Voluntary Health Associations & Medical Disciplines
Coffin-Siris Syndrome Foundation
KIRKLAND, WA
Total revenue
$206K
Total expenses
$119K
Net assets
$206K
Grants received
$240K
11 grants
EIN
822116961
Tax year
2024
Mission
To provide information and support to families with an individual diagnosed with Coffin-Siris Syndrome and the genetic variations associated with the syndrome.
Programs
3 programs
Provide outreach and support to CSS families undergoing treatments or hardships
Provided AAC Devices and communications boards
Provided financial support for 2 families for a consultation with a CSS specialist
Financials
FY 2024
Revenue
Expenses
People
7 listed
Carrissa Robinson
Chair
—
15 hrs/wk
Kristen McGraw
Board Member - Volunteer
—
5 hrs/wk
Gaylen Mohre
Board Member - Volunteer
—
5 hrs/wk
Amanda Cole
Board Member - Volunteer
—
5 hrs/wk
Becky Dubay
Board Member - Volunteer
—
5 hrs/wk
Katie Kneisel
Board Member - Volunteer
—
5 hrs/wk
Parrish Burgess
Board Member - Volunteer
—
5 hrs/wk
Grants received
Showing 11 of 11
Funded by
$240K from 7 funders · 11 grants · 2018–2024
$100K · 1 grant · 2024
$63K · 4 grants · 2018–2022
$55K · 2 grants · 2020–2022
$10K · 1 grant · 2024
$5K · 1 grant · 2023
$5K · 1 grant · 2023
$2K · 1 grant · 2020