NonprofitsCure Cdkl5 Epilepsy Foundation

Voluntary Health Associations & Medical Disciplines

Cure Cdkl5 Epilepsy Foundation

NEW YORK, NY

Total revenue

$192K

Total expenses

$14K

Net assets

$178K

Grants received

$14K

1 grants

EIN

991303165

Tax year

2024

Mission

Cure CDKL5 Epilepsy Foundation's mission is to find a cure for children suffering from CDKL5 Deficiency Disorder and improve the qualtiy of life for them and their families. We will provide financial grants and payments to advance science and research to the academic, biopharma, scientific and medical community to pursue our mission. CDKL5 is a rare developmental epileptic encephalophathy caused by mutations in the CDKL5 gene, and this can manifest in a broad range of clinical symptoms and severity.

Financials

FY 2024

Revenue

Contributions & grants$192K
Program service revenue
Investment income
Other revenue
Total revenue$192K

Expenses

Grants paid
Salaries & benefits
Fundraising
Other expenses
Total expenses$14K
Total assets$178K
Net assets$178K

People

3 listed

NameRoleCompensation

Aurelie Hasse

Treasurer

Board

5 hrs/wk

Andreas Borg

President

Board

5 hrs/wk

Camille Ranadive

Secretary

Board

5 hrs/wk

Grants received

Showing 1 of 1

FromAmountPurposeYear

Funded by

$14K from 1 funder · 1 grant · 2024

Details

EIN991303165
NTEE codeG54
Subsection03
Ruling date2024-03
CURE CDKL5 EPILEPSY FOUNDATION — Mission, Financials & Grants Received | Grantivo