NonprofitsChoroideremia Research Foundation Inc

Science & Technology

Choroideremia Research Foundation Inc

SPRINGFIELD, MA

Total revenue

$699K

Total expenses

$689K

Net assets

$811K

Grants received

$302K

39 grants

EIN

043511754

Tax year

2023

Mission

To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.

Financials

FY 2023

Revenue

Contributions & grants$660K
Program service revenue
Investment income$39K
Other revenue
Total revenue$699K

Expenses

Grants paid$363K
Salaries & benefits$189K
Fundraising$87K
Other expenses$137K
Total expenses$689K
Total assets$811K
Net assets$811K

People

21 listed

NameRoleCompensation

Kathi Wagner

Executive Dir.

Board

$98K

40 hrs/wk

Tara Cassidy-Driscoll

Director

Board

1 hrs/wk

Michael Laengsfeld

Director

Board

1 hrs/wk

Jason McKinney

Director

Board

1 hrs/wk

Dr John Ross Rizzo

Director

Board

1 hrs/wk

Craig Rowley

Director

Board

1 hrs/wk

Jon Salois

Director

Board

1 hrs/wk

Bob Hiller

DIRECTOR

Board

1 hrs/wk

Brian Counter

Director

Board

1 hrs/wk

Aurelie Harp

Director

Board

1 hrs/wk

Yamil Rosete Rodriguez

Director

Board

1 hrs/wk

Stephanie Vetere Sims

Director

Board

1 hrs/wk

Mary Porter

Director

Board

1 hrs/wk

Rachel Oster

Director

Board

1 hrs/wk

Naama Goldman

Director

Board

1 hrs/wk

Thomas Driscoll

Director

Board

1 hrs/wk

Neal Bench

President

Board

1 hrs/wk

John Trott

1st Vice Pres.

Board

1 hrs/wk

Michael Mullen

2nd Vice Pres.

Board

1 hrs/wk

Brian Mayer

Secretary

Board

1 hrs/wk

Kayla Schiller

Treasurer

Board

1 hrs/wk

Grants received

Showing 39 of 39

FromAmountPurposeYear
$11K
GENERAL SUPPORT
2024
$5K
GENERAL SUPPORT RESEARCH
2024
$400
GENERAL PURPOSE
2024
$16K
For grant recipient's exempt purposes
2023
$10K
Support Research
2023
$10K
SUPPORT
2023
$7K
PUBLIC, SOCIETAL BENEFIT
2023
$5K
SUPPORT RESEARCH FOR CURE OF DISEASE
2023
$515
Matching Gifts
2023
$500
EMPLOYEE GIVING PROGRAM
2023
$32K
GENERAL SUPPORT
2022
$9K
For grant recipient's exempt purposes
2022
$6K
SUPPORT RESEARCH FOR CURE OF DISEASE
2022
$1K
MATCHING GIFTS
2022
$900
MATCHING GIFTS
2022
$500
EMPLOYEE GIVING PROGRAM
2022
$16K
For grant recipient's exempt purposes
2021
$16K
For grant recipient's exempt purposes
2021
$7K
SUPPORT RESEARCH FOR CURE OF DISEASE
2021
$8K
SUPPORT RESEARCH FOR CURE OF DISEASE
2020
$8K
For grant recipient's exempt purposes
2020
$6K
General Support
2020
$3K
GIVING TUESDAY CAMPAIGN
2020
$2K
MATCHING GIFTS GRANT
2020
$500
TO FURTHER THE EXEMPT PURPOSE OF THE ORGANIZATION
2020
$500
TO FURTHER THE EXEMPT PURPOSE OF THE ORGANIZATION
2020
$250
Matching Gifts
2020
$125
Matching Gift
2020
$15K
For grant recipient's exempt purposes
2019
$13K
For grant recipient's exempt purposes
2018
$6K
CHARITABLE
2018

Funded by

$302K from 18 funders · 39 grants · 2018–2024

Fidelity Investments Charitable Gift Fund

$92K · 7 grants · 2018–2023

American Online Giving Foundation Inc

$84K · 5 grants · 2020–2024

The Blackbaud Giving Fund

$38K · 2 grants · 2018–2022

Within Sight Foundation

$26K · 4 grants · 2020–2023

Paypal Charitable Giving Fund

$17K · 2 grants · 2020–2024

Ed Lucas Foundation Inc

$10K · 1 grant · 2023

Kids Boost Inc

$10K · 1 grant · 2023

Details

EIN043511754
NTEE codeU05
Subsection03
Ruling date2001-03
Formed2000
Employees7
Volunteers200