NonprofitsCure Tay-Sachs Foundation

Medical Research

Cure Tay-Sachs Foundation

PHOENIX, AZ

Total revenue

$141K

Total expenses

$251K

Net assets

$1.9M

Grants received

$110K

25 grants

EIN

260256621

Tax year

2024

Mission

The cure tay-sachs foundation has been created to fund the research initiatives that show promise to treat and ultimately cure tay-sachs disease (tsd). Tsd is hereditary disease passed on when two carrier parents both pass the tay-sachs gene to their child. Tay-sachs has three forms - the classic or infantile form, the juvenile onset form and the late on-set form known as lots. Children infected with the infantile or juvenile form currently have a 100% mortaility rate - no child has ever survived this disease. We aim to change that.

Financials

FY 2024

Revenue

Contributions & grants$58K
Program service revenue
Investment income$83K
Other revenue
Total revenue$141K

Expenses

Grants paid$200K
Salaries & benefits$48K
Fundraising
Other expenses$3K
Total expenses$251K
Total assets$1.9M
Net assets$1.9M

People

13 listed

NameRoleCompensation

RICK KARL

PRESIDENT

Board

$48K

20 hrs/wk

NICKI LUCE

DIRECTOR

Board

2 hrs/wk

LAURIE TEN BERG

DIRECTOR

Board

2 hrs/wk

TERRY KARL ESQ

DIRECTOR

Board

2 hrs/wk

ROBBIE SANDOVAL

DIRECTOR

Board

2 hrs/wk

BRIAN PLICK

DIRECTOR

Board

2 hrs/wk

HOLLY MCDONALD

DIRECTOR

Board

2 hrs/wk

ROYCE STINGER

DIRECTOR

Board

2 hrs/wk

DEEPA KODALI

DIRECTOR

Board

2 hrs/wk

BRIANNE ANDERSON

DIRECTOR

Board

2 hrs/wk

MATT LUNCHICK

DIRECTOR

Board

2 hrs/wk

CHERYL BABO

DIRECTOR

Board

2 hrs/wk

BRUCE STEIGER

TREASURER

Board

8 hrs/wk

Grants received

Showing 25 of 25

FromAmountPurposeYear
$10K
TAKE-A-HIKE TAY SACHS 2025
2024
$20
GENERAL SUPPORT
2024
$8K
TAKE A HIKE TAY SACHS 2024
2023
$60
GENERAL SUPPORT
2023
$60
GENERAL SUPPORT
2023
$60
GENERAL SUPPORT
2023
$40
GENERAL SUPPORT
2023
$20
GENERAL SUPPORT
2023
$64K
GENERAL SUPPORT
2022
$5K
2022 TAKE A HIKE TAY-SACHS VIRTUAL 5K
2022
$200
GENERAL EXEMPT PURPOSE
2022
$60
GENERAL SUPPORT
2022
$60
GENERAL SUPPORT
2022
$60
GENERAL SUPPORT
2022
$40
GENERAL SUPPORT
2022
$20
GENERAL SUPPORT
2022
$3K
Research Tay-Sachs disease
2020
$60
GENERAL SUPPORT
2020
$60
GENERAL SUPPORT
2020
$60
GENERAL SUPPORT
2020
$40
GENERAL SUPPORT
2020
$8K
PROVIDE FUNDING FOR RESEARCH TO FIND A CURE FOR TAY-SACHS DISEASE
2018

Funded by

$110K from 9 funders · 25 grants · 2018–2024

Paypal Charitable Giving Fund

$64K · 1 grant · 2022

Delta Dental Of California

$23K · 3 grants · 2022–2024

Michael W McCarthy Foundation Inc

$8K · 1 grant · 2018

All Life Foundation

$3K · 1 grant · 2020

American Express Foundation

$720 · 15 grants · 2020–2024

Arthur J Gallagher Foundation

$200 · 1 grant · 2022

Details

EIN260256621
NTEE codeH128
Subsection03
Ruling date2007-08
Formed2007
Employees0
Volunteers0
CURE TAY-SACHS FOUNDATION — Mission, Financials & Grants Received | Grantivo