NonprofitsCoffin-Siris Syndrome Foundation

Voluntary Health Associations & Medical Disciplines

Coffin-Siris Syndrome Foundation

KIRKLAND, WA

Total revenue

$206K

Total expenses

$119K

Net assets

$206K

Grants received

$240K

11 grants

EIN

822116961

Tax year

2024

Mission

To provide information and support to families with an individual diagnosed with Coffin-Siris Syndrome and the genetic variations associated with the syndrome.

Programs

3 programs

Provide outreach and support to CSS families undergoing treatments or hardships

Expenses: $2K

Provided AAC Devices and communications boards

Expenses: $2K

Provided financial support for 2 families for a consultation with a CSS specialist

Expenses: $500

Financials

FY 2024

Revenue

Contributions & grants$181K
Program service revenue
Investment income$176
Other revenue$25K
Total revenue$206K

Expenses

Grants paid
Salaries & benefits
Fundraising
Other expenses$119K
Total expenses$119K
Total assets$206K
Net assets$206K

People

7 listed

NameRoleCompensation

Carrissa Robinson

Chair

Board

15 hrs/wk

Kristen McGraw

Board Member - Volunteer

Board

5 hrs/wk

Gaylen Mohre

Board Member - Volunteer

Board

5 hrs/wk

Amanda Cole

Board Member - Volunteer

Board

5 hrs/wk

Becky Dubay

Board Member - Volunteer

Board

5 hrs/wk

Katie Kneisel

Board Member - Volunteer

Board

5 hrs/wk

Parrish Burgess

Board Member - Volunteer

Board

5 hrs/wk

Grants received

Showing 11 of 11

FromAmountPurposeYear
$100K
CHARITABLE DONATION
2024
$10K
GENERAL SUPPORT
2024
$5K
FAIR GRANT
2023
$30K
GENERAL SUPPORT
2022
$16K
UNRESTRICTED
2022
$24K
UNRESTRICTED
2021
$25K
GENERAL SUPPORT
2020
$18K
Unrestricted
2020
$2K
GENERAL CONTRIBUTION
2020
$5K
Unrestricted
2018

Funded by

$240K from 7 funders · 11 grants · 2018–2024

The Bernard and Virginia Bartley

$100K · 1 grant · 2024

Network For Good

$63K · 4 grants · 2018–2022

The Huntsman Foundation

$55K · 2 grants · 2020–2022

Paypal Charitable Giving Fund

$10K · 1 grant · 2024

Global Genes

$5K · 1 grant · 2023

The Fagergren Family Foundation

$2K · 1 grant · 2020

Details

EIN822116961
NTEE codeG20
Subsection03
Ruling date2018-02
Formed2017
Employees0
Volunteers20
COFFIN-SIRIS SYNDROME FOUNDATION — Mission, Financials & Grants Received | Grantivo