NonprofitsCystic Fibrosis Foundation

Disease & Medical Research

Cystic Fibrosis Foundation

BETHESDA, MD

Total revenue

$355.8M

Total expenses

$439.1M

Net assets

$4.7B

Grants received

$78.0M

3,940 grants

EIN

131930701

Tax year

2024

Mission

To cure cf and provide all people with cf the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the cf community, and advancing high-quality, specialized care.

Programs

2 programs

Education Program Expenses. See Schedule O.

Expenses: $22.2M

Community Service Program Expenses. SEE SCHEDULE O.

Expenses: $18.2MGrants: $3.2M

Financials

FY 2024

Revenue

Contributions & grants$95.9M
Program service revenue$3.3M
Investment income$231.3M
Other revenue$25.3M
Total revenue$355.8M

Expenses

Grants paid$202.0M
Salaries & benefits$143.7M
Fundraising$35.1M
Other expenses$93.0M
Total expenses$439.1M
Total assets$5.0B
Net assets$4.7B

People

29 listed

NameRoleCompensation

MICHAEL P BOYLE MD

PRESIDENT & CEO

Board

$1.1M

40 hrs/wk

IRENA BARISIC

EVP & CHIEF OPERATING & FINANCIAL OFFICER

Board

$762K

40 hrs/wk

MICHAEL B CAVADEL

SVP, CHIEF LEGAL OFFICER

Board

$558K

40 hrs/wk

PAUL A MOTENKO

TRUSTEE

Board

3 hrs/wk

ROBERT H NIEHAUS

VICE CHAIR

Board

5 hrs/wk

STEVEN SHAK MD

TRUSTEE

Board

3 hrs/wk

TERESA L ELDER

VICE CHAIR

Board

5 hrs/wk

ERIC SCHNEIDER MD

TRUSTEE

Board

3 hrs/wk

ERIC R OLSON PHD

VICE CHAIR

Board

5 hrs/wk

ELISE EBERWEIN

TRUSTEE

Board

3 hrs/wk

DOMINIC J CARUSO

TRUSTEE

Board

3 hrs/wk

DODZIE SOGAH PHD

TRUSTEE

Board

3 hrs/wk

DAVID A MOUNT

TREASURER

Board

5 hrs/wk

JESSICA H BOYD MD

TRUSTEE

Board

3 hrs/wk

CAROLE B GRIEGO MD

TRUSTEE

Board

3 hrs/wk

JOHN S WEINBERG

EXECUTIVE VICE CHAIR

Board

5 hrs/wk

KATE O'DONNELL

TRUSTEE

Board

3 hrs/wk

KC BRYAN WHITE

CHAIR

Board

8 hrs/wk

LOUIS A DEFALCO

VICE CHAIR

Board

5 hrs/wk

JOHN C MAHLER JR MD

CHIEF INVESTMENT OFFICER

Staff

$1.9M

40 hrs/wk

ANDREW LEWIS

MANAGING DIRECTOR, INVESTMENTS

Staff

$1.4M

40 hrs/wk

EARL A LEE

MANAGING DIRECTOR, INVESTMENTS

Staff

$1.2M

40 hrs/wk

ERIC KOEHRSEN

MANAGING DIRECTOR, INVESTMENTS

Staff

$976K

40 hrs/wk

JOHN P CLANCY MD

SVP, CLINICAL RESEARCH

Staff

$670K

40 hrs/wk

GENTIANA S AROVAS

MANAGING DIRECTOR, INVESTMENTS OPERATIONS

Staff

$643K

40 hrs/wk

ALBERT FARO MD

Chief Medical Officer Beg. 7/1/2024

Staff

$572K

40 hrs/wk

STEVEn ROWE MD

EVP, Chief Scientific Officer

Staff

$535K

32 hrs/wk

BRUCE MARSHALL MD

Chief Medical Officer Ending 7/1/2024

Staff

$515K

40 hrs/wk

ENRIQUE LIN SHIAO PHD

Principal of Mission Related Investments

Staff

$508K

40 hrs/wk

Independent contractors

VERTEX PHARMACEUTICALS INC

CONTRACTED RESEARCH

$12.5M

Prime Medicine Inc

Contracted Research

$6M

ANAGRAM THERAPEUTICS INC

CONTRACTED RESEARCH

$5.5M

PIONEERING MEDICINE (CF)

CONTRACTED RESEARCH

$5.2M

Slalom LLC

Technology Consulting

$3.7M

Grants received

Showing 200 of 3,940

FromAmountPurposeYear
$1.2M
GENERAL SUPPORT
2024
$600K
CHARITABLE CONTRIBUTION - TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES.
2024
$500K
GENERAL CHARITABLE PURPOSES
2024
$378K
DISEASE/DISORDER
2024
$330K
UNRESTRICTED GENERAL SUPPORT
2024
$300K
GENERAL SUPPORT
2024
$285K
RESEARCH
2024
$154K
CURE CYSTIC FIBROSIS
2024
$150K
State of the Art Cystic Fibrosis Care and Clinical Research in Texas
2024
$134K
MEDICAL / PUBLIC SERVICES
2024
$128K
UNRESTRICED GENERAL SUPPORT
2024
$127K
FOR RECIPIENT'S EXEMPT PURPOSE
2024
$125K
UNRESTRICTED USE
2024
$103K
CHARITABLE ASSISTANCE
2024
$100K
AWARD HONOREE
2024
$100K
UNRESTRICTED GENERAL SUPPORT
2024
$100K
Charitable Event
2024
$100K
TO ASSIST THE ORGANIZATION WITH THEIR CHARITABLE OPERATIONS.
2024
$95K
UNRESTRICTED GENERAL SUPPORT
2024
$90K
CF SUPPORT
2024
$90K
General support
2024
$90K
Support the development of drugs and therapies to treat and cure Cystic Fibrosis
2024
$86K
RESEARCH/PUBLICEDUCATION
2024
$80K
CHARITABLE
2024
$76K
RELIGION RELATED
2024
$75K
GENERAL FUND
2024
$60K
GENERAL FUND
2024
$60K
Donation
2024
$59K
CHARITABLE GIFT
2024
$52K
GRANT PROVIDED TO HELP INCREASE KNOWLEDGE AND EDUCATION (CYSTIC FIBROSIS RESEARCH).
2024
$51K
GENERAL SUPPORT
2024
$50K
GENERAL FUNDING
2024
$48K
General support
2024
$47K
PROGRAMATIC SUPPORT
2024
$47K
PROGRAMATIC SUPPORT
2024
$46K
TO FURTHER THE ORGANIZATION'S EXEMPT PURPOSE
2024
$45K
MEDICAL / PUBLIC SERVICES
2024
$41K
DONOR DESIGNATION/GRANT
2024
$39K
GENERAL
2024
$35K
General Doantion
2024
$35K
GENERAL CHARITABLE PURPOSE
2024
$35K
GENERAL CHARITABLE PURPOSE
2024
$35K
TO FURTHER RECIPIENT'S TAX-EXEMPT PURPOSE
2024
$33K
to develop gene editing therapies for patients
2024
$32K
General support
2024
$32K
GENERAL SUPPORT
2024
$30K
CHARITABLE
2024
$30K
GENERAL SUPPORT
2024
$30K
GENERAL PURPOSE
2024
$30K
UNRESTRICTED
2024
$30K
2024 Midyear Campaign
2024
$30K
TO SUPPORT CLINICAL RESEARCH
2024
$30K
CYSTIC FIBROSIS CARE IN FORT WORTH
2024
$27K
HEALTH CARE
2024
$27K
TO SUPPORT INNOVATIVE RESEARCH TO CONTROL AND CURE CYSTIC FIBROSIS, PROVIDE SPECIALIZED MEDICAL CARE THROUGH A NATIONWIDE NETWORK OF CENTERS, AND OFFER PHARMACY AND OTHER PATIENT SERVICES
2024
$25K
GENERAL PURPOSE
2024
$25K
CHARITABLE
2024
$25K
SUPPORT AID FOR PEOPLE WITH CYSTUC FIBROSIS
2024
$25K
CYSTIC FIBROSIS RESEARCH
2024
$25K
GENERAL CONTRIBUTION
2024
$25K
GENERAL SUPPORT
2024
$25K
GRANT TOWARDS ORGANIZATION'S MISSION
2024
$25K
TO HELP FUND THE RECIPIENT'S OPERATING BUDGET
2024
$25K
GENERAL FUNDS
2024
$25K
Medical Research
2024
$25K
TO PROVIDE RESOURCES FOR THE TREATMENT AND CURE OF CYSTIC FIBROSIS
2024
$23K
Program Support - Compass Program
2024
$23K
General Support
2024
$23K
Mission support
2024
$23K
GENERAL PROGRAM OPERATIONS
2024
$22K
GENERAL SUPPORT
2024
$22K
GENERAL SUPPORT
2024
$21K
Health, Medicine & Science
2024
$20K
ASSIST CHILDREN
2024
$20K
FUND PROGRAMS
2024
$20K
FOR PROGRAM SUPPORT AS REQUESTED BY JAKE KIRKPATRICK
2024
$20K
TO SUPPORT THE ORGANIZATION MISSION
2024
$20K
General support
2024
$20K
Donation
2024
$20K
GENERAL SUPPORT
2024
$20K
65 ROSES GOLF CLASSIC SPECIAL FRIEND SPONSOR
2024
$19K
GENERAL PURPOSE
2024
$17K
MEDICAL RESEARCH
2024
$17K
GENERAL SUPPORT
2024
$16K
SUPPORT RESOURCES
2024
$15K
GENERAL SUPPORT
2024
$15K
GENERAL EXEMPT PURPOSE
2024
$15K
CHARITABLE PURPOSES
2024
$15K
2024 PREMIER SPONSORSHIP
2024
$15K
CHARITABLE GIFT
2024
$15K
To provide program support for assistance services promoting individualized treatment, access to high quality specialized care to people with the disease of Cystic Fibrosis.
2024
$15K
SUPPORT FOR ORGANIZATION'S PROGRAMS
2024
$15K
RESEARCH, EDUCATION & PATIENT SERVICES
2024
$15K
GENERAL USE
2024
$14K
SUPPORT FOR CYSTIC FIBROSIS FUNDRAISING ACTIVITIES
2024
$14K
PROGRAM SUPPORT
2024
$14K
PROGRAM SUPPORT
2024
$13K
General Support
2024
$12K
TO FURTHER THE ORGANIZATION'S TAX EXEMPT PURPOSE
2024
$12K
TO ASSIST THE ORGANIZATION IN CARRYING OUT ITS CHARITABLE PURPOSE
2024
$11K
UNRESTRICTED
2024
$11K
COMMUNITY BENEFIT
2024
$11K
GENERAL DONATION
2024
$11K
SOCIAL SERVICES
2024
$11K
CHARITABLE SUPPORT. ANY RESTRICTIONS HAVE BEEN COMMUNICATED TO THE GRANTEE.
2024
$10K
HEALTH AND WELLNESS
2024
$10K
Charitable Event
2024
$10K
GENERAL SUPPORT
2024
$10K
WHOLE PERSON CYSTIC FIBROSIS CARE AT BLANK CHILDREN'S HOSPITAL
2024
$10K
TO ACCOMPLISH CHARITABLE PURPOSE
2024
$10K
GENERAL OPERATING
2024
$10K
GENERAL SUPPORT
2024
$10K
GENERAL SUPPORT
2024
$10K
GENERAL TAX EXEMPT PURPOSE
2024
$10K
GENERAL OPERATING SUPPORT
2024
$10K
Cystic Fibrosis Challenge Campaign
2024
$10K
General Fund
2024
$10K
TO SUPPORT THE CAUSE
2024
$10K
CF TREATMENTS
2024
$10K
GENERAL GIFT TO SUPPORT PROGRESS IN THE TREATEMENT OF CYSTIC FIBROSIS
2024
$10K
TO SUPPORT CHARITABLE PURPOSE
2024
$10K
GENERAL SUPPORT
2024
$10K
GENERAL CHARITABLE PURPOSE
2024
$10K
OPERATING FUND
2024
$10K
GENERAL PURPOSE
2024
$10K
Medical Research
2024
$10K
FINANCIAL SUPPORT
2024
$10K
MEDICAL DISCIPLINES
2024
$10K
GENERAL SUPPORT
2024
$10K
UNRESTRICTED GENERAL SUPPORT
2024
$10K
UNRESTRICTED GENERAL SUPPORT
2024
$10K
OPERATIONS
2024
$10K
DONOR DESIGNATION
2024
$9K
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
$8K
DONATION
2024
$8K
Health, Medicine & Science
2024
$8K
GENERAL PURPOSES
2024
$8K
GENERAL OPERATING SUPPORT
2024
$7K
FOR RESEARCH OF A CURE TO CYSTIC FIBROSIS
2024
$7K
PURPOSE DESIGNATED BY THE RECIPIENT
2024
$6K
GENERAL SUPPORT
2024
$6K
GENERAL OPERATING SUPPORT
2024
$6K
MEDICAL RESEARCH.
2024
$6K
GENERAL SUPPORT
2024
$6K
Supporting patients and families affected by cystic fibrosis
2024
$5K
COMMUNITY DEVELOPMENT
2024
$5K
To support research on Cystic Fibrosis
2024
$5K
GREAT STRIDES ATLANTA-INSURE THE CURE. BARGE EMPLOYEE BREANNA GLEESON IS THE EMPLOYEE SPONSOR.
2024
$5K
MEDICAL & HEALTH
2024
$5K
UNRESTRICTED GENERAL SUPPORT
2024
$5K
UNRESTRICTED GENERAL SUPPORT
2024
$5K
HEALTH & WELFARE
2024
$5K
GENERAL OPERATIONS
2024
$5K
GENERAL SUPPORT
2024
$5K
General & Unrestricted
2024
$5K
GENERAL SUPPORT
2024
$5K
CHARITABLE
2024
$5K
TO SUPPORT EFFORTS IN THEIR MISSION TO HELP CURE AND HELP THOSE WITH CYSTIC FIBROSIS
2024
$5K
GENERAL CHARITABLE PURPOSES
2024
$5K
General & Unrestricted
2024
$5K
2024 GREAT STRIDES SPONSOR
2024
$5K
SOCIAL AND HEALTH
2024
$5K
CHARITABLE SUPPORT
2024
$5K
General Purposes
2024
$5K
GENERAL SUPPORT
2024
$5K
2024 GRANT TO SUPPORT EFFORTS TO SEEK A CURE FOR THOSE AFFECTED BY CYSTIC FIBROSIS
2024
$5K
GENERAL
2024
$5K
TO FURTHER RECIPIENT'S CHARITABLE PURPOSE
2024

Funded by

$78.0M from 1,407 funders · 3,940 grants · 2016–2024

Fidelity Investments Charitable Gift Fund

$15.1M · 7 grants · 2018–2023

American Online Giving Foundation Inc

$5.5M · 7 grants · 2019–2024

Donor Advised Charitable Giving Inc

$5.1M · 31 grants · 2017–2023

The Blackbaud Giving Fund

$1.7M · 6 grants · 2018–2024

Paypal Charitable Giving Fund

$1.6M · 5 grants · 2020–2024

Morgan Stanley Global Impact Funding Trust Inc

$1.6M · 20 grants · 2019–2024

National Philanthropic Trust

$1.4M · 6 grants · 2017–2023

The Robert And Kate Niehaus Foundation

$1.3M · 3 grants · 2020–2024

Details

EIN131930701
NTEE codeG200
Subsection03
Ruling date1957-11
Formed1955
Employees875
Volunteers56403