NonprofitsCoalition For Headache And Migraine Patients

Voluntary Health Associations & Medical Disciplines

Coalition For Headache And Migraine Patients

SAN RAFAEL, CA

Total revenue

$413K

Total expenses

$504K

Net assets

$428K

Grants received

$25K

1 grants

EIN

853950356

Tax year

2024

Mission

CHAMP's mission is to improve the lives of people with migraine, cluster, and other headache diseases by aligning coalition participants and empowering patient voices. CHAMP brings together the most influential patient advocacy organizations and leaders in the area of migraine, cluster and headache diseases. CHAMP enhances communication, coordination, and collaboration to more effectively fight stigma and help people achieve fair access to treatments. Our greatest strength is our coalition participants. They show the strength of people who live with headache diseases.

Programs

3 programs

In 2024, CHAMP connected more than 80 patients, doctors, advocacy organizations, industry partners and national nonprofit leaders to strategize and partner on headache disease challenges, including diagnosis timeline, barriers to treatment and care, and disease education efforts for patients and healthcare providers. Action items developed out of the 2024 Elevate meetings include plans for headache language into medical exam processes, expanded provider community engagement, and enhanced research engagement and headache representation.

Expenses: $70K

In 2024, Retreat Migraine was produced in a virtual format and continued to be the only conference in the U.S. created by and designed for people living with migraine disease. With a focus on education, advocacy and community-building from the patient-perspective, this experiential event brings together patients and care-givers with leading migraine stakeholders. The event hosted 427 attendees and included 4 patient stories and 5 education sessions.

Expenses: $48K

The Coalition for Headache and Migraine Patients (CHAMP) engages its 22 coalition leaders in meetings throughout the year to communicate, educate and advocate on behalf of people living with headache diseases. In 2024, we reached an estimated 1.4 million individuals through our collective social media efforts. In addition, the Coalition leveraged Migraine and Headache Awareness Month to continue unified messaging across the headache disease community. The theme, Myth Truth Action, was used to help end myths about headache disease and illuminate the truth of the debilitating symptoms. Outcomes of the campaign included 546 media pickups, 170.3 million audience reach and 45,000 website views.

Expenses: $33K

Financials

FY 2024

Revenue

Contributions & grants$402K
Program service revenue$6K
Investment income$181
Other revenue$5K
Total revenue$413K

Expenses

Grants paid
Salaries & benefits$337K
Fundraising$45K
Other expenses$167K
Total expenses$504K
Total assets$473K
Net assets$428K

People

4 listed

NameRoleCompensation

Susan Doughty

Executive Director

Board

$140K

40 hrs/wk

William Young

Board President

Board

10 hrs/wk

Vera Gibb

Board Secretary

Board

2 hrs/wk

Isiah Lineberry

Board Treasurer

Board

2 hrs/wk

Grants received

Showing 1 of 1

FromAmountPurposeYear
$25K
unrestricted
2022

Funded by

$25K from 1 funder · 1 grant · 2022

Lundbeck Us Charitable Fund

$25K · 1 grant · 2022

Details

EIN853950356
NTEE codeG01
Subsection03
Ruling date2021-06
Formed2020
Employees4
Volunteers3
COALITION FOR HEADACHE AND MIGRAINE PATIENTS — Mission, Financials & Grants Received | Grantivo