NonprofitsCongenital Adrenal Hyperplasia Research Education & Support Fdtn

Voluntary Health Associations & Medical Disciplines

Congenital Adrenal Hyperplasia Research Education & Support Fdtn

UNION, NJ

Total revenue

$1.2M

Total expenses

$1.1M

Net assets

$823K

Grants received

$534K

33 grants

EIN

223755684

Tax year

2024

Mission

Cares foundation is a nonprofit organization committed to improving the lives of families and individuals affected by congenital adrenal hyperplasia (cah) through proactively advancing research for a better understanding of cah, better treatments and a cure; educating the public and healthcare professionals about all forms of cah; advocating for universal newborn screening; immediate, appropriate emergency medical treatment; and comprehensive lifelong care; as well as support services and resources vital to the cah community worldwide.

Programs

16 programs

Research/CCC: This CARES-designated Comprehensive Care Center provides a multi-disciplinary approach to treatment of the CAH patient throughout the lifecycle.

Expenses: $146K

Warmline support provides individuals and parents of children with cah a one-on-one source of information and support, which includes physician and resource referrals, via telephone, email and mail.

Expenses: $124K

Programs-other

Expenses: $33K

Cah awareness-educating the public and physicians about all forms of congenital adrenal hyperplasia, its symptoms, portocols, treatments, genetic frequency and the necessity of early intervention and benefits of newborn screening.

Expenses: $33K

Program travel

Expenses: $33K

Program supplies

Expenses: $33K

Cah awareness walks

Expenses: $33K

Research

Expenses: $33K

Cah products

Expenses: $33K

EMS

Expenses: $33K

Newsletters

Expenses: $33K

Cah awareness-other

Expenses: $33K

Endo/ice conference

Expenses: $33K

Program postage

Expenses: $33K

Program printing

Expenses: $33K

Program consulting

Expenses: $33K

Financials

FY 2024

Revenue

Contributions & grants$749K
Program service revenue$467K
Investment income$33K
Other revenue
Total revenue$1.2M

Expenses

Grants paid
Salaries & benefits$424K
Fundraising$56K
Other expenses$643K
Total expenses$1.1M
Total assets$969K
Net assets$823K

People

18 listed

NameRoleCompensation

JESSICA MARGOLIES

Chair

Board

10 hrs/wk

STACEY SHACKLEY

Trustee

Board

5 hrs/wk

KAREN BOGAARD

Secretary

Board

10 hrs/wk

CARLOS DASILVA

Trustee

Board

5 hrs/wk

TIMOTHY ROBERTS

Trustee

Board

5 hrs/wk

LOUISE FLEMING PhD RN

Trustee

Board

10 hrs/wk

MICHELE BACUS

Trustee

Board

5 hrs/wk

GEORGE LIMBERT

Trustee

Board

5 hrs/wk

LESLEY HOLROYD

Vice Chair

Board

10 hrs/wk

ALEXANDRA DUBOIS

IMM PAST CHAIR

Board

10 hrs/wk

KATHERINE FOWLER

Trustee

Board

5 hrs/wk

MARIA MAEBIUS

Trustee

Board

5 hrs/wk

KEYSHA BERRY

Trustee

Board

5 hrs/wk

ALAN MACY

Trustee

Board

5 hrs/wk

BRIAN STAIR

Treasurer

Board

10 hrs/wk

CHARLES JARMON

Trustee

Board

5 hrs/wk

ANNE NEUMANN

Trustee

Board

5 hrs/wk

JEFFREY PURNELL

Trustee

Board

5 hrs/wk

Grants received

Showing 33 of 33

FromAmountPurposeYear
$10K
UNRESTRICTED GENERAL SUPPORT
2024
$6K
DISEASE/DISORDER
2024
$200
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
$57K
For grant recipient's exempt purposes
2023
$9K
UNRESTRICTED
2023
$250
GENERAL SUPPORT
2023
$200
GENERAL OPERATING SUPPORT
2023
$18K
UNRESTRICTED
2022
$17K
For grant recipient's exempt purposes
2022
$5K
DISEASE/DISORDER
2022
$500
GENERAL SUPPORT
2022
$200
GENERAL OPERATING SUPPORT
2022
$19K
UNRESTRICTED
2021
$9K
For grant recipient's exempt purposes
2021
$9K
For grant recipient's exempt purposes
2021
$200
GENERAL OPERATING SUPPORT
2021
$23K
Unrestricted
2020
$9K
For grant recipient's exempt purposes
2020
$7K
For grant recipient's exempt purposes
2019
$100
GENERAL OPERATING SUPPORT
2019
$44K
Unrestricted
2018
$5K
For grant recipient's exempt purposes
2018
$6K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017

Funded by

$534K from 8 funders · 33 grants · 2017–2024

Donor Advised Charitable Giving Inc

$183K · 4 grants · 2020–2023

Fidelity Investments Charitable Gift Fund

$120K · 8 grants · 2017–2023

Network For Good

$114K · 5 grants · 2018–2023

American Online Giving Foundation Inc

$84K · 5 grants · 2020–2024

American Endowment Foundation

$21K · 3 grants · 2020–2024

Jpmorgan Chase Foundation

$900 · 5 grants · 2019–2024

American Express Foundation

$750 · 2 grants · 2022–2023

Details

EIN223755684
NTEE codeG114
Subsection03
Ruling date2001-07
Formed2000
Employees5
Volunteers50
CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION & SUPPORT FDTN — Mission, Financials & Grants Received | Grantivo