION JH1204
$20K
UNRESTRICTED SUPPORT
2023
AMERICAN ONLINE GIVING FOUNDATION INC
$18K
GENERAL SUPPORT
2023
DONOR ADVISED CHARITABLE GIVING INC
$13K
HEALTH
2023
RAYMOND JAMES CHARITABLE ENDOWMENT FUND
$10K
GENERAL SUPPORT
2023
THE VANTZELFDE FAMILY FOUNDATION
$10K
TO SUPPORT A PUBLIC CHARITY
2023
COMMUNITY FDN OF GREATER DES MOINES
$10K
GRANT DISTRIBUTION
2023
THE WOLSTENCROFT FAMILY FOUNDATION
$10K
FOR GENERAL CHARITABLE PURPOSES
2023
COMMUNITY FDN OF GREATER DES MOINES
$10K
GRANT DISTRIBUTION
2023
Hester M Digges Charitable Remainder Unitrust DTD 6 1 73
$10K
Unlimited
2023
AMERICAN ENDOWMENT FOUNDATION
$6K
MEDICAL RESEARCH
2023
CONSTANCE M COOPER CHARITABLE
$3K
FINCL SUPPORT OF CHARITABLE ORG.
2023
The Bank of America Charitable Foundation Inc
$1K
PROGRAM/OPERATING SUPPORT
2023
The Daniel and Karen Berman Foundation
$1K
General & Unrestricted
2023
THE MCAFEE FAMILY FOUNDATION
$1K
GENERAL FUND
2023
THE PFIZER FOUNDATION INC
$677
MATCHING GIFTS
2023
ALPINE SOCIAL VENTURES FOUNDATION
$600
GENERAL SUPPORT
2023
455 Foundation
$500
General Fund
2023
JOSPEHS WAY INC
$450
GENERAL CHARITABLE PURPOSE
2023
The Bank of America Charitable Foundation Inc
$261
PROGRAM/OPERATING SUPPORT
2023
RED TOP FOUNDATION
$250
MEDICAL
2023
The Bank of America Charitable Foundation Inc
$200
PROGRAM/OPERATING SUPPORT
2023
The Bank of America Charitable Foundation Inc
$100
PROGRAM/OPERATING SUPPORT
2023
First Eagle Investments Foundation
$100
General & Unrestricted
2023
The Bank of America Charitable Foundation Inc
$100
PROGRAM/OPERATING SUPPORT
2023
TEXAS INSTRUMENTS FOUNDATION
$100
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2023
SHELL USA COMPANY FOUNDATION
$100
MEF
2023
The Bank of America Charitable Foundation Inc
$100
PROGRAM/OPERATING SUPPORT
2023
The Bank of America Charitable Foundation Inc
$50
PROGRAM/OPERATING SUPPORT
2023
Arthur J Gallagher Foundation
$50
GENERAL EXEMPT PURPOSE
2023
The Bank of America Charitable Foundation Inc
$50
PROGRAM/OPERATING SUPPORT
2023
The Bank of America Charitable Foundation Inc
$50
PROGRAM/OPERATING SUPPORT
2023
The Bank of America Charitable Foundation Inc
$50
PROGRAM/OPERATING SUPPORT
2023
The Bank of America Charitable Foundation Inc
$50
PROGRAM/OPERATING SUPPORT
2023
The Bank of America Charitable Foundation Inc
$25
PROGRAM/OPERATING SUPPORT
2023
The Herbert & Nell Singer Foundation Inc
$1.1M
General & Unrestricted
2022
BECKMAN FAMILY FOUNDATION
$750K
GENERAL OPERATING PURPOSES
2022
STANLEY MARION PAUL AND EDWARD BERGMAN
$75K
GENERAL USE
2022
FLEISHER FAMILY FOUNDATION
$75K
CHARITABLE PURPOSE
2022
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$58K
For grant recipient's exempt purposes
2022
COMMUNITY FOUNDATION OF GREATER
$50K
GENERAL SUPPORT
2022
Ciara Arts & Science Foundation Inc
$50K
GENERAL
2022
COLUMBUS FOUNDATION
$50K
HEALTH
2022
CHARITIES AID FOUNDATION AMERICA
$43K
CHARITABLE DONATION
2022
THE OROKAWA FOUNDATION INC
$40K
ENDOWMENT FUND
2022
THE CEDAR STREET FOUNDATION JH1204
$35K
UNRESTRICTED SUPPORT
2022
SBE&S Clients' Consolidated Charitable Foundation
$30K
Unlimited
2022
THE BLACKBAUD GIVING FUND
$28K
GENERAL SUPPORT
2022
Bob & Dolores Hope Foundation
$25K
Research
2022
RICHARD HORVITZ AND
$25K
GENERAL & UNRESTRICTED
2022
THE TRES CHICAS FOUNDATION
$20K
GENERAL CHARITABLE
2022
AMERICAN ONLINE GIVING FOUNDATION INC
$19K
GENERAL SUPPORT
2022
THE GOLDMAN SACHS CHARITABLE GIFT FUND
$11K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2022
COMMUNITY FDN OF GREATER DES MOINES
$10K
GRANT DISTRIBUTION
2022
Hester M Digges Charitable Remainder Unitrust DTD 6 1 73
$10K
Unlimited
2022
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$10K
UNRESTRICTED GENERAL SUPPORT
2022
THE WOLSTENCROFT FAMILY FOUNDATION
$10K
FOR GENERAL CHARITABLE PURPOSES
2022
COMMUNITY FDN OF GREATER DES MOINES
$10K
GRANT DISTRIBUTION
2022
Griffith R Harsh IV And Margaret
$10K
General Operating
2022
DONOR ADVISED CHARITABLE GIVING INC
$8K
HEALTH
2022
JEWISH COMMUNAL FUND
$7K
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
2022
AMERICAN ENDOWMENT FOUNDATION
$6K
MEDICAL RESEARCH
2022
NEUROSURGERY FOUNDATION
$5K
PROMOTE HEALTH IN THE COMMUNITY
2022
MOGLIA FAMILY FOUNDATION
$5K
GENERAL PURPOSE
2022
THE MCAFEE FAMILY FOUNDATION
$1K
GENERAL FUND
2022
The Daniel and Karen Berman Foundation
$1K
General & Unrestricted
2022
DANIEL M NEIDICH & BROOKE GARBER
$1K
GENERAL CHARITABLES
2022
Florence M Cahill Annuity Trust UA DTD 10 20 1972
$1K
Unlimited
2022
SYNCHRONY FOUNDATION
$620
EMPLOYEE MATCHING
2022
455 Foundation
$500
General Fund
2022
The Michael and Karen Stone Family Foundation
$500
General & Unrestricted
2022
JOSPEHS WAY INC
$400
GENERAL CHARITABLE PURPOSE
2022
CITIZENS CHARITABLE FOUNDATION
$358
MATCHING GIFT
2022
The Bank of America Charitable Foundation Inc
$261
PROGRAM/OPERATING SUPPORT
2022
THE WILLIAM PENN FOUNDATION
$200
CHORDOMA FOUNDATION 2022
2022
THE WILLIAM PENN FOUNDATION
$200
CHORDOMA FOUNDATION 2022
2022
SHELL USA COMPANY FOUNDATION
$100
MEF
2022
SHELL USA COMPANY FOUNDATION
$100
MEF
2022
THE CIGNA GROUP FOUNDATION
$52
GENERAL OPERATING PURPOSES
2022
The Bank of America Charitable Foundation Inc
$40
PROGRAM/OPERATING SUPPORT
2022
TOTSY FOUNDATION
$10
FOR GENERAL OPERATING FUNDS
2022
BECKMAN FAMILY FOUNDATION
$500K
GENERAL OPERATING PURPOSES
2021
BECKMAN FAMILY FOUNDATION
$500K
GENERAL OPERATING PURPOSES
2021
BECKMAN FAMILY FOUNDATION
$251K
GENERAL OPERATING PURPOSES
2021
The Herbert & Nell Singer Foundation Inc
$60K
General & Unrestricted
2021
THE GOLDMAN SACHS CHARITABLE GIFT FUND
$60K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$58K
For grant recipient's exempt purposes
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$58K
For grant recipient's exempt purposes
2021
STANLEY MARION PAUL AND EDWARD BERGMAN
$50K
GENERAL USE
2021
THE OROKAWA FOUNDATION INC
$30K
ENDOWMENT FUND
2021
THE BRUNS FOUNDATION
$25K
DONATION
2021
COMMUNITY FOUNDATION ALLIANCE INC
$25K
TO FURTHER THE EXEMPT PURPOSE OF THE ORGANIZATION.
2021
Hester M Digges Charitable Remainder Unitrust DTD 6 1 73
$10K
Unlimited
2021
SBE&S Clients' Consolidated Charitable Foundation
$10K
Unlimited
2021
THE ALPERT FAMILY FOUNDATION
$10K
GENERAL OPERATING PURPOSE
2021
AMERICAN ONLINE GIVING FOUNDATION INC
$9K
GENERAL SUPPORT
2021
JEWISH COMMUNAL FUND
$7K
GENERAL SUPPORT
2021
HARRY & YVONNE LENART CHARITABLE
$3K
GENERAL SUPPORT
2021
Florence M Cahill Annuity Trust UA DTD 10 20 1972
$1K
Unlimted
2021
PINNACLE CHARITIES
$1K
Contribution
2021
THE WARBURG PINCUS FOUNDATION
$600
WE ENVISION A FUTURE IN WHICH EVERYONE AFFECTED BY CHORDOMA IS ABLE TO OVERCOME IT AND MAINTAIN THEIR QUALITY OF LIFE
2021
The Daniel and Karen Berman Foundation
$500
General & Unrestricted
2021
SHELL USA COMPANY FOUNDATION
$100
MG
2021
The Bank of America Charitable Foundation Inc
$40
OPERATIONAL SUPPORT
2021
THE MARCUS FOUNDATION INC
$800K
TO SUPPORT THE EXEMPT PURPOSE OF THE RECIPIENT ORGANIZATION
2020
BECKMAN FAMILY FOUNDATION
$250K
CHARITABLE PURPOSES
2020
The Herbert & Nell Singer Foundation Inc
$75K
General & Unrestricted
2020
HIRSCH FAMILY FOUNDATION
$50K
2020 CONTRIBUTION
2020
THE CEDAR STREET FOUNDATION JH1204
$50K
UNRESTRICTED SUPPORT
2020
COLUMBUS FOUNDATION
$50K
HEALTH
2020
STANLEY MARION PAUL AND EDWARD BERGMAN
$50K
GENERAL USE
2020
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$38K
For grant recipient's exempt purposes
2020
THE OROKAWA FOUNDATION INC
$30K
ENDOWMENT FUND
2020
COMMUNITY FOUNDATION OF GREATER
$25K
GENERAL SUPPORT
2020
Bob & Dolores Hope Foundation
$25K
Research
2020
RICHARD HORVITZ AND
$25K
GENERAL & UNRESTRICTED
2020
COMMUNITY FOUNDATION ALLIANCE INC
$25K
TO FURTHER THE EXEMPT PURPOSE OF THE ORGANIZATION.
2020
FIRST NONPROFIT FOUNDATION
$18K
THE PROGRAM WILL RESULT IN AN ESTIMATED SAVINGS OF 800 STAFF HOURS PER YEAR
2020
FLEISHER FAMILY FOUNDATION
$15K
CHARITABLE PURPOSE
2020
DONOR ADVISED CHARITABLE GIVING INC
$13K
HEALTH
2020
AMERICAN ONLINE GIVING FOUNDATION INC
$10K
GENERAL SUPPORT
2020
SBE&S Clients' Consolidated Charitable Foundation
$10K
Unlimited
2020
Hester M Digges Charitable Remainder Unitrust DTD 6 1 73
$10K
Unlimited
2020
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$10K
UNRESTRICTED GENERAL SUPPORT
2020
CALIFORNIA COMMUNITY FOUNDATION
$10K
HEALTH
2020
JEWISH COMMUNAL FUND
$10K
General support
2020
GE FOUNDATION
$6K
MATCHING GIFTS
2020
Jim and Linda Shubert Charitable Foundation
$4K
Cancer Research
2020
AMERICAN EXPRESS FOUNDATION
$2K
GENERAL SUPPORT
2020
JOHN & CAROL WALTER FAMILY FOUNDATION
$1K
GENERAL PURPOSE
2020
Joseph W Stanley Charitable Remainder Annuity Trust
$1K
Unlimited
2020
The Bank of America Charitable Foundation Inc
$600
GENERAL SUPPORT
2020
The Daniel and Karen Berman Foundation
$500
General & Unrestricted
2020
AMERICAN EXPRESS FOUNDATION
$500
GENERAL SUPPORT
2020
The Bank of America Charitable Foundation Inc
$500
GENERAL SUPPORT
2020
THE MCAFEE FAMILY FOUNDATION
$500
GENERAL FUND
2020
RED TOP FOUNDATION
$250
MEDICAL
2020
AMERICAN EXPRESS FOUNDATION
$250
GENERAL SUPPORT
2020
EDWARDS LIFESCIENCES FOUNDATION
$150
MATCHING GIFTS GRANT
2020
SHELL USA COMPANY FOUNDATION
$100
MG
2020
THE WILLIAM PENN FOUNDATION
$100
GENERAL SUPPORT
2020
The Bank of America Charitable Foundation Inc
$77
GENERAL SUPPORT
2020
BECKMAN FAMILY FOUNDATION
$750K
CHARITABLE PURPOSES
2019
THE MARK FOUNDATION FOR CANCER RESEARCH
$500K
Research
2019
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$55K
For grant recipient's exempt purposes
2019
STANLEY MARION PAUL AND EDWARD BERGMAN
$50K
GENERAL USE
2019
THE OROKAWA FOUNDATION INC
$25K
ENDOWMENT FUND
2019
COMMUNITY FOUNDATION ALLIANCE INC
$25K
Non-Profit Support
2019
THE BRUNS FOUNDATION
$25K
DONATION
2019
THE GOLDMAN SACHS CHARITABLE GIFT FUND
$20K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2019
THE ALPERT FAMILY FOUNDATION
$10K
GENERAL OPERATING PURPOSE
2019
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$10K
UNRESTRICTED GENERAL SUPPORT
2019
JEWISH COMMUNAL FUND
$10K
General support
2019
AMERICAN ONLINE GIVING FOUNDATION INC
$7K
GENERAL SUPPORT
2019
THE CLAYMAN FOUNDATION
$2K
MEDICAL RESEARCH AND SUPPORT SERVICES
2019
THE STEVEN M AND ANITA C HELLER
$1K
GENERAL SUPPORT
2019
COMMUNITY FOUNDATION OF GREATER
$34K
GENERAL SUPPORT
2018
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$22K
For grant recipient's exempt purposes
2018
JEWISH COMMUNAL FUND
$9K
General Support
2018
DONOR ADVISED CHARITABLE GIVING INC
$5K
HEALTH
2018
THE MCAFEE FAMILY FOUNDATION
$1K
GENERAL FUND
2018
The Shepard Broad Foundation Inc
$500
General & Unrestricted
2018
Helene K Miller Family Foundation Inc
$100
All contributions used for charities exempt purposes
2018
The Bank of America Charitable Foundation Inc
$50
PROGRAM/OPERATING SUPPORT
2018
The Bank of America Charitable Foundation Inc
$25
PROGRAM/OPERATING SUPPORT
2018
STANLEY MARION PAUL AND EDWARD BERGMAN
$13K
GENERAL USE
2017
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$12K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
JEWISH COMMUNAL FUND
$6K
General Support
2017
THE BRUNS FOUNDATION
$5K
DONATION
2017

Funded by

$10.3M from 81 funders · 200 grants · 2017–2024

Beckman Family Foundation

$3.5M · 7 grants · 2019–2023

The Herbert & Nell Singer Foundation Inc

$1.2M · 3 grants · 2020–2022

The Marcus Foundation Inc

$800K · 1 grant · 2020

Yontz Valor Foundation

$750K · 1 grant · 2024

Silicon Valley Community Foundation

$500K · 1 grant · 2024

Fleisher Family Foundation

$375K · 4 grants · 2020–2024

Fidelity Investments Charitable Gift Fund

$353K · 8 grants · 2017–2023

Details

EIN208423943
NTEE codeH30
Subsection03
Ruling date2007-10
Formed2007
Employees16
Volunteers45
CHORDOMA FOUNDATION — Mission, Financials & Grants Received | Grantivo