Voluntary Health Associations & Medical Disciplines
Congenital Adrenal Hyperplasia Research Education & Support Fdtn
UNION, NJ
Total revenue
$1.2M
Total expenses
$1.1M
Net assets
$823K
Grants received
$534K
33 grants
EIN
223755684
Tax year
2024
Mission
Cares foundation is a nonprofit organization committed to improving the lives of families and individuals affected by congenital adrenal hyperplasia (cah) through proactively advancing research for a better understanding of cah, better treatments and a cure; educating the public and healthcare professionals about all forms of cah; advocating for universal newborn screening; immediate, appropriate emergency medical treatment; and comprehensive lifelong care; as well as support services and resources vital to the cah community worldwide.
Programs
16 programs
Research/CCC: This CARES-designated Comprehensive Care Center provides a multi-disciplinary approach to treatment of the CAH patient throughout the lifecycle.
Warmline support provides individuals and parents of children with cah a one-on-one source of information and support, which includes physician and resource referrals, via telephone, email and mail.
Programs-other
Cah awareness-educating the public and physicians about all forms of congenital adrenal hyperplasia, its symptoms, portocols, treatments, genetic frequency and the necessity of early intervention and benefits of newborn screening.
Program travel
Program supplies
Cah awareness walks
Research
Cah products
EMS
Newsletters
Cah awareness-other
Endo/ice conference
Program postage
Program printing
Program consulting
Financials
FY 2024
Revenue
Expenses
People
18 listed
JESSICA MARGOLIES
Chair
—
10 hrs/wk
STACEY SHACKLEY
Trustee
—
5 hrs/wk
KAREN BOGAARD
Secretary
—
10 hrs/wk
CARLOS DASILVA
Trustee
—
5 hrs/wk
TIMOTHY ROBERTS
Trustee
—
5 hrs/wk
LOUISE FLEMING PhD RN
Trustee
—
10 hrs/wk
MICHELE BACUS
Trustee
—
5 hrs/wk
GEORGE LIMBERT
Trustee
—
5 hrs/wk
LESLEY HOLROYD
Vice Chair
—
10 hrs/wk
ALEXANDRA DUBOIS
IMM PAST CHAIR
—
10 hrs/wk
KATHERINE FOWLER
Trustee
—
5 hrs/wk
MARIA MAEBIUS
Trustee
—
5 hrs/wk
KEYSHA BERRY
Trustee
—
5 hrs/wk
ALAN MACY
Trustee
—
5 hrs/wk
BRIAN STAIR
Treasurer
—
10 hrs/wk
CHARLES JARMON
Trustee
—
5 hrs/wk
ANNE NEUMANN
Trustee
—
5 hrs/wk
JEFFREY PURNELL
Trustee
—
5 hrs/wk
Grants received
Showing 33 of 33
Funded by
$534K from 8 funders · 33 grants · 2017–2024
$183K · 4 grants · 2020–2023
$120K · 8 grants · 2017–2023
$114K · 5 grants · 2018–2023
$84K · 5 grants · 2020–2024
$21K · 3 grants · 2020–2024
$10K · 1 grant · 2024
$900 · 5 grants · 2019–2024
$750 · 2 grants · 2022–2023