NonprofitsCitizens United For Research In Epilepsy

Medical Research

Citizens United For Research In Epilepsy

CHICAGO, IL

Total revenue

$6.1M

Total expenses

$6.2M

Net assets

$7.0M

Grants received

$7.9M

159 grants

EIN

364253176

Tax year

2024

Mission

To find a cure for epilepsy by promoting and funding patient focused research.

Programs

1 program

CURE Epilepsy believes that awareness is a critical vehicle to increase the amount of funding for epilepsy research and to share key learnings and opportunities for those impacted by epilepsy. CURE Epilepsy creates, sponsors and levers our website, webinars, seminars, podcasts, educational events and other digital communication to drive this critical awareness.

Expenses: $1.1M

Financials

FY 2024

Revenue

Contributions & grants$6.1M
Program service revenue
Investment income$492K
Other revenue
Total revenue$6.1M

Expenses

Grants paid$2.9M
Salaries & benefits$2.2M
Fundraising$680K
Other expenses$1.1M
Total expenses$6.2M
Total assets$10.7M
Net assets$7.0M

People

20 listed

NameRoleCompensation

Beth Dean

CEO

Board

$330K

37.5 hrs/wk

John Anderluh

CFO

Board

$115K

37.5 hrs/wk

Steve Austin

Director

Board

2 hrs/wk

Irina Colon

Director

Board

2 hrs/wk

Kim Borden

Director

Board

2 hrs/wk

Roger Heldman

Director

Board

2 hrs/wk

Carrie Garman

Director

Board

2 hrs/wk

Maureen Flood Rabus

Director

Board

2 hrs/wk

David Reifman

Director

Board

2 hrs/wk

Walter Kelly

Director

Board

2 hrs/wk

Matt Schneider

Director

Board

2 hrs/wk

Hannah Whitten

Director

Board

2 hrs/wk

Kelly Cervantes

Director

Board

2 hrs/wk

Justin Gover

Chair Elect

Board

2 hrs/wk

Michael Alexrod

Director

Board

2 hrs/wk

Lisa Cotton

Chair

Board

4 hrs/wk

Shalee Cunneen

Secretary

Board

3 hrs/wk

Kathy McKenna

Treasurer

Board

4 hrs/wk

Laura Lubbers

CSO

Staff

$331K

37.5 hrs/wk

Alysha BIehl

Director of Development

Staff

$165K

37.5 hrs/wk

Grants received

Showing 159 of 159

FromAmountPurposeYear
$160K
RESEARCH & PROGRAM SERVICES
2024
$42K
GENERAL SUPPORT
2024
$40K
PROGRAMATIC SUPPORT
2024
$40K
PROGRAMATIC SUPPORT
2024
$25K
TO PROMOTE THE CLINICAL RESEARCH OF KOOLEN DE VRIES SYNDROME
2024
$15K
CHARITABLE CONTRIBUTION - UNRESTRICED TO SUPPORT NON-PROFITS MISSION.
2024
$13K
MEDICAL / PUBLIC SERVICES
2024
$10K
General & Unrestricted
2024
$10K
UNRESTRICTED GENERAL SUPPORT
2024
$10K
EEG machines in Ukraine
2024
$7K
OPERATIONS
2024
$6K
MEDICAL RESEARCH
2024
$6K
FOR RECIPIENT'S EXEMPT PURPOSE
2024
$5K
CHARITABLE CONTRIBUTION - TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH.
2024
$3K
GENERAL SUPPORT
2024
$3K
General & Unrestricted
2024
$50
GENERAL EXEMPT PURPOSE
2024
$40
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
Grant provides general operating support. CURE Epilepsy awards grants for novel research projects to prevent epilepsy related to pediatric epilepsy post-traumatic epilepsy treatment-resistant epilepsies Sudden Unexpected Death in Epilepsy SUDEP and sleep and epilepsy advancing the search for a cure eliminating treatment side effects and reversing deficits caused by frequent seizures.
2024
$270K
For grant recipient's exempt purposes
2023
$98K
SUDEP Data Standardization Project
2023
$41K
General support for programs, operations and other charitable purposes
2023
$35K
Medical Research
2023
$30K
TO PROMOTE THE CLINICAL RESEARCH OF KOOLEN DE VRIES SYNDROME
2023
$26K
MEDICAL / PUBLIC SERVICES
2023
$25K
to support their mission to find a cure for epilepsy, by promoting and funding patient-focused research
2023
$24K
RESEARCH
2023
$24K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
$19K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
$17K
CHARITABLE DONATION
2023
$17K
PROGRAMATIC SUPPORT
2023
$15K
CHARITABLE CONTRIBUTION - UNRESTRICED TO SUPPORT NON-PROFITS MISSION.
2023
$10K
Medical Research
2023
$10K
CHARITABLE GIFT
2023
$7K
OPERATIONS
2023
$6K
GRANTS FROM DONOR ADVISED FUNDS- OPERATING SUPPORT
2023
$6K
Support for community organization
2023
$4K
General & Unrestricted
2023
$3K
CHARITABLE CONTRIBUTION - TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH.
2023
$100
MATCHING GIFTS
2023
$25
GENERAL OPERATING SUPPORT
2023
$225K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
$186K
For grant recipient's exempt purposes
2022
$82K
General Operating Support - in celebration of CURE's 25 years of groundbreaking research to eliminate seizures, General Operating Support, support for Gala gift (no tickets or tangible benefits), support for research by 2025
2022
$60K
SUDEP Data Standardization Project fund
2022
$35K
Medical Research
2022
$30K
CURE Epilepsy's 25th Anniversary Gala
2022
$20K
GENERAL SUPPORT
2022
$16K
OPERATIONS
2022
$15K
CHARITABLE CONTRIBUTION - UNRESTRICED TO SUPPORT NON-PROFITS MISSION.
2022
$10K
CHARITABLE DONATION
2022
$10K
GENERAL SUPPORT
2022
$10K
Medical Research
2022
$8K
WORKSHOP GRANT
2022
$5K
CHARITABLE CONTRIBUTION - TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH.
2022
$2K
General & Unrestricted
2022
$500
GENERAL EXEMPT PURPOSE
2022
$300
TO ADVANCE THE MISSION OF THE ORGANIZATION.
2022
$263
TO FIND A CURE FOR EPILEPSY.
2022
$154
General Operating Support
2022
$105
MATCHING GIFTS
2022
$25
MATCHING GIFTS GRANT
2022
$392K
For grant recipient's exempt purposes
2021
$392K
For grant recipient's exempt purposes
2021
$131K
For recipient's exempt purpose
2021
$50K
OPERATION SUPPORT
2021
$48K
General operating support, annual fund support. Contribution to annual benefit (no tickets or benefits received). Support for research. Support to the mission of CURE
2021
$48K
General operating support, annual fund support. Contribution to annual benefit (no tickets or benefits received). Support for research. Support to the mission of CURE
2021
$30K
CURE Epilepsy 2022 benefit support
2021
$10K
Celebration Grant
2021
$7K
CHARITABLE DONATION
2021
$5K
CHARITABLE DONATION
2021
$500
GENERAL OPERATING BUDGET
2021
$335K
For grant recipient's exempt purposes
2020
$130K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
$100K
FUNDING EPILEPSY RESEARCH
2020
$50K
Operating Support/Annual Fund
2020
$30K
GENERAL PURPOSE
2020
$25K
COMMUNITY BENEFIT PROGRAM
2020
$25K
Celebration Grant
2020
$19K
TO SUPPORT RESEARCH, AND GENERAL OPERATING SUPPORT
2020
$15K
General & Unrestricted
2020
$10K
RESEARCH
2020
$10K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2020
$10K
Covid-19 Response
2020
$8K
OPERATIONS
2020
$7K
CHARITABLE DONATION
2020
$5K
GENERAL SUPPORT
2020
$4K
GENERAL OPERATING SUPPORT
2020
$750
Matching Gift
2020
$100
COMMUNITY SUPPORT
2020
$100
MATCHING CONTRIBUTION MADE BY EMPLOYEE OF YELP, INC.
2020
$124K
For grant recipient's exempt purposes
2019
$50K
Operating Support/Annual Fund
2019
$34K
GENERAL OPERATING SUPPORT
2019
$15K
CHARITABLE GIFT
2019
$12K
Support of community organization
2019
$6K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2019
$6K
general Charitable Operation
2019
$2K
GENERAL OPERATING SUPPORT
2019
$67K
For grant recipient's exempt purposes
2018
$41K
Celebration Grant - Mission Support
2018
$13K
GENERAL OPERATING SUPPORT
2018
$10K
GENERAL SUPPORT
2018
$10K
GENERAL SUPPORT
2018
$5K
GRANT TO OTHER ORGANIZATION THAT SHARES THE SAME PRINCIPLES.
2018
$1K
Matching Gifts
2018
$947
Matching Grant
2018
$800
GENERAL OPERATING SUPPORT
2018
$200
MATCHING CONTRIBUTION MADE BY EMPLOYEE OF YELP, INC.
2018
$50
ASSOCIATE MATCHING DOLLARS
2018
$141K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
$66K
HEALTH & HUMAN SERVICES
2017
$50K
CHARITABLE DONATION FOR THE ORGANIZATION'S GENERAL PURPOSE
2017
$25K
COMMUNITY BENEFIT PROGRAM
2017
$25K
COMMUNITY BENEFIT PROGRAM
2017
$15K
PUBLIC, SOCIETAL BENEFIT
2017
$12K
GENERAL OPERATING SUPPORT
2017
$6K
Support of research activities
2017

Funded by

$7.9M from 70 funders · 159 grants · 2017–2024

National Philanthropic Trust

$2.3M · 6 grants · 2017–2023

Fidelity Investments Charitable Gift Fund

$1.9M · 8 grants · 2017–2023

Donor Advised Charitable Giving Inc

$706K · 7 grants · 2017–2023

Vanguard Charitable Endowment Program

$509K · 4 grants · 2020–2023

The Chicago Community Trust

$296K · 8 grants · 2017–2023

American Online Giving Foundation Inc

$236K · 6 grants · 2019–2024

The Joseph Gomoll Foundation Inc

$210K · 2 grants · 2023–2024

Boston Foundation Inc

$170K · 4 grants · 2019–2023

Details

EIN364253176
NTEE codeH125
Subsection03
Ruling date1999-03
Formed1998
Employees22
Volunteers285
CITIZENS UNITED FOR RESEARCH IN EPILEPSY — Mission, Financials & Grants Received | Grantivo