Cornelia De Lange Syndrome Foundation Inc
AVON, CT
Total revenue
$1.1M
Total expenses
$1.1M
Net assets
$3.3M
Grants received
$1.2M
62 grants
EIN
061057497
Tax year
2024
Mission
Family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.
Programs
3 programs
Public information & education
Professional education outreach & awareness
Research
Financials
FY 2024
Revenue
Expenses
People
12 listed
Morrisette Royster
Executive Dir.
$131K
40 hrs/wk
Antonie Kline MD
MD Director
$15K
0Mike Feehan
Vice President
—
1 hrs/wk
Rob Rodriguez
Director
—
1 hrs/wk
Arthur Lander
Director
—
1 hrs/wk
Eric Johnson
Treasurer
—
1 hrs/wk
Steve Snodsmith
Director
—
1 hrs/wk
Nicholas Jackson
Secretary
—
1 hrs/wk
Yvonne Alston
Director
—
1 hrs/wk
Paul Villani
President
—
1 hrs/wk
Mary Ann Ehlert
Director
—
1 hrs/wk
Tricia Wise
Director
—
1 hrs/wk
Grants received
Showing 62 of 62
Funded by
$1.2M from 18 funders · 62 grants · 2017–2024
$639K · 5 grants · 2019–2023
$179K · 6 grants · 2019–2024
$88K · 7 grants · 2017–2023
$77K · 5 grants · 2019–2024
$73K · 7 grants · 2017–2023
$70K · 10 grants · 2020–2024
$48K · 2 grants · 2019–2021
$27K · 4 grants · 2020–2023