NonprofitsCoalition For Usher Syndrome Research

Health Care

Coalition For Usher Syndrome Research

WESTFORD, MA

Total revenue

$378K

Total expenses

$437K

Net assets

$180K

Grants received

$226K

15 grants

EIN

264560897

Tax year

2024

Mission

To raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness, while providing information and support to individuals with Usher syndrome.

Financials

FY 2024

Revenue

Contributions & grants$298K
Program service revenue$79K
Investment income$1K
Other revenue
Total revenue$378K

Expenses

Grants paid
Salaries & benefits$235K
Fundraising
Other expenses$202K
Total expenses$437K
Total assets$188K
Net assets$180K

People

13 listed

NameRoleCompensation

Krista Vasi

Executive Director

Board

$79K

40 hrs/wk

Lanya McKittrick PhD

President

Board

2 hrs/wk

David Alexander

Director

Board

1 hrs/wk

Danay Trest

Director

Board

1 hrs/wk

Kathy Anamisis

Director

Board

1 hrs/wk

Margaret Kenna MD MPH

Director

Board

1 hrs/wk

Monte Westerfield PhD

Director

Board

1 hrs/wk

Nancy Corderman

Director

Board

2 hrs/wk

Tara Bowman

Secretary

Board

1 hrs/wk

Jennifer J Lentz PhD

Director

Board

1 hrs/wk

Steve Mason

Treasurer

Board

1 hrs/wk

Steven McCoy

Director

Board

1 hrs/wk

Eric Wagner PhD

Director

Board

1 hrs/wk

Grants received

Showing 15 of 15

FromAmountPurposeYear
$50K
RESEARCH OR PROFESSIONAL SOCIETIES
2024
$20K
Research Usher Syndrome
2024
$12K
GENERAL SUPPORT
2024
$15K
MENTAL HEALTH GRANT
2023
$14K
Operational Support
2022
$11K
General Support
2020
$5K
For grant recipient's exempt purposes
2018
$25K
Grants from Donor Advised Funds - Operating Support
2017

Funded by

$226K from 10 funders · 15 grants · 2017–2024

Donor Advised Charitable Giving Inc

$61K · 5 grants · 2019–2023

Community Foundation Of New Jersey

$50K · 1 grant · 2024

Jewish Federation Of Metropolitan

$25K · 1 grant · 2017

Paypal Charitable Giving Fund

$23K · 2 grants · 2020–2024

Usher Syndrome Society Inc

$20K · 1 grant · 2024

Global Genes

$15K · 1 grant · 2023

The Alaska Community Foundation

$14K · 1 grant · 2022

Details

EIN264560897
NTEE codeE86
Subsection03
Ruling date2010-07
Formed2009
Employees3
Volunteers100
COALITION FOR USHER SYNDROME RESEARCH — Mission, Financials & Grants Received | Grantivo